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Hello everyone, I'm Diane 
Grissell. 

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I'm also known as Silver 
Despedience, and this is the 

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Silver Despedience Perception 
Dynamics podcast. 

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And we're recording in iconic 
Manhattan center. 

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We have a very interesting guest
that we're going to learn about 

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today and we're really going to 
learn more about is it in your 

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head or is it real? 
And what we're talking about is 

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pain. 
There are times when we feel 

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pain, we can't get it diagnosed,
or worse, it gets misdiagnosed 

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and we get further and further 
away from finding the answer 

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that we might need. 
Well, my guest today is Doctor 

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Erin Nance, and she is a 
specialist in helping people 

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understand pain that might have 
been misdiagnosed or uncovering 

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what that pain is and where it's
coming from and why. 

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So welcome. 
Thank you so much for being 

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here. 
Oh, thank you so much, Diane. 

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It's a pleasure to talk with you
and your audience. 

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OK, let's start with just plain 
the idea of it's not all in your

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head. 
How many times do you think 

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people hear that, and what's the
impact of hearing you know this 

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is in your head? 
So for I would say the vast 

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majority of people when they 
start experiencing symptoms, you

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you kind of dismiss it yourself,
right? 

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Like that'll go away. 
It's nothing. 

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I must have slept on it funny. 
And that's a universal 

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experience, but when something. 
And often that's the case. 

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Correct. 
And often that is the case, but 

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when something is lingering for 
days, weeks, months, that you 

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know, is a sign or a red flag 
that this is something that we 

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really should be addressing with
a healthcare professional. 

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And if pain is just kind of the 
only symptom, it is very 

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difficult to determine where 
that pain is coming from or what

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happened, right? 
Sometimes you're talking about 

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your son who's a skateboarder. 
He fell, he hurt his wrist. 

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He probably has a fracture. 
But for most people, there's not

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that immediate connection. 
And that pain comes on what we 

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call insidious and gradual, 
right? 

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There was no one time event that
caused this to happen, just 

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those one time events that are 
pretty easy actually to 

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diagnose, right? 
I, I was sitting down, I heard a

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pop in my back. 
Probably have a herniated disc, 

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right? 
You know, I, I was, I was 

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walking down the street walking 
my dog and I rolled my ankle and

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now my ankle is swollen, 
probably have a sprained ankle. 

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But for a lot of conditions that
are more what we call systemic 

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or part of like your bloodstream
or autoimmune, rheumatological, 

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there's no one one like smoking 
gun, right, as to what is 

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causing this. 
And I think that's probably one 

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of those difficult areas people 
find themselves when they go 

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seek out help and they don't 
have that one diagnose, you know

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that that one symptom that a 
doctor knows immediately. 

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OK, I know exactly what this is.
And people are finding 

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themselves in this position more
and more often. 

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You know, that is so interesting
for for many years you used to 

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hear the term fibromyalgia and 
people used to say, Oh my God, 

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that's what doctors call it when
it's all in their head. 

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You can't identify it. 
There's really no reason for it.

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So they were just going to give 
it a name. 

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Now you see no see plastic pain 
and which seems to be the new 

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way that that cluster that not 
necessarily identifiable or as 

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you said root cause necessarily 
being clear. 

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What can you tell us about that?
Where? 

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Where does that all go and where
did it come from? 

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So I think First off is we have 
to build systems that are rooted

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in believing patients and 
believing that they have a 

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problem, that there is something
wrong. 

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Because what you asked earlier 
about what does it do when a 

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physician tells someone it's all
in your head? 

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Well, it shakes the confidence, 
right, that we have in our own 

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ability to trust our gut that 
something is wrong. 

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And what I have found is that in
the vast majority of cases, when

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someone tells you it's all in 
your head, it's just because 

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they have not figured it out 
yet. 

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And it's, it's a way of kind of 
pushing, you know someone. 

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Pushing the boulder way, 
correct? 

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And as I said, there are like 
established diagnostic pathways.

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You got a whole lab panel. 
I have great news. 

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Your labs are normal. 
Well, that doesn't help me, 

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right? 
I have great news. 

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We didn't find anything on your 
MRI. 

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All right now, yes, that is. 
It's funny. 

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You're reminding me of when my 
mother was in her 90s and dying 

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and we were going to a super fit
woman. 

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We went to the oncologist, the 
rheumatologist, the 

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pulmonologist, the this, that. 
And they're all like, you know, 

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I have no idea what's going on. 
Nothing wrong with you. 

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And the day she said the 
oncologist said, well, I just 

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want to let you know you don't 
have cancer. 

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And she goes, oh, crap. 
I, I just looked at the 

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oncologist and laughed. 
I said, you're going to have a 

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funny dinner conversation. 
I'm sure you don't have many of 

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those. 
You know the patient who said oh

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crap. 
I can tell you. 

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I bet you see this and you've 
heard this kind of thing. 

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Correct from interviewing so 
many people who have a 

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misdiagnosis or an autoimmune 
condition when and multiple 

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people have actually had a 
diagnosis of cancer in addition 

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to these other diagnosis, when 
they hear they have cancer they 

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go. 
Yes. 

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OK. 
Because they know this is 

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something that has a name, it 
has a treatment and I know what 

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the prognosis is. 
And that to them is a better 

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prospect of just not knowing or 
trying to chase something you 

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don't even know what it is. 
So to get back to your original 

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question about the fibromyalgia,
you know, there, fibromyalgia is

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a disease or condition that we 
call a diagnosis of exclusion, 

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OK. 
And what that means is we have 

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tried to find cancer and we 
didn't find any. 

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We have tried to find rheumatoid
arthritis and we didn't find 

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any. 
We tried to find Lyme disease 

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and we didn't find any. 
But you still have these 

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symptoms. 
We believe you. 

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We we, we understand that 
they're real, that they're 

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affecting you and they're in a 
similar pattern to what a lot of

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other people are experiencing. 
But they also don't have 

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positive labs and they don't 
have positive CT scans. 

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And so we're going to diagnose 
you with fibromyalgia. 

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Now in giving that diagnosis, 
and I say this all the time, 

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diagnosis is power, OK? 
When you have a diagnosis, that 

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then opens up a whole variety of
potential treatment options of 

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new specialists of new 
medications, right? 

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Because you have a diagnosis, 
you have to think about what's 

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going on behind the scenes when 
you get a diagnosis, that 

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diagnosis carries an ICD 10 code
with it. 

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And for anyone who's ever seen 
an EOB or a bill that you get 

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from your insurance company, OK,
correct. 

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But you need that ICD 10 code in
order to get that that treatment

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in order to get that IVIG in 
order to get that new 

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medication, right? 
So having a diagnosis is power 

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not just for your own emotional 
state, but also from a very 

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practical standpoint in terms of
how insurance works. 

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So I am glad that people are 
getting some diagnosis right. 

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But in my opinion, for the vast 
majority of people, they have a 

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root cause that just has not 
been discovered yet. 

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And. 
In some cases then a 

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misdiagnosis, which is 
potentially even worse because 

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you're going down a pathway. 
It's not, it's not even that 

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you're you're the pathway is 
stopping. 

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You've just stopped because they
say, OK, we've figured out your 

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diagnosis. 
But for a lot of these 

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fibromyalgia POTS MCAS, the 
treatments are drink more water.

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Yeah. 
Exercise more and when you're. 

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Well, those two factors do help 
a lot. 

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Of course. 
Of course, pretty much anything.

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Of course, but it's not specific
to your particular problem. 

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So that's where I feel sometimes
when people are given these 

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diagnosis of exclusion, it 
prevents them from doing the 

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further investigation to 
something that might actually be

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treatable. 
What do you find if someone's, 

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let's say, been diagnosed with 
fibromyalgia? 

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What are underlying things that 
are often missed once that 

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diagnosis is given? 
So for fibromyalgia, right 

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patients are usually complaining
of pain in multiple areas of 

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their bodies at different times.
Sometimes it can. 

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People can have brain fog or 
extreme fatigue and there are 

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many different either 
infections, EBV or mono, you 

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know the kissing disease. 
I find that a lot of people have

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had undiagnosed chronic EBV that
have been diagnosed with 

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fibromyalgia. 
EBV as in Epstein Barr. 

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Correct. 
Epstein Barr virus, same thing. 

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Lyme disease, right? 
You might have been diagnosed 

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with fibromyalgia, but your 
underlying cause was untreated 

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Lyme disease. 
Or sometimes there's a, a, a 

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huge, well, I'll talk about two 
large categories of disease. 1 

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is called dysautonomia. 
And that is when your nervous 

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system is just kind of off the, 
the, the, you know, off the 

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walls and firing in ways that it
shouldn't be. 

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And then a connective tissue 
disorder called Ehlers Danlos 

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syndrome, which I find more and 
more women are being diagnosed 

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or trying to be diagnosed. 
And that is that is the root 

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cause, right? 
That is your connective tissue, 

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which is your skin. 
Everything that holds your 

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organs together in place, 
everything that's deep inside of

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you, it's not at the right can. 
Think of it like tension. 

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Is that tied to lupus? 
No, Lupus is an autoimmune 

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disorder that is your body kind 
of attacking itself. 

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Eller's download is a. 
There can be associations. 

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And comorbidities, because I've 
heard of associations between 

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those, right? 
So people who have Ellers 

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Danlos, it's actually called the
unholy Trinity, they are often 

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diagnosed with POTS, which is a 
form of dysautonomia, Ellers 

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Danlos and MCAS or mast cell 
activation syndrome. 

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And they probably what's going 
on is there is one overarching 

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problem and it's displaying in 
these different ways. 

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So people with MCAS get hives, 
get food allergies, get allergic

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reactions out of the blue. 
You've been eating strawberries 

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your whole life and then one day
you eat a strawberry and now you

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can't breathe. 
OK. 

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You have hives and rashes all 
over your body. 

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It's not I didn't try a new body
wash. 

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I didn't do any new, you know, 
detergent. 

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And all of a sudden you're 
having these hypersensitive kind

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of histamine reaction. 
And then POTS is a case where 

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your blood pressure, when you go
from sitting to standing, drops 

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like that. 
And you, you faint. 

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And this is now being connected 
to post viral syndromes. 

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So when this exploded was post 
COVID because people had COVID. 

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And then later on, basically the
virus caused this 

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disorganization of your, your, 
you know, autonomic system, 

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which manifested itself as POTS.
But post virus syndrome has been

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going on for as long as viruses 
have been along. 

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There just has been added 
attention because of COVID and 

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the effects. 
That's very interesting. 

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And it's interesting too since 
you mentioned COVID, because so 

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many different things are coming
out post vaccination of all 

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different problems people are 
having. 

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Correct. 
And I think one thing that, you 

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know, as part of the medical 
community and one of the, you 

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know, physicians who I was one 
of the first people to get the 

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COVID vaccine. 
I got the COVID vaccine in 

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December 2020, you know, had all
the boosters. 

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And I myself had a reaction 
where I developed very heavy 

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bleeding during my periods. 
And I, I have a large social 

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media page and I told my story 
and the beginning I said, I am 

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one of the first people to get 
the vaccine. 

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I have had all the boosters. 
This is not some type of anti 

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vaccine post or commentary but I
want to share my story about a 

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side effect that I had and that 
post was taken down for 

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community guidelines violation. 
I believe it all right. 

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So here I am a, you know, 
credentialed, verified physician

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just talking about, again, the 
effects of a vaccine that I had.

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This is not a post about passing
judgment up. 

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People got vaccines or didn't 
get vaccines. 

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But I think if we withhold the 
information, that's what breeds 

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the mistrust. 
Well, I'm a I'm a big believer. 

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Popular or not, I really don't 
care that science went out the 

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freaking window for the past 
five years. 

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00:14:23,240 --> 00:14:25,920
I mean, as I said to you right 
before we started, I worked with

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00:14:25,920 --> 00:14:30,160
biotechnology, medical device, 
pharmaceutical companies for 29,

230
00:14:30,280 --> 00:14:35,160
well, since 1996. 
So that's a long time. 

231
00:14:35,400 --> 00:14:38,320
You know, you know, that's a 
solid 30 years. 

232
00:14:38,840 --> 00:14:42,800
And so much of what I saw and 
the lack of debate, I mean, if 

233
00:14:42,800 --> 00:14:46,480
that, if I had ever propagated 
that and pushed that out, I'd 

234
00:14:46,480 --> 00:14:50,240
have been in jail any number of 
times or censored or barred from

235
00:14:50,240 --> 00:14:53,520
the industry. 
And the fact that the discussion

236
00:14:53,520 --> 00:14:57,960
got removed, I mean, I don't 
care what anybody thinks about 

237
00:14:57,960 --> 00:15:00,240
this either. 
I'm a big fan of X now because 

238
00:15:00,240 --> 00:15:03,080
you can actually post things and
it can get debated. 

239
00:15:03,360 --> 00:15:05,880
I mean, you don't have to like 
it, but at least it can get 

240
00:15:05,880 --> 00:15:08,360
debated. 
And that's to me what science 

241
00:15:08,360 --> 00:15:10,600
always was. 
And it took a nasty, a really 

242
00:15:10,600 --> 00:15:12,160
nasty turn. 
And I think it's going to take a

243
00:15:12,160 --> 00:15:14,560
long time for that trust to come
back. 

244
00:15:14,560 --> 00:15:18,880
And maybe it maybe an evaluation
is important because there's, 

245
00:15:19,400 --> 00:15:22,160
there's a lot of people that are
expressing what you're, you're 

246
00:15:22,160 --> 00:15:27,080
saying right now. 
And I think that again, as 

247
00:15:27,080 --> 00:15:31,000
scientists, we do the best with 
the information that we have at 

248
00:15:31,000 --> 00:15:33,720
the time. 
And I, I say this all the time 

249
00:15:33,720 --> 00:15:36,000
in my podcast where we go 
through people stories of 

250
00:15:36,000 --> 00:15:39,600
misdiagnosis that it is very 
easy to to Monday morning 

251
00:15:39,600 --> 00:15:43,080
quarterback the situation. 
Now we have, you know, more 

252
00:15:43,080 --> 00:15:48,080
information and data. 
And what I do hope is that what 

253
00:15:48,080 --> 00:15:54,880
is preserved is the discourse, 
is the transparency, because as 

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00:15:54,880 --> 00:15:58,240
an institution, right, as I'm 
part of the healthcare 

255
00:15:58,240 --> 00:16:02,920
institution, I think what we've 
learned is that trust is no 

256
00:16:02,920 --> 00:16:07,400
longer blindly given, right? 
It has to be earned. 

257
00:16:07,800 --> 00:16:11,440
And I see this with the younger 
generation of. 

258
00:16:11,800 --> 00:16:15,360
Google doctors. 
People using Google, but what I 

259
00:16:15,360 --> 00:16:20,400
will say is that, you know, to 
to the physicians who get, I 

260
00:16:20,400 --> 00:16:24,000
would say miffed or kind of 
upset when people are bringing 

261
00:16:24,000 --> 00:16:27,600
to them things that they read on
Google or something they saw on 

262
00:16:27,600 --> 00:16:31,600
TikTok or whatnot, they're going
to those sources because they're

263
00:16:31,600 --> 00:16:36,160
not getting the answers that 
they need from the traditional 

264
00:16:36,160 --> 00:16:39,440
pathways. 
And I think it was a real eye 

265
00:16:39,440 --> 00:16:44,560
opener to physicians to 
understand that, you know, if 

266
00:16:44,560 --> 00:16:48,320
you ask someone how, if I said 
I'm going to give you a referral

267
00:16:48,320 --> 00:16:52,560
to a neurologist, how long do 
you think it would take them to 

268
00:16:52,560 --> 00:16:56,200
get that appointment? 
Well, I can tell you first hand 

269
00:16:57,920 --> 00:17:02,520
because I woke up with no 
hearing two years ago with 

270
00:17:02,520 --> 00:17:04,839
sudden sensorial neural hearing 
loss. 

271
00:17:05,240 --> 00:17:09,240
And I will say my probably my 
biggest shock is when I actually

272
00:17:09,240 --> 00:17:11,920
went to a doctor and told him I 
had had three confirmed 

273
00:17:11,920 --> 00:17:15,119
concussions within the pet prior
three months. 

274
00:17:15,119 --> 00:17:19,240
He told me it was unrelated. 
And I remember thinking I'm 

275
00:17:19,240 --> 00:17:23,440
where this is what hospital? 
I mean, I might as well be in La

276
00:17:23,440 --> 00:17:26,079
La land that somebody actually 
just said that to me. 

277
00:17:26,480 --> 00:17:30,160
Not that I thought it was going 
to resolve the issue, but I was 

278
00:17:30,160 --> 00:17:31,760
pretty sure they were 
concussion. 

279
00:17:31,960 --> 00:17:37,040
It was concussion related. 
So for some people, they're 

280
00:17:37,040 --> 00:17:40,320
waiting upwards of six months to
see a specialist, right? 

281
00:17:40,320 --> 00:17:43,640
And then you may see a 
specialist and just not be 

282
00:17:43,640 --> 00:17:45,680
aligned with what they're 
saying. 

283
00:17:45,880 --> 00:17:50,360
And we have to remember when you
go to see a physician, you are 

284
00:17:50,360 --> 00:17:54,440
asking for their opinion. 
And I say this all the time. 

285
00:17:54,560 --> 00:17:58,520
I'm a hand surgeon, right? 
And a patient may see me in my 

286
00:17:58,520 --> 00:18:00,280
office. 
They may see my colleague down 

287
00:18:00,280 --> 00:18:02,680
the street, they may see another
colleague, you know, in New 

288
00:18:02,680 --> 00:18:06,080
Jersey, and we may diagnose them
with the same problem, which is 

289
00:18:06,080 --> 00:18:09,360
carpal tunnel syndrome. 
And I may recommend you do a 

290
00:18:09,360 --> 00:18:11,680
cortisone shot. 
Someone may recommend wear a 

291
00:18:11,680 --> 00:18:14,040
night brace at night. 
And the other surgeon may 

292
00:18:14,040 --> 00:18:17,600
recommend surgery tomorrow. 
And it's not necessarily that 

293
00:18:17,720 --> 00:18:19,440
any of. 
Us are wrong, right? 

294
00:18:19,440 --> 00:18:20,360
Correct. 
I agree. 

295
00:18:20,360 --> 00:18:22,640
That they are different 
opinions. 

296
00:18:23,600 --> 00:18:28,000
And you know, I tell people if 
you are in the position to get a

297
00:18:28,000 --> 00:18:31,280
second opinion or multiple 
opinions, please do. 

298
00:18:31,560 --> 00:18:35,600
And no surgeon should ever feel 
threatened if someone says I'm 

299
00:18:35,680 --> 00:18:38,640
seeking another opinion. 
Because in the end it is. 

300
00:18:38,640 --> 00:18:43,320
It's an opinion based off of our
experience, off of what we see 

301
00:18:43,320 --> 00:18:46,480
our own patients go through. 
And I may have a very different 

302
00:18:46,480 --> 00:18:50,080
reason for recommending A 
cortisone injection to you as 

303
00:18:50,080 --> 00:18:52,440
opposed to the surgeon who's 
recommending surgery. 

304
00:18:52,880 --> 00:18:57,000
You know, that, that perspective
alone, I bet the more that 

305
00:18:57,000 --> 00:19:00,040
people become aware of your, you
having that perspective, I bet 

306
00:19:00,040 --> 00:19:02,600
it could have people lined up 
outside their, your door if 

307
00:19:02,600 --> 00:19:06,760
they're not already, because, 
because it's, it's, it's great 

308
00:19:06,760 --> 00:19:09,840
to hear. 
And you know, one of the, I'm 

309
00:19:09,840 --> 00:19:13,000
sure I drive my, our children 
crazy because I'll, I'll say, 

310
00:19:13,200 --> 00:19:14,680
well, let's go get a second 
opinion. 

311
00:19:14,800 --> 00:19:17,800
You know, I, I think that's, I 
love and oh, you don't trust 

312
00:19:17,800 --> 00:19:19,400
that doctor. 
I said I didn't trust him. 

313
00:19:19,760 --> 00:19:23,520
I said, this is the practice of 
medicine and you know your body 

314
00:19:23,600 --> 00:19:27,680
better than anyone else does. 
And you're not 100% in 

315
00:19:27,680 --> 00:19:29,520
agreement. 
You know, there's a doubt you 

316
00:19:29,520 --> 00:19:31,920
have in your head. 
I'm not the one who's facing 

317
00:19:31,920 --> 00:19:33,240
surgery. 
You are. 

318
00:19:33,440 --> 00:19:37,880
So why not look at another and 
see as you said, it might be a 

319
00:19:37,880 --> 00:19:41,040
cortisone shot that helps and 
alleviates that inflammation 

320
00:19:41,040 --> 00:19:44,440
before you need that scraping of
your ankle or whatever it is. 

321
00:19:44,680 --> 00:19:46,920
Correct. 
And you know, I use this line 

322
00:19:46,920 --> 00:19:50,600
all the time, which is a line 
from one of my mentors at at 

323
00:19:50,600 --> 00:19:52,400
Lenox Hill. 
Actually the father was named 

324
00:19:52,400 --> 00:19:56,200
Chit Roundelwatt, but he always 
said the eyes only see what the 

325
00:19:56,200 --> 00:19:58,880
mind knows. 
That's such a good line if. 

326
00:19:58,880 --> 00:20:04,400
You see a doctor and you just 
don't think that they have come 

327
00:20:04,400 --> 00:20:07,560
to the right conclusion or 
you're uneasy with the treatment

328
00:20:07,560 --> 00:20:12,640
protocol that they're suggesting
see someone else because you 

329
00:20:12,640 --> 00:20:14,960
don't know what they don't know.
Yeah. 

330
00:20:15,440 --> 00:20:18,040
And sometimes they don't even 
know what they don't know. 

331
00:20:19,440 --> 00:20:22,920
Now, that is to say, we are in a
Really. 

332
00:20:23,280 --> 00:20:26,440
Privileged position where we are
in New York City where there is 

333
00:20:26,480 --> 00:20:30,040
an abundance of physicians to go
to and there are probably some 

334
00:20:30,040 --> 00:20:31,600
people listening to this 
podcast. 

335
00:20:31,600 --> 00:20:35,240
So they're like, there's only 
one rheumatologist in town, 

336
00:20:35,600 --> 00:20:39,360
right? 
And that's that's who I got and 

337
00:20:39,360 --> 00:20:43,120
that's when I also feel like 
listening to other people's 

338
00:20:43,120 --> 00:20:48,280
stories online, researching for 
yourself, using pub Med as a 

339
00:20:48,280 --> 00:20:52,440
great if nobody here knows what 
pub Med is, it is, you know, for

340
00:20:52,560 --> 00:20:55,320
physicians, it is our gold 
standard. 

341
00:20:55,320 --> 00:20:59,680
What is the actual peer reviewed
literature being published? 

342
00:21:00,680 --> 00:21:04,440
And I often tell people, because
I get thousands of messages a 

343
00:21:04,440 --> 00:21:06,360
week, people asking me, could 
you help me? 

344
00:21:06,360 --> 00:21:08,560
Could you? 
And I tell them the same thing I

345
00:21:08,560 --> 00:21:13,400
say #1 put your symptoms into 
ChatGPT and ask for the top five

346
00:21:13,400 --> 00:21:17,240
differential diagnosis so that 
you just have an idea of what it

347
00:21:17,240 --> 00:21:20,520
could be. 
Then go into pub Med and look 

348
00:21:20,520 --> 00:21:25,000
who are the people actively 
researching this topic. 

349
00:21:25,000 --> 00:21:30,400
What great advice. 
Well, you know, pub Med is it's,

350
00:21:30,680 --> 00:21:33,960
it's behind a firewall for most 
articles, but for most people 

351
00:21:33,960 --> 00:21:36,040
you can get the gist from the 
abstracts. 

352
00:21:36,080 --> 00:21:40,000
And again, it's not your job to 
have a PhD in these subjects. 

353
00:21:40,880 --> 00:21:44,680
But I do think being able to 
connect with someone who is up 

354
00:21:44,680 --> 00:21:48,240
to date in the area that you are
looking for help. 

355
00:21:48,560 --> 00:21:52,120
If anything, they may tell you 
you don't have this. 

356
00:21:52,760 --> 00:21:55,360
And that is also valuable. 
Getting back to the, your labs 

357
00:21:55,360 --> 00:21:59,680
look normal and everything 
that's also valuable pieces of 

358
00:21:59,760 --> 00:22:03,520
of data, right? 
And sometimes it's collecting 

359
00:22:03,560 --> 00:22:05,080
all of the different pieces of 
data. 

360
00:22:05,080 --> 00:22:09,120
But the real question is who is 
going to piece that together. 

361
00:22:09,800 --> 00:22:14,160
And that I find is what is 
really lacking in our 

362
00:22:14,160 --> 00:22:17,800
interactions with doctors is 
that we no longer have that 

363
00:22:18,280 --> 00:22:24,080
quarterback for our care. 
And that used to be your primary

364
00:22:24,080 --> 00:22:27,000
care doctor, but nowadays you 
ask someone who's your primary 

365
00:22:27,000 --> 00:22:29,640
care doctor. 
It's whoever I saw at City, MD. 

366
00:22:29,960 --> 00:22:35,880
You know, they're they're such 
truth in that medicine has 

367
00:22:35,880 --> 00:22:38,080
changed so, so much. 
I wish we could go back to the 

368
00:22:38,080 --> 00:22:41,200
days of this really dating me, 
but there was Blue Cross and 

369
00:22:41,200 --> 00:22:43,640
Blue Shield. 
You know, you knew you had your 

370
00:22:43,640 --> 00:22:47,560
primary care doctor and they 
would help you find, you know, 

371
00:22:47,560 --> 00:22:50,440
other people if you needed it. 
And now things have become so 

372
00:22:50,440 --> 00:22:59,720
specialized and so diffractioned
and divided in ways that and, 

373
00:22:59,720 --> 00:23:02,600
and I really see it when I talk 
with older people. 

374
00:23:02,600 --> 00:23:06,120
And I say, does your 
cardiologist know what the 

375
00:23:06,120 --> 00:23:10,640
rheumatologist or the whoever 
has prescribed you? 

376
00:23:10,640 --> 00:23:14,120
Because like I said, I work with
clinical trials for over 30 

377
00:23:14,120 --> 00:23:16,480
years. 
I can count on one hand the ones

378
00:23:16,480 --> 00:23:20,840
that would do cocktails. 
Usually it was only with cancer 

379
00:23:20,840 --> 00:23:24,200
drugs where you had somebody 
test this drug and this drug at 

380
00:23:24,200 --> 00:23:27,080
the same trial to find out what 
were the interactions that might

381
00:23:27,080 --> 00:23:29,880
be causing. 
And I bet you could even narrow 

382
00:23:29,880 --> 00:23:32,840
down a lot of that when you're 
talking with people with 

383
00:23:32,840 --> 00:23:36,320
misdiagnosis, that sometimes you
may have two medicines just 

384
00:23:36,320 --> 00:23:41,640
plain interacting poorly and 
causing that fainting or those 

385
00:23:42,080 --> 00:23:45,320
drops or spikes in blood 
pressure or any other things. 

386
00:23:45,520 --> 00:23:48,720
Absolutely. 
I just I have a podcast called 

387
00:23:48,720 --> 00:23:51,640
the Medical Detectives and we 
interviewed. 

388
00:23:51,880 --> 00:23:55,960
That's a good one, the medical. 
Detectives, detectives and we 

389
00:23:55,960 --> 00:23:57,600
interviewed. 
Actually, it was the patient's 

390
00:23:58,200 --> 00:24:03,000
wife, but it was a fascinating 
story because he had a history 

391
00:24:03,000 --> 00:24:07,560
of substance abuse and he 
started having the symptoms that

392
00:24:08,040 --> 00:24:11,840
mimicked and looked very similar
to alcohol withdrawal. 

393
00:24:11,840 --> 00:24:15,280
But he had been sober, had been 
passing every drug test, but 

394
00:24:15,560 --> 00:24:18,200
people just categorized him. 
You know, this is who you are, 

395
00:24:18,200 --> 00:24:22,160
this is what your problem is. 
And all along for two years, it 

396
00:24:22,160 --> 00:24:25,680
was a side effect from a 
medication that was prescribed 

397
00:24:25,680 --> 00:24:32,120
from his primary care doctor. 
And again, this is where I feel 

398
00:24:32,120 --> 00:24:38,400
like the integration of AI into 
our, you know, think of yourself

399
00:24:38,400 --> 00:24:40,440
as the CEO of your own 
healthcare. 

400
00:24:40,960 --> 00:24:45,840
You can use AI as a tool, all 
right, to help you really 

401
00:24:45,840 --> 00:24:48,680
proactively take care of your 
health. 

402
00:24:48,680 --> 00:24:51,840
Because to be honest, I don't 
think the physicians are taking 

403
00:24:51,840 --> 00:24:53,960
the time to really go through 
all. 

404
00:24:53,960 --> 00:24:56,200
Of that, and I'm not even sure 
they have the time anymore. 

405
00:24:56,200 --> 00:24:58,240
No, they don't. 
With the, with the, you know, 

406
00:24:58,240 --> 00:25:02,080
the, all the things that have 
happened in medicine where 

407
00:25:02,200 --> 00:25:06,080
you've got my mind's blinking on
the word, but you know, 

408
00:25:06,120 --> 00:25:10,080
everybody's in the silos and 
you've got the insurance 

409
00:25:10,080 --> 00:25:11,520
companies. 
And we're not going to go into 

410
00:25:11,520 --> 00:25:13,360
the whole insurance company 
issue, but we've got the 

411
00:25:13,360 --> 00:25:16,280
insurance companies And then the
doctors have to see X number of 

412
00:25:16,280 --> 00:25:18,960
patients a day. 
And if you have to get, you 

413
00:25:18,960 --> 00:25:21,840
know, you've been assigned that 
many patients within your 

414
00:25:21,840 --> 00:25:23,920
insurance company or your 
responsibilities. 

415
00:25:24,320 --> 00:25:26,200
I mean, how can you talk to 
someone? 

416
00:25:26,880 --> 00:25:29,960
So I feel for the doctors, too. 
It's like things have really 

417
00:25:29,960 --> 00:25:31,560
gone awry there. 
Yes. 

418
00:25:31,600 --> 00:25:34,800
And I feel that the vast 
majority of patients have that 

419
00:25:34,800 --> 00:25:39,160
perspective that a doctor is not
intentionally trying to blow you

420
00:25:39,160 --> 00:25:41,040
off. 
They're not intentionally only 

421
00:25:41,040 --> 00:25:43,040
wanted to see you for for 5 
minutes. 

422
00:25:43,600 --> 00:25:47,880
They are put in a system where 
there are time constraints and 

423
00:25:47,880 --> 00:25:50,960
resource constraints, right? 
Not everyone can just get an MRI

424
00:25:50,960 --> 00:25:53,640
for every headache every, every 
time you have 1. 

425
00:25:54,520 --> 00:25:57,600
So they are, you know, balancing
that as well. 

426
00:25:57,840 --> 00:26:02,000
But for a patient, you're like, 
well, I think I need the MRI for

427
00:26:02,000 --> 00:26:06,040
my headache, right? 
And that's when, if you have, I 

428
00:26:06,040 --> 00:26:08,920
would say either a longer 
standing relationship with 

429
00:26:09,120 --> 00:26:12,560
someone like a primary care 
doctor, they're able to see 

430
00:26:12,600 --> 00:26:14,760
like, you know what, you are 
really off. 

431
00:26:15,240 --> 00:26:18,760
And I, I think we need to, you 
know, do something about it. 

432
00:26:18,960 --> 00:26:21,560
Whereas if you're just 
unfortunately showing up to the 

433
00:26:21,560 --> 00:26:26,040
ER because probably you weren't 
even able to get to see someone,

434
00:26:27,400 --> 00:26:29,800
they don't know your background,
they don't know what your normal

435
00:26:29,800 --> 00:26:31,400
is. 
But the irony is you're more 

436
00:26:31,400 --> 00:26:34,040
likely to get that MRI right 
then and there or. 

437
00:26:34,560 --> 00:26:38,240
Not not in the ERMRIS are 
actually very, very difficult to

438
00:26:38,240 --> 00:26:41,600
get to the ER again, depends on 
what it's for. 

439
00:26:41,920 --> 00:26:48,720
So for example, if you hit your 
head and you could possibly have

440
00:26:48,720 --> 00:26:51,560
a brain bleed, right, that could
kill you. 

441
00:26:51,800 --> 00:26:54,080
I mean, eminently and so, so 
you're going to have either CT 

442
00:26:54,080 --> 00:26:55,240
scan of your head or an MRI of 
your head. 

443
00:26:55,600 --> 00:26:59,440
If you go skiing and you injure 
your knee, you're going to be 

444
00:26:59,440 --> 00:27:02,440
checked out to make sure your 
knee is still, you know, stable,

445
00:27:02,600 --> 00:27:05,120
but you're going to get the MRI.
Out weeks later. 

446
00:27:05,120 --> 00:27:06,800
Correct. 
Because that's not an emergency.

447
00:27:06,880 --> 00:27:09,480
So that's what we're talking 
about, the rationing of these 

448
00:27:09,480 --> 00:27:12,040
resources. 
It's not that you don't need it,

449
00:27:12,040 --> 00:27:15,720
probably eventually, but in this
moment like what needs to that's

450
00:27:16,040 --> 00:27:18,080
in the ER setting, it really is 
about triage. 

451
00:27:20,480 --> 00:27:24,920
You've got a book coming out. 
What's your book about? 

452
00:27:25,800 --> 00:27:30,360
South my book is called Little 
Misdiagnosed, which is the same 

453
00:27:30,360 --> 00:27:35,760
name as my TikTok channel and I 
actually started that Channel 

454
00:27:36,080 --> 00:27:40,680
when I diagnosed a woman's 10 
year medical mystery in three 

455
00:27:40,680 --> 00:27:43,400
seconds. 
Not in my office but over TikTok

456
00:27:44,200 --> 00:27:50,040
and I thought why should it take
this woman 10 years to get 

457
00:27:50,040 --> 00:27:52,800
diagnosed with something that I 
knew immediately? 

458
00:27:53,320 --> 00:27:55,920
And so I started to tell. 
Can I ask what that was? 

459
00:27:56,120 --> 00:28:00,480
It was a glomus tumor, so 
probably very few people 

460
00:28:00,480 --> 00:28:03,880
listening may know what that is,
but this woman sent me a direct 

461
00:28:03,880 --> 00:28:06,120
message, she said. 
I don't normally talk to 

462
00:28:06,120 --> 00:28:08,960
strangers on the Internet, but 
I'm desperate. 

463
00:28:09,360 --> 00:28:14,360
I have had 10 years of severe 
fingernail pain, and nobody can 

464
00:28:14,360 --> 00:28:16,520
tell me what's wrong. 
I've seen five doctors. 

465
00:28:16,640 --> 00:28:18,040
They tell me nothing's wrong 
with me. 

466
00:28:18,200 --> 00:28:19,760
They make me feel like I'm 
crazy. 

467
00:28:19,960 --> 00:28:23,960
But I swear if I just rush my 
fingernail against something, 

468
00:28:23,960 --> 00:28:27,400
I'll jump to the ceiling. 
And so I messaged her back. 

469
00:28:27,400 --> 00:28:30,680
I said I also don't normally 
talk to strangers on the 

470
00:28:30,680 --> 00:28:34,720
Internet, but out of curiosity, 
do you have a little blue dot 

471
00:28:34,800 --> 00:28:36,400
under your fingernail? 
She said. 

472
00:28:36,400 --> 00:28:38,320
I do have a little blue dot 
under my fingernail. 

473
00:28:38,520 --> 00:28:41,560
So I said you're going to ask 
your doctor to get an MRI of 

474
00:28:41,560 --> 00:28:43,080
your finger. 
It's going to show that you have

475
00:28:43,080 --> 00:28:46,000
a mask called a glomus tumor. 
Hand surgeon is going to take it

476
00:28:46,000 --> 00:28:48,200
out and you're going to be cured
immediately. 

477
00:28:48,800 --> 00:28:50,560
So you messaged me back six 
weeks later. 

478
00:28:50,960 --> 00:28:53,800
Oh my God, I got the MRI. 
It showed I had a mask. 

479
00:28:53,800 --> 00:28:55,120
They took it out. 
It was a glomus tumor. 

480
00:28:55,120 --> 00:29:00,160
I'm I'm completely healed now. 
What that woman didn't know is 

481
00:29:00,160 --> 00:29:05,560
that if you go on to Google and 
type in pub Med glomus tumor, my

482
00:29:05,560 --> 00:29:07,840
name pops up. 
Or my maiden name, Erin 

483
00:29:07,840 --> 00:29:10,680
McDermott, because I'm one of 
the world's experts on glomus 

484
00:29:10,680 --> 00:29:13,920
tumors. 
OK, but she didn't know that 

485
00:29:14,040 --> 00:29:16,200
when she reached out to me, 
right? 

486
00:29:16,560 --> 00:29:20,560
She was just looking for someone
who would believe her, because 

487
00:29:20,560 --> 00:29:24,520
if someone believed her, then 
someone could help her. 

488
00:29:25,200 --> 00:29:29,880
So I then started telling 
stories about my time in 

489
00:29:29,880 --> 00:29:33,600
residency when I had kind of 
these interesting cases or, you 

490
00:29:33,600 --> 00:29:36,280
know, examples of what would 
happen when someone would come 

491
00:29:36,280 --> 00:29:38,240
in and they didn't have 
insurance, right? 

492
00:29:38,240 --> 00:29:40,440
And they had to have surgery. 
And what, what did that feel 

493
00:29:40,440 --> 00:29:44,680
like? 
Or, you know, someone was 

494
00:29:45,240 --> 00:29:50,440
actually here illegally, didn't 
have papers and they had to have

495
00:29:50,440 --> 00:29:53,160
major surgery, but they, they, 
they didn't want their name, you

496
00:29:53,160 --> 00:29:55,080
know, published anywhere else. 
They thought they could be 

497
00:29:55,080 --> 00:29:58,560
picked up. 
So it was really about stories 

498
00:29:58,560 --> 00:30:02,760
of what it was like, you know, 
as a as a female orthopedic 

499
00:30:02,760 --> 00:30:07,480
surgeon also. 
And those stories went viral on 

500
00:30:07,480 --> 00:30:10,400
TikTok. 
And yeah, so that's the this 

501
00:30:10,400 --> 00:30:13,840
book is about those. 
It's a memoir from my time in 

502
00:30:13,840 --> 00:30:18,200
residency talking about these 
cases and how they those cases, 

503
00:30:18,200 --> 00:30:20,880
how they impacted me and how I 
practice medicine today. 

504
00:30:21,920 --> 00:30:25,480
Oh, that's very interesting. 
So if you've watched The Pit, I 

505
00:30:25,480 --> 00:30:29,360
would say it's very similar to 
The Pit or like a Grey's Anatomy

506
00:30:29,360 --> 00:30:32,800
behind the curtain scene. 
What? 

507
00:30:33,080 --> 00:30:35,840
What are what are some standout 
stories somebody might find? 

508
00:30:36,400 --> 00:30:40,120
What's another one? 
Well, I think the story that 

509
00:30:40,360 --> 00:30:44,480
kind of jump started it all was 
actually a story that I had to 

510
00:30:44,480 --> 00:30:48,360
ask my brother permission to 
tell because it involves him as 

511
00:30:48,360 --> 00:30:51,440
well. 
But it was my first day at work 

512
00:30:51,600 --> 00:30:55,560
as an orthopedic surgeon, as the
general surgery intern, right? 

513
00:30:55,560 --> 00:30:58,600
It's July 4th weekend. 
Everything is crazy. 

514
00:30:58,600 --> 00:31:00,920
People are, you know, running 
with, they're like, you know, 

515
00:31:01,120 --> 00:31:03,840
all over the place. 
And I had started on night 

516
00:31:03,840 --> 00:31:06,840
float. 
So I came in at 7:00 ready to, 

517
00:31:06,840 --> 00:31:09,400
you know, take care of all the 
patients at night. 

518
00:31:09,400 --> 00:31:11,560
It's kind of scary because 
there's no attendings with you. 

519
00:31:11,560 --> 00:31:16,200
You're doing it on your own. 
And I was about to admit my 

520
00:31:16,200 --> 00:31:19,720
first patient and work them up 
for a pre op and I kept getting 

521
00:31:19,720 --> 00:31:23,800
calls from my mom. 
I was like why is my mom calling

522
00:31:23,800 --> 00:31:25,840
me? 
You know I told everyone I'm at 

523
00:31:25,840 --> 00:31:29,360
work please don't call me. 
You know I need to focus. 

524
00:31:29,720 --> 00:31:31,000
But she wouldn't stop calling 
me. 

525
00:31:31,400 --> 00:31:33,800
And I finally answered. 
I said mom. 

526
00:31:33,800 --> 00:31:35,520
I said what what's going on? 
I'm at work. 

527
00:31:36,160 --> 00:31:38,160
And she said it's your it's your
brother. 

528
00:31:38,160 --> 00:31:42,320
He, he was in an accident. 
And So what kind of accident? 

529
00:31:42,360 --> 00:31:47,840
He said, well, he was in the 
Hamptons and he dove into a pool

530
00:31:47,840 --> 00:31:51,920
and his friends, they, they had 
to bring him out of the pool 

531
00:31:51,920 --> 00:31:54,240
and, and the reception was 
really bad. 

532
00:31:54,240 --> 00:31:56,560
So I couldn't, I couldn't hear 
them Well, but they're taking 

533
00:31:56,560 --> 00:32:00,000
him to the hospital and I said, 
OK, well, you know, it's, it's 

534
00:32:00,000 --> 00:32:01,560
the first weekend of July, 
right? 

535
00:32:01,560 --> 00:32:04,680
Make sure in attending, make 
sure he looks over his scans and

536
00:32:04,680 --> 00:32:06,560
make sure he's, he's going to be
OK. 

537
00:32:06,560 --> 00:32:10,520
And then I went back to the pre 
op and then I got a call from my

538
00:32:10,520 --> 00:32:13,760
younger brother a couple minutes
later and I said I know, I know.

539
00:32:13,760 --> 00:32:16,120
Kev hit his head and he said no,
I don't. 

540
00:32:16,120 --> 00:32:19,200
I don't think you understand. 
He he can't walk. 

541
00:32:19,880 --> 00:32:21,480
Oh my gosh. 
He can't move. 

542
00:32:21,680 --> 00:32:24,280
He's being airlifted to Stony 
Brook. 

543
00:32:26,040 --> 00:32:32,440
And so at that moment I realized
he's a quadriplegic, all right. 

544
00:32:33,440 --> 00:32:38,400
And I kind of walked back in 
shock to the, the surgery room 

545
00:32:38,400 --> 00:32:40,000
or all the residents were 
getting ready to go home. 

546
00:32:40,000 --> 00:32:43,360
And I just, I said, I can't, I 
can't do this pre op. 

547
00:32:43,560 --> 00:32:45,160
Like, what's, what's the matter?
What's going on? 

548
00:32:45,560 --> 00:32:50,920
I said, I think my brother's 
paralyzed and I just dropped to 

549
00:32:50,920 --> 00:32:56,080
the ground and went into shock. 
And so that was kind of the 

550
00:32:56,080 --> 00:32:59,240
first, you know, that's I always
wanted to tell that first day of

551
00:32:59,240 --> 00:33:02,000
work story from my perspective 
back. 

552
00:33:02,040 --> 00:33:06,120
Of a first day, Oh my. 
As an orthopedic surgeon, but 

553
00:33:06,920 --> 00:33:11,560
being on the other side right as
the family member and watching 

554
00:33:11,560 --> 00:33:15,200
him go through waiting, waiting 
for his name to be called for 

555
00:33:15,200 --> 00:33:18,080
the add on surgery. 
Going through, you know, being 

556
00:33:18,080 --> 00:33:22,640
in the ICU, not being able to 
move a muscle, going to rehab 

557
00:33:22,640 --> 00:33:28,000
when you're 21 year old NCAA, 
Team USA All American with 80 

558
00:33:28,000 --> 00:33:30,280
year old people who've got in 
their hips and knees replaced, 

559
00:33:31,520 --> 00:33:34,320
you know, and then just the 
resilience of what it's like to 

560
00:33:34,320 --> 00:33:36,480
recover from a spinal cord 
injury. 

561
00:33:37,040 --> 00:33:42,080
And that really set the stage 
for how I approach the next five

562
00:33:42,080 --> 00:33:45,640
years of my training. 
It doesn't surprise. 

563
00:33:46,360 --> 00:33:48,640
Well, the story certainly 
surprises me. 

564
00:33:48,640 --> 00:33:52,720
I didn't expect you to tell me 
that story, and I feel like I 

565
00:33:52,720 --> 00:33:54,440
still need to catch my breath 
from it. 

566
00:33:55,640 --> 00:34:02,920
But having listened to you for 
the first bit of this podcast, 

567
00:34:03,880 --> 00:34:07,360
there was something in my gut 
saying something happened that 

568
00:34:09,040 --> 00:34:14,880
impacted you in an interesting 
way because you're, you've got a

569
00:34:14,880 --> 00:34:19,880
high level of compassion in how 
you speak. 

570
00:34:20,080 --> 00:34:22,840
And, and we never met before 
this podcast. 

571
00:34:23,199 --> 00:34:25,800
And I didn't know you till I 
read a little bit about you and 

572
00:34:25,800 --> 00:34:27,880
thought, wow, this is going to 
be a really interesting 

573
00:34:27,920 --> 00:34:33,040
interview. 
But you, your compassion is 

574
00:34:33,040 --> 00:34:38,760
extremely high, which makes you 
exceptional in a medical in the 

575
00:34:38,760 --> 00:34:42,320
medical world, well. 
I really appreciate you saying 

576
00:34:42,320 --> 00:34:46,239
that it is always the the 
highest compliment when someone 

577
00:34:46,719 --> 00:34:50,719
compliments me for my empathy or
my, you know, compassion towards

578
00:34:50,719 --> 00:34:53,560
others. 
And I find that there are other 

579
00:34:53,560 --> 00:34:56,679
physicians who are quite popular
on social media. 

580
00:34:56,679 --> 00:34:59,720
And what I have realized the 
common denominator is that we 

581
00:34:59,720 --> 00:35:04,560
have all had some personal, you 
know, family event that has 

582
00:35:04,640 --> 00:35:07,720
affected how we, you know, our 
doctors ourselves. 

583
00:35:08,520 --> 00:35:11,840
You know, one of my close 
friends, her name is lady spine 

584
00:35:11,840 --> 00:35:15,120
doc Doctor Betsy Grunch. 
Her mother was an officer who in

585
00:35:15,120 --> 00:35:18,280
the line of duty was in a car 
accident and became paralyzed, 

586
00:35:18,960 --> 00:35:24,800
another neurosurgeon whose son 
was killed in a drunk driving 

587
00:35:24,800 --> 00:35:28,320
accident. 
And so, you know, we carry these

588
00:35:28,320 --> 00:35:32,400
stories that then, you know, 
come out in our interactions 

589
00:35:32,400 --> 00:35:36,680
with our patients. 
And I, I know that I am a better

590
00:35:36,680 --> 00:35:41,600
physician because of Kevin's 
accident and what happened to 

591
00:35:41,600 --> 00:35:45,640
our family. 
And I feel that now what I do on

592
00:35:45,640 --> 00:35:49,760
social media is really, I'm 
spreading that compassion at 

593
00:35:49,760 --> 00:35:54,200
scale because it seems that 
there is a large, I would guess 

594
00:35:55,040 --> 00:35:59,400
or call it a compassion gap 
between doctors and their 

595
00:35:59,400 --> 00:36:02,760
patients now. 
I think it's, it's very 

596
00:36:02,760 --> 00:36:06,960
interesting because that you say
the community that is drawn to 

597
00:36:06,960 --> 00:36:12,480
you by the Internet because in 
some places people describe the 

598
00:36:12,480 --> 00:36:18,320
Internet as super cold, because 
people flip off comments and 

599
00:36:18,320 --> 00:36:21,280
physical comments and everything
else that they would never do 

600
00:36:21,280 --> 00:36:24,000
anywhere else. 
You know, they just say things 

601
00:36:24,000 --> 00:36:25,880
and do things that they would 
never do. 

602
00:36:26,280 --> 00:36:29,280
And so I think there's then 
there's that side of finding 

603
00:36:29,280 --> 00:36:33,440
compassion and finding someone 
that someone, I think people 

604
00:36:33,440 --> 00:36:36,720
just want to be heard. 
And it sounds to me like you're 

605
00:36:36,720 --> 00:36:41,760
an excellent listener and that 
you're sometimes I think the 

606
00:36:41,760 --> 00:36:43,760
biggest part of healing starts 
with you, when you feel 

607
00:36:43,760 --> 00:36:46,120
someone's hearing you. 
Absolutely. 

608
00:36:46,240 --> 00:36:49,480
I you know, we were talking 
earlier that I had given this 

609
00:36:49,720 --> 00:36:52,480
Ted talk about the stages of 
misdiagnosis and. 

610
00:36:52,480 --> 00:36:56,200
Oh yes, let's get into that. 
Well, I'll, I'll, I'll start at 

611
00:36:56,200 --> 00:37:02,080
the end, but to, to get to your 
point, but really, I find one of

612
00:37:02,120 --> 00:37:06,160
the most important pieces to 
someone who's going through a 

613
00:37:06,160 --> 00:37:10,440
misdiagnosis is having a North 
Star believer, right? 

614
00:37:10,440 --> 00:37:16,600
Whether that is a family member 
or a friend or a doctor or 

615
00:37:16,600 --> 00:37:19,960
someone online who you've never 
actually met in person. 

616
00:37:20,440 --> 00:37:24,760
But these are people who make 
you feel seen, who make you feel

617
00:37:24,760 --> 00:37:30,120
heard, who make you feel like 
your story matters, right? 

618
00:37:30,120 --> 00:37:34,640
And that you are worth fighting 
for getting that diagnosis. 

619
00:37:35,600 --> 00:37:38,760
So I hear it all the time on my 
podcast. 

620
00:37:38,760 --> 00:37:41,640
Everyone that I have 
interviewed, they all have a 

621
00:37:41,640 --> 00:37:45,080
North Star believer. 
And going back to the original 

622
00:37:45,080 --> 00:37:48,720
conversation we had about saying
it's all in your head or making 

623
00:37:48,720 --> 00:37:52,560
you feel like you're crazy. 
If you hear that enough, you 

624
00:37:52,560 --> 00:37:55,720
start to internalize that and 
you believe it. 

625
00:37:56,040 --> 00:37:59,720
And it's those North Star 
believer people who say, no, 

626
00:38:00,880 --> 00:38:04,000
that's not right, you know, 
trust yourself. 

627
00:38:04,360 --> 00:38:08,800
I believe you and they they give
you the courage to re enter this

628
00:38:08,800 --> 00:38:12,360
cycle. 
One that's very heart warming, 

629
00:38:12,360 --> 00:38:16,520
one of the things you mentioned 
was when we were talking just 

630
00:38:16,520 --> 00:38:21,240
before we went on air, was your 
Ted talk about the stages of 

631
00:38:21,240 --> 00:38:25,600
grief with misdiagnosis. 
Can you tell us about that? 

632
00:38:25,960 --> 00:38:29,080
Of course. 
So, you know, this is based off 

633
00:38:29,080 --> 00:38:32,000
of Doctor Kubler Ross. 
She had a book called On Death 

634
00:38:32,000 --> 00:38:36,200
and Dying and she outlined the 
the five stages of grief. 

635
00:38:36,960 --> 00:38:40,040
And this has been a framework in
use for over 50 years. 

636
00:38:40,280 --> 00:38:44,880
And it has been really helpful 
for people to process these 

637
00:38:44,880 --> 00:38:47,560
emotions. 
And what I saw was that there 

638
00:38:47,560 --> 00:38:52,760
was a very similar pattern of 
stages going on in people who 

639
00:38:52,760 --> 00:38:56,680
had been misdiagnosed. 
And I thought it would be 

640
00:38:56,680 --> 00:39:01,800
helpful to give them a framework
to be able to process these 

641
00:39:01,800 --> 00:39:06,840
complex emotions, to start the 
conversation about the the pain 

642
00:39:06,840 --> 00:39:12,160
and the trauma that happened 
from being misdiagnosed, which a

643
00:39:12,160 --> 00:39:14,840
lot of doctors don't talk about 
or understand that they can be 

644
00:39:14,840 --> 00:39:18,800
part of the problem. 
And, and then also just give 

645
00:39:18,800 --> 00:39:23,560
people that ability to finally 
someone see them and hear them 

646
00:39:23,560 --> 00:39:26,240
for, you know, this journey that
they've been on. 

647
00:39:26,640 --> 00:39:30,120
So as I mentioned earlier, the 
first stage and many of the 

648
00:39:30,120 --> 00:39:32,320
stages are very similar to the 
stages of grief. 

649
00:39:32,320 --> 00:39:35,640
And, and they can people cannot 
go through stages. 

650
00:39:35,640 --> 00:39:38,480
They can skip stages or do 
stages in different orders, but 

651
00:39:38,480 --> 00:39:41,960
typically they are, you know, 
denial, right? 

652
00:39:41,960 --> 00:39:43,400
That's what we talked about 
earlier. 

653
00:39:43,720 --> 00:39:46,200
I just slept on it Funny. 
It'll go away. 

654
00:39:47,520 --> 00:39:49,800
But then when those symptoms, 
they linger, right? 

655
00:39:49,800 --> 00:39:53,400
They don't go away. 
Then the next stage is gathering

656
00:39:53,400 --> 00:39:56,680
the research, right? 
Gathering the like, OK, now I'm 

657
00:39:56,680 --> 00:39:59,240
going to go to Google. 
I'm going to, you know, see a 

658
00:39:59,240 --> 00:40:02,600
bunch of doctors. 
I'm going to join a Facebook 

659
00:40:02,600 --> 00:40:05,440
group. 
I'm, you know, going to look on,

660
00:40:05,440 --> 00:40:10,160
use AI. 
And then it turns into anxious 

661
00:40:10,160 --> 00:40:14,240
optimism, right? 
OK, I saw a specialist and they,

662
00:40:14,360 --> 00:40:17,920
they want me to do this test and
they're positive that this is 

663
00:40:17,920 --> 00:40:19,720
going to give me the answer, 
right? 

664
00:40:19,920 --> 00:40:23,600
And you put all your energy and 
all your hopes into getting this

665
00:40:23,600 --> 00:40:27,320
CT scan. 
And then the next stage is self 

666
00:40:27,320 --> 00:40:31,520
doubt when that CT scan comes 
back as normal, didn't find 

667
00:40:31,520 --> 00:40:34,280
anything. 
You think are they? 

668
00:40:34,680 --> 00:40:35,720
How could they not find 
anything? 

669
00:40:38,800 --> 00:40:40,960
Maybe I am wrong, maybe I am 
going crazy. 

670
00:40:42,320 --> 00:40:45,720
And then when you realize again 
the symptoms are not going away,

671
00:40:46,360 --> 00:40:50,000
that fades into anger. 
Like no, I'm not crazy. 

672
00:40:50,440 --> 00:40:54,280
I do have pain. 
I do have symptoms and you're 

673
00:40:54,440 --> 00:40:58,240
you're mad at the system and 
you're mad at your doctors and 

674
00:40:58,560 --> 00:41:02,320
you're mad at your family and 
friends who maybe don't think 

675
00:41:02,320 --> 00:41:06,880
this is a serious problem or you
know, you're mad at someone 

676
00:41:06,880 --> 00:41:09,920
suggesting maybe you should, 
maybe you should talk to you 

677
00:41:09,920 --> 00:41:13,200
know, someone, a psychologist or
a psychiatrist. 

678
00:41:14,880 --> 00:41:20,400
And then once all that angry 
energy fades, you are in 

679
00:41:20,480 --> 00:41:23,320
depression, right? 
You're tired. 

680
00:41:24,360 --> 00:41:26,680
You're tired of seeing all the 
doctors. 

681
00:41:27,720 --> 00:41:32,840
You are grieving the life that 
you had before you got sick, 

682
00:41:33,520 --> 00:41:35,760
right? 
And you're grieving the life you

683
00:41:35,760 --> 00:41:39,280
thought you were going to have 
before this happened to you. 

684
00:41:39,960 --> 00:41:43,240
And it's incredibly isolating. 
And you're really, and you're 

685
00:41:43,240 --> 00:41:47,680
really sad. 
And then in the end, you're just

686
00:41:48,000 --> 00:41:52,160
in the stage of apathy. 
You've just given up. 

687
00:41:53,040 --> 00:41:56,200
There's nothing more you can do.
Like I've been to all the 

688
00:41:56,200 --> 00:41:58,880
doctors. 
I've told everyone my story. 

689
00:41:59,480 --> 00:42:03,520
There's nothing left. 
Now that I said, I don't want 

690
00:42:03,520 --> 00:42:06,840
everyone to leave this podcast 
being sad, you know, and 

691
00:42:06,840 --> 00:42:08,840
depressed. 
That's I don't want to cause 

692
00:42:08,840 --> 00:42:10,680
millions of people crying on the
Internet today. 

693
00:42:11,960 --> 00:42:16,600
But I tell these stages because 
I think it's helpful to 

694
00:42:16,600 --> 00:42:20,640
normalize that these are the 
possible emotions you could be 

695
00:42:20,640 --> 00:42:23,120
going through. 
Well, what I find fascinating 

696
00:42:23,120 --> 00:42:30,560
that she said that is I've, I've
always been very complementary 

697
00:42:30,560 --> 00:42:37,800
medicine oriented and worked in 
very traditional medicine for 30

698
00:42:37,800 --> 00:42:39,440
years. 
So I always look at everything 

699
00:42:39,440 --> 00:42:45,200
as a blend, but I believe in the
whole body connection in a big 

700
00:42:45,200 --> 00:42:47,400
way. 
And when I have people come in 

701
00:42:47,400 --> 00:42:51,520
to me that are, are a lot of 
different doctors groups have 

702
00:42:51,520 --> 00:42:55,320
always referred their patients 
to me to work with them with 

703
00:42:55,320 --> 00:42:58,520
hypnosis. 
So I have a very and I always 

704
00:42:58,520 --> 00:43:00,680
start with, when was the last 
time you had a full physical? 

705
00:43:01,520 --> 00:43:04,160
And so often they'll say to me, 
why are you asking that? 

706
00:43:04,640 --> 00:43:09,240
I'm like, because whatever's 
going on in your mind is somehow

707
00:43:09,240 --> 00:43:11,920
impacted by your body. 
Now, I don't know what that is. 

708
00:43:12,000 --> 00:43:15,480
I'm not the MD here, but I think
we need to start you with a good

709
00:43:15,480 --> 00:43:20,680
physical with someone so we can 
just see if there's a reason 

710
00:43:20,680 --> 00:43:23,240
you're feeling constantly 
stressed or why that, you know, 

711
00:43:23,240 --> 00:43:25,320
you you can't. 
Maybe it is just because you're 

712
00:43:25,320 --> 00:43:27,280
hunched over your computer or 
because you can't. 

713
00:43:27,280 --> 00:43:29,640
You feel like you're walking in 
egg shells in your home. 

714
00:43:29,960 --> 00:43:31,400
You know, those are all very 
possible. 

715
00:43:31,400 --> 00:43:33,840
And we can look at those with 
hypnosis all day long and we 

716
00:43:33,840 --> 00:43:36,600
can, you know, come up with ways
we can move you through things. 

717
00:43:36,920 --> 00:43:38,840
But there might be something 
physical here. 

718
00:43:39,560 --> 00:43:42,280
So absolutely what you're 
talking about, and you'd 

719
00:43:42,280 --> 00:43:46,720
mentioned it before, but having 
the silos, right, of expertise, 

720
00:43:46,920 --> 00:43:52,400
but there is also a silo of 
physical health and mental 

721
00:43:52,400 --> 00:43:56,080
health. 
And what we have to understand 

722
00:43:56,080 --> 00:44:01,280
is that it is a continuous 
spectrum and that one affects 

723
00:44:01,280 --> 00:44:05,120
the other. 
And where I see the major issues

724
00:44:05,120 --> 00:44:09,320
are, is that on the physical 
side, if they can't figure out 

725
00:44:09,320 --> 00:44:12,200
what's going on physically, 
they're going to punt it to 

726
00:44:12,200 --> 00:44:14,720
mental health, right? 
If you are a woman, well, you 

727
00:44:14,720 --> 00:44:17,920
have anxiety, right? 
Well, you have depression, 

728
00:44:18,840 --> 00:44:21,920
You're having a panic attack. 
No, actually, you're having a 

729
00:44:21,920 --> 00:44:23,720
heart attack. 
Yeah, actually you're having a 

730
00:44:23,720 --> 00:44:25,120
stroke. 
OK. 

731
00:44:25,720 --> 00:44:29,160
But these are some of my most 
popular videos are just even 

732
00:44:29,320 --> 00:44:34,840
talking about this, right. 
And so there's there's that. 

733
00:44:34,840 --> 00:44:39,560
Then there's also when you are 
going through a physical 

734
00:44:39,560 --> 00:44:45,720
condition, the help you can have
from working with a mental 

735
00:44:45,720 --> 00:44:49,480
health counselor can be the main
difference. 

736
00:44:50,240 --> 00:44:54,160
And I find that people who have 
been diagnosed, whether it's 

737
00:44:54,160 --> 00:45:00,280
cancer, whether it's a, you 
know, autoimmune disorder, they 

738
00:45:00,280 --> 00:45:05,080
are so helped by either talking 
with a therapist, finding a 

739
00:45:05,240 --> 00:45:08,040
group, A community group with 
the same problems. 

740
00:45:08,480 --> 00:45:13,360
OK, because that your mental 
fortitude is what's going to 

741
00:45:13,360 --> 00:45:18,400
help you with your, your 
physical ailments and getting 

742
00:45:18,400 --> 00:45:22,200
back to those stages of, of 
misdiagnosis, I would say, you 

743
00:45:22,320 --> 00:45:27,080
know, the three things that I 
can recommend how to shortcut or

744
00:45:27,080 --> 00:45:32,720
divert from those final stages 
of misdiagnosis are #1 finding 

745
00:45:32,720 --> 00:45:36,040
your North Star believers. 
OK, That may mean going to 

746
00:45:36,040 --> 00:45:39,080
multiple different doctors. 
That may mean opening up to 

747
00:45:39,080 --> 00:45:46,560
family who you wouldn't normally
talk to about medical issues #2 

748
00:45:46,560 --> 00:45:50,960
is having the courage to re 
enter the cycle right? 

749
00:45:51,080 --> 00:45:56,040
It's really hard to find another
doctor just to be told the. 

750
00:45:56,080 --> 00:45:57,560
Same thing. 
Right. 

751
00:45:57,880 --> 00:46:01,040
That is physically and 
emotionally draining. 

752
00:46:01,440 --> 00:46:04,720
So it takes different I call 
this the will to fight. 

753
00:46:05,120 --> 00:46:10,200
It takes courage to have the 
will to fight and re enter that 

754
00:46:10,200 --> 00:46:14,080
that cycle. 
And then finally, we are living 

755
00:46:14,200 --> 00:46:17,800
in a day and age where we have 
access to tools that were not 

756
00:46:17,800 --> 00:46:21,440
available even six months ago, 
right? 

757
00:46:21,640 --> 00:46:25,200
I mean, there there's an AI 
facial recognition app where you

758
00:46:25,200 --> 00:46:29,720
can upload your picture and you 
can diagnose you with a rare 

759
00:46:30,240 --> 00:46:32,080
genetic disease in three 
seconds. 

760
00:46:32,680 --> 00:46:34,480
OK. 
I remember years ago working 

761
00:46:34,480 --> 00:46:36,560
with a company that was doing 
that with the Irish that 

762
00:46:36,560 --> 00:46:39,880
ultimately became part of Clear,
correct, correct. 

763
00:46:40,320 --> 00:46:43,560
But it was to diagnose mental 
imbalances. 

764
00:46:43,560 --> 00:46:46,440
It was psychiatric originally. 
Correct. 

765
00:46:46,440 --> 00:46:50,560
So, you know, the putting 
together all of these, you know,

766
00:46:50,560 --> 00:46:54,640
my social media channel and my 
podcast and all things has been 

767
00:46:54,640 --> 00:46:58,120
building towards what I am 
actually building, which is a 

768
00:46:58,120 --> 00:47:02,520
social media platform called 
Feel Better, where you have 

769
00:47:02,640 --> 00:47:07,480
access to credible health 
information from health experts,

770
00:47:07,840 --> 00:47:11,280
but then also be able to find a 
community of people who are 

771
00:47:11,280 --> 00:47:12,760
going through the same problem 
as you. 

772
00:47:12,760 --> 00:47:15,960
That's fantastic. 
What, what I, you know, one of 

773
00:47:15,960 --> 00:47:19,440
my thesis is that it's an, if 
you're a woman with 

774
00:47:19,760 --> 00:47:23,040
endometriosis, there's no one 
you trust more than another 

775
00:47:23,040 --> 00:47:26,360
woman with endometriosis. 
And I really believe in the 

776
00:47:26,360 --> 00:47:31,720
power of combining the medical 
expertise with the community 

777
00:47:31,720 --> 00:47:34,760
support. 
Again, attacking it from the 

778
00:47:34,760 --> 00:47:39,120
physical health and the mental 
health is how we're all going to

779
00:47:39,120 --> 00:47:41,200
be able to help take care of 
each other. 

780
00:47:42,680 --> 00:47:46,840
Oh my gosh, I could keep talking
to you, Doctor Aaron Nance, for 

781
00:47:46,840 --> 00:47:50,400
another hour, but our time is up
and I wish it wasn't because, 

782
00:47:50,880 --> 00:47:52,720
well, first of all, that was one
heck of an ending. 

783
00:47:53,000 --> 00:47:54,680
And I. 
And what was the name of this 

784
00:47:54,680 --> 00:47:57,640
community you're creating? 
So it's called feel better, feel

785
00:47:57,640 --> 00:48:01,760
better BETR it will be an app 
launching in June. 

786
00:48:01,760 --> 00:48:06,400
Not sure when the podcast is 
airing, but yeah, we are, you 

787
00:48:06,480 --> 00:48:10,720
know, as I said, taking the best
from medical social media and 

788
00:48:10,720 --> 00:48:15,240
then working with health 
foundations and really trusted 

789
00:48:15,240 --> 00:48:18,880
communities that are rooted, you
know, in in health and and 

790
00:48:18,960 --> 00:48:21,520
community support. 
And that's, we just want to make

791
00:48:21,520 --> 00:48:25,240
it as easy as possible for you 
to, they say, help us, help 

792
00:48:25,240 --> 00:48:28,360
ourselves. 
And that's the ultimate goal. 

793
00:48:29,800 --> 00:48:31,960
Well, this has been an absolute 
pleasure. 

794
00:48:32,080 --> 00:48:34,440
Thank you for your time. 
Well, thank you, Diana. 

795
00:48:34,600 --> 00:48:37,720
It's a pleasure. 
And thank you for inviting me on

796
00:48:37,720 --> 00:48:41,560
and getting these types of 
stories on because as I said, I 

797
00:48:41,560 --> 00:48:46,560
think so many people are feeling
isolated and lonely going 

798
00:48:46,560 --> 00:48:49,920
through these health challenges.
And I just want them to know 

799
00:48:49,920 --> 00:48:54,880
that you're not alone, you do 
matter, and that your stories 

800
00:48:54,880 --> 00:48:59,560
are worth listening to. 
That comes across loud and clear

801
00:48:59,720 --> 00:49:03,080
and it's heart warming. 
Thank you. 

802
00:49:03,240 --> 00:49:06,320
Thank you so much. 
That's Doctor Aaron Nance and 

803
00:49:06,320 --> 00:49:08,600
I'm Diane Griselle. 
I'm also known as silver 

804
00:49:08,600 --> 00:49:10,520
disbedience. 
This the silver disbedience 

805
00:49:10,520 --> 00:49:14,560
perception dynamics podcast. 
There will be all kinds of 

806
00:49:14,560 --> 00:49:18,800
information below this podcast 
where you can follow doctor 

807
00:49:19,240 --> 00:49:21,800
Aaron Nance and I highly 
recommend you do because she's a

808
00:49:21,800 --> 00:49:27,760
heartworm warming, fresh breath 
of air so and also happens to be

809
00:49:27,760 --> 00:49:31,000
very intelligent and smart and 
accomplished too. 

810
00:49:31,000 --> 00:49:35,360
So what a combo. 
So please hit subscribe, share 

811
00:49:35,360 --> 00:49:39,120
this with your friends. 
Follow Doctor Nancy's 

812
00:49:39,120 --> 00:49:42,120
information below. 
Thanks again everybody and thank

813
00:49:42,120 --> 00:49:43,280
you. 
Thank you.

