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The one thing that we pride 
ourselves is that when we 

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develop any of these materials, 
it's not just a nurse writing 

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them. 
It's a multidisciplinary 

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approach. 
So we have physicians, we have 

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nurses and perhaps uniquely, we 
usually have a patient voice in 

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in the early stage of planning 
of every material we do. 

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Welcome to EHA Unplugged, the 
official podcast channel of the 

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European Hematology Association.
EHA. 

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I'm Sarah de Ficher and I'm here
today with two very special 

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guests from HNHBC, Maraid and 
Eric Maraid. 

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Would you mind introducing 
yourself? 

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Hello, my name is Marini Canela.
I am the Vice President of the 

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Hematology, Nurses and 
Healthcare Professionals Group, 

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otherwise known as HNHCP, and 
I'm also a bone marrow 

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transplant coordinator in Saint 
James's Hospital in Dublin, 

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Ireland. 
Eric. 

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Yeah, my name is Eric Adds. 
I'm the president of the 

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Hematology Nurses and Healthcare
Professionals group, and I'm 

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nurse manager at the hematology 
department at the University 

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Hospital in Zurich in 
Switzerland. 

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Many of our audience will not be
quite as familiar with HNHCP, so

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could you tell us a little bit 
about, you know, what is HNHCP? 

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Where did it come from? 
How did it start? 

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Yeah, HNHCP was established 
about 10 years ago and our main 

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focus is educating nurses and 
Elliott Healthcare care 

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professionals like 
physiotherapists, nutrition 

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specialists, social workers, 
etcetera, etcetera, to educate 

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them in the field of hematology.
Over the years, I suppose we 

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noticed that there was a a 
scarcity of education and 

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information for nurses working 
in general hematology and the 

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areas like bone marrow 
transplants are very well 

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covered by other organizations, 
both general nurses working 

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generally at the coalface with 
patients with myeloma, lymphoma,

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CLL that never referred for 
specialist treatments. 

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There wasn't much out there in 
the lines of educational 

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material or information or even 
a conference where they could 

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meet and come together and share
ideas and get it, learn what was

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happening in other centres 
throughout Europe and the world.

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OK. 
So man, you've been going for 10

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years. 
What are the sorts of things, 

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the activities that you do for 
that part of the community these

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days? 
So important is we are global 

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organization and our main focus 
is our annual meeting. 

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It's a 2 day hybrid meeting and 
then the development of 

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educational materials from non 
malignant and malignant diseases

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and we develop textbooks and 
important is for some nurses and

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other healthcare professionals. 
The lack of language. 

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We translate our textbook from 
English in French, Italian, 

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German and Spanish language. 
And we have AE learning platform

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where people can educate 
themselves, can do a test and 

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then we have the E by 
accreditation. 

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So today's we have developed 7 
learning programmes on ITP 

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myeloma, acute leukemias, 
chronic leukemias, lymphoma, CAR

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T therapy and bispecific 
antibody therapy. 

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And our 8th program is in 
development at the moment and we

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are looking at 
hemoglobinopathies and as well 

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as the material textbook. 
As he said, the the learnings 

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available in only in English, 
unfortunately, but is there for 

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individuals to access. 
But also we have collaborated 

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particularly with the likes of 
the CAR T program, with 

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institutions in the Netherlands 
and Austria, with translating 

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them locally into their language
for use by universities and 

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national societies in those 
countries so that they can 

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access the material as well. 
Within the community, umm, how 

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have these activities benefited 
both the healthcare 

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professionals but also the 
patients? 

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We think, we would think that 
there's been a very positive 

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receptionism, but we know from 
the demand for the information, 

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the fact that it's readily 
accessible both in print form 

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and downloadable from our 
website. 

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And we know from tracking the 
downloads that they're being 

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accessed everywhere in the 
world. 

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But we know that they're not 
only being used for the 

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education of nurses, but as we 
said very keenly for other 

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healthcare professionals and 
even in some places are being 

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used as an introduction to 
certain topics where junior 

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doctors may not see a lymphoma 
patient or a CAR T, but they may

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be seeing them when they come in
sick. 

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That's some way of being able to
get themselves up to date with 

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what may be involved. 
The one thing that we pride 

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ourselves is that when we 
develop any of these materials, 

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it's not just a nurse writing 
them. 

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It's a multidisciplinary 
approach. 

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So we have physicians, we have 
nurses and perhaps uniquely we 

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usually have a patient voice in 
in the early stage of planning 

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of every material we do and then
they get reviewed of by other 

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physicians and nurses and 
patient voice that are not 

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involved in the development of 
the original material. 

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So it has it has that unique 
perspective that it kind of 

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covers all remits and facets of 
the patient journey, which is 

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really important to us. 
I mean, that sounds very, I mean

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not just admirable, but I'm very
impressed by the amount of work 

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that must go into that. 
What are the some of the 

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challenges that you are finding 
in sort of meeting the demands 

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of the community from, you know,
from your standpoint? 

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I think one of the demands is 
that you can never produce 

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enough material and produce it 
quickly enough. 

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And there's also some of the 
programs need to be updated 

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frequently, but others probably 
not as frequently, but we really

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wanted that the material is 
updated in a timely manner so 

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that it's something that is 
there and accessible and has 

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developments for nurses that are
not able to get to meetings and 

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like the likes of E ha that 
we're being at this week is 

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wonderful and fantastic. 
Resources for nurses are limited

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and there's not necessarily the 
funding for them to get to 

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things with the likes of our 
online meeting. 

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For people in low and middle 
income countries and also for 

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Africa and places like that, we 
offer them free registration to 

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the online meeting so that they 
can at least access the 

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education. 
And at board of these, we are 

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not only focusing on advanced 
nurses, but also newcomers. 

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So new nurses, new other 
healthcare professionals coming 

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in the field of hematology 
because there's a big, big need 

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for hematological education 
because in a lot of countries 

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hematology is only a very small 
piece in the general education. 

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Also, due to the expanding field
of hematology, it's so important

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that nurses get a proper 
education because our philosophy

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is when nurses are not well 
trained, well educated, they 

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can't inform patients and 
relatives properly. 

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It's very, very, very true. 
You're saying the the sort of 

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rapidly developing field of 
hematology and the the European 

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Hematology Association has also 
been working on this and has, 

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you know, concerns about what's 
this going to look like in the 

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future. 
What do you think that sort of 

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the role of our collaboration 
should look like in order to 

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facilitate that? 
I think it's having an awareness

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of the needs that are out there,
being able to collaborate as we 

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do nicely even in the likes of 
this podcast, to say that we 

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exist, that there is a resource 
out there. 

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We rely the same way that we 
advertise and say that there is 

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resources available with EHA on 
our website. 

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That collaboration to be able to
bring it to the attention of 

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physicians and scientists in 
other organizations that they 

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can go and spread that news to 
their nurses that there is 

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something that they can use and 
that they can access readily and

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easily without a huge cost. 
And the other thing is, is that 

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even the importance of nurses in
hematology needs to be 

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recognised. 
In some countries still, you 

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know, hematology nursing is not 
fully recognised as a 

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speciality. 
And and there are places where 

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maybe oncology nurses are having
to take on some of that burden 

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so that they can too have access
to information and education and

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hopefully develop an interest in
the area. 

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Hematology nursing is more than 
just looking after somebody with

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leukemia. 
It's the hemoglobinopathies, 

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it's hemophilia, it's 
thrombosis, it's the Itps, it's 

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the elderly patient who may 
suddenly be diagnosed with CLL 

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or myeloma on top of other 
comorbidities. 

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And how do you manage that? 
And that's why in some of the 

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materials that we do, we look at
special populations like nursing

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the person who's elderly, so 
that the nurse that's looking, 

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working within care of the 
elderly can access the material 

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and say this is a hematology 
patient, what do they need? 

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What can we do? 
What do you think are the the 

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sort of the challenges that 
nurses are going to be facing in

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the coming years within 
hematology, but maybe 

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potentially also in general? 
I think hematology is the rapid 

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evolvement of hematology. 
All the opportunities in most 

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countries patients have to make 
decisions for their therapies. 

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I think that's that's one of the
the biggest challenges for the 

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future. 
And on the other hand, in 

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general, I think very important 
item at this moment is talking 

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about staff shortages in in a 
lot of centres in a lot of 

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countries. 
So we also as HNHUP, we are 

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trying to motivate colleagues to
stay in the field, to educate 

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them probably. 
So there we see also a role and 

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also together with associations 
like EHA of course, who bring 

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our forces together. 
I think another challenge too 

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is, and it's a challenge for EHA
as well. 

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And we've established ourselves 
in a way as the experts of the 

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people that can deliver 
treatments like CAR T, 

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bispecific antibody therapy and 
antibody conjugates safely. 

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But now these treatments are 
expanding out to other diseases.

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And there's a huge challenge for
both medical and nursing because

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these are going to go on to 
other areas and we're going to 

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have to lead the education of 
people in other diseases like 

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rheumatology, dermatology, even 
solid tumors. 

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And that's a huge challenge and 
there's a huge implication both 

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on resources and time, because 
we still have to educate our own

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staff. 
We still have to have the 

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expertise and the education 
there. 

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And so that's going to be very 
difficult. 

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There's also a little bit about 
the role of nursing and 

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transferability of education 
across countries. 

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I know we have been doing an 
awful lot of work with like 

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medical passports and things 
like that to have a 

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standardization. 
It's not going to work quite the

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same way for nursing. 
If there could be some way of 

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harmonizing things, that would 
be great because it wouldn't 

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increase potentially work flow 
and enable maybe retention of 

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staff if they thought that they 
can then use their 

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qualifications and skills 
elsewhere if they wanted to, 

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that there's an easy way of 
doing it without having to go 

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through jump through an awful 
lot of hoops with transferring 

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registrations, etcetera. 
And other challenges in the in 

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the field of hematology is the 
collaboration between the 

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several multidisciplinary 
disciplines. 

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So to bring all those 
stakeholders together in this 

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expanding field of hematology, 
it's a huge challenge for all 

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the organizations. 
But I think there's an 

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opportunity for a good 
collaboration between EHA&HNHUP.

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So I'm going to play The Time 
Machine game. 

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If we could get into a time 
machine and transport 50 years 

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in the future, what would your 
ideal situation be? 

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At the annual meeting of EHA 
should be nurses involved in 

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terms of joint sessions. 
Again, this multidisciplinarity 

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between physicians and other 
disciplines and nurses, I think 

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will be in the future more and 
more important. 

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I think a lot very much along 
line of what Eric says, a truly 

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collaborative holistic approach 
to patient care that involves 

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the multidisciplinary team, the 
patient, their carers and and 

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the wider support networks. 
And a recognition that OK, there

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are other things out there that 
will also feed in and help 

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deliver treatment to patients 
that is accessible, affordable 

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and near to their home. 
Now I'm not saying that it means

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that everybody has their 
treatment at home, but being 

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able to provide that care in a 
holistic, appropriate, patient 

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centred fashion. 
That sounds like a great 

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feature. 
It would be wonderful. 

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Well, the other game is the 
magic wand. 

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What would you use to fix it? 
I think a lot of the challenges 

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that we're facing at the moment 
are to do with staffing and 

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resources and retention of staff
and trying to reduce the burnout

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rate, the rate of people leaving
to do other, to go to other 

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professions because they don't 
see nursing as being attractive 

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in keeping with this work life 
balance that we all like to 

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have. 
And I think that if you could 

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have a magic wand to make 
nursing a more attractive 

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proposition and to be able to 
develop ways of keeping people's

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interests and career pathways. 
But I also think there's a 

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challenge that the role of 
nurses at the bedside is valued 

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as much as the role of an 
advanced nurse practitioner. 

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So I absolutely agree. 
I think we should educate every 

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nurse and nurse assistants SO 
and other disciplines and, and 

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also not not only inpatient 
nurses, but also so due to 

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future developments in 
hematology, outpatients setting 

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will be more and more and more 
important. 

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Yeah. 
Yeah, the role of community 

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delivered therapies is going to 
become paramount to what we're 

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doing and to what is there for 
patients. 

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So being able to to do that 
safely and effectively is really

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important. 
So maybe before we finish, what 

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drives both of you to be so 
actively championing the nurse 

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and the allied healthcare 
professional within hematology? 

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What is it that gives you joy? 
So my drive is and I'm working 

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now almost 35 years in 
hematology. 

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Is that to motivate nurses and 
other healthcare professionals 

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and educate them probably to to 
optimize the care for our 

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patients and don't forget the 
relatives that that's my drive 

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in this field. 
I think similarly to Eric, he 

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unfortunately reminded me 
yesterday that I'm about 35 

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years in the field also. 
But it is the reward you get 

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when you know that you've been 
able to improve the working life

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of a nurse, or they're what 
they're able to deliver to their

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patients locally. 
That you're able to impact the 

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care that somebody is giving to 
patients, that you're giving 

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them the resources and the 
knowledge and ultimately helping

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them develop the skills to care 
for patients and their families 

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and, and hopefully enhancing the
patient's quality of life by 

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doing that and. 
Another important item is here 

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in the western part of Europe, 
we have a lot of opportunities, 

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but we also focus on the eastern
part of of Europe, on African 

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countries, on countries in South
America where nurses have often 

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less opportunities also to 
involve them and to educate them

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properly. 
That's also a huge drive and 

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opportunity and challenge for 
the future. 

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I think both of you are doing an
admirable job and I would like 

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to thank both of you for coming 
to talk to us today. 

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It's been a very insightful 
conversation and I hope to see 

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more of these conversations in 
the future. 

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And we'd also like to say thank 
you for the opportunity to 

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highlight and and promote 
nursing and the 

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multidisciplinary team within 
the setting. 

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It's really nice to know that 
it's valued and that and the 

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collaboration we have with EHA, 
with the patient groups that 

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that we're able to collaborate 
to develop and to move the field

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of hematology forward. 
Thank you to our listeners for 

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tuning into this episode of EHA 
Unplugged. 

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Uh, follow the podcast channels 
and we look forward to you 

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listening to the next one.