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Well, welcome back to the show. 
This summer has been brutal with

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heat and humidity and both Becca
and I have pot Postural 

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Orthostatic Tachycardia Syndrome
and we have both been really 

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feeling it lately and we figured
probably a lot of you have too. 

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So today we're talking about 
what really matters with Pot 

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Slayers hit, how Becca and I 
noticed them. 

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How do we care for ourselves and
how do we shift shift beliefs 

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around product to being 
arrested? 

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Because when the flare up hits, 
there's a whole lot of crap that

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comes in. 
So stick around and join us for 

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this conversation, Becca. 
Wow, right? 

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Wow. 
I mean, it's been a week, a 

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week, two weeks. 
I don't know how long, many. 

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It feels like forever right? 
But here in the state we are in 

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summertime and it is the end of 
the summertime which is always 

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the hottest part of the summers.
And why pop scenario with the 

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heat is terrible? 
I have not. 

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There is no good coming out of 
hot temperatures for me. 

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Between having pop, being in pre
menopause plan, being on mental 

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health medications that make me 
sensitive to temperature, summer

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is like a no blow for me. 
And it's actually one of the 

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reasons that I moved so far up 
north where I live was to get 

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away from that. 
So this past week has been a 

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challenge. 
We had a huge heat wave here in 

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Maine for like I think 3 days in
a row. 

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It was and it just took me off 
in the feet. 

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I don't know if you felt the 
flu, but I was like at 50%. 

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Oh. 
My gosh, yes. 

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So I am in, of course, like the 
the pit of heat and humidity in 

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central Alabama. 
Gee, thanks, honey. 

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I'm so going to move back. 
You know, we, we moved to 

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Colorado and we're there for a 
couple years. 

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And I thought, Oh my gosh, this 
is going to be great for my 

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pots. 
And it was in a lot of ways 

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because it was less humidity. 
But I have to say the heat was 

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still just as bad for me in the 
summer with pots and everything 

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in Colorado as it has been here 
in central Alabama. 

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But the the heat this summer, 
it's been brutal. 

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And I've I felt a few things 
creep in because, you know, for 

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those that follow the show here 
for a little bit, you know, I 

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was diagnosed with long COVID in
January of this year and I 

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didn't get COVID until the 
January prior. 

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It was the first time I got it 
in all that time. 

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I was really lucky but that 
actually set. 

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Off a. 
Ton of POTS related symptoms and

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issues for me that I hadn't had 
in almost a decade. 

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So this summer has been really 
hard. 

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Nearly hard. 
And it is. 

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And what's crazy, I think for me
too, is that I, there's part of 

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my brain, I guess it's the same 
part that for women when they 

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have babies, forgets how painful
birth was. 

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There's a part of my brain that 
for cat how much it stinks and 

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how bad a flare is. 
And you know, I'll push myself 

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if it the longer it's been since
the flare, the harder I will 

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push myself because that's 
somehow weird way I forget like 

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all of those things. 
And I should know, we talk about

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seasonal living, you and I, and 
here I should know, here comes 

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summertime. 
I should start like laying my 

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load. 
You know, I have to start to 

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lessen my load a little bit 
because I never know when the 

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heat's going to come. 
I have no control over that 

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piece of it. 
I only have control of how I 

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respond to, but being overloaded
in my work right and and really 

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spread thin makes it worse. 
It makes me more susceptible to 

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some kind of flair. 
I think it happens for me too. 

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And you know, I started almost a
year ago now. 

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So for those of y'all that that 
have been part of the hormone 

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harmony series and and I was 
teaching about there's different

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phases of your cycle and how it 
shows up for their Co occurring 

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health conditions. 
I honestly really leaned into 

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that this year. 
And since January I have blocked

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off an entire week and I call it
my rest and reset week. 

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And it's when I have my cycle 
and we're actually recording. 

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That's stupid enough and all the
Berry menopause stuff, but it, 

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it was really interesting for me
because, you know, before we got

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on and hit record, I was like, 
Oh my gosh, my teeth have really

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been hurting. 
Like I was really in a lot of 

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pain last night. 
And it's something that I've 

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noticed when I'm having a POTS 
flare, like the things that 

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normally I, it's like I may not 
notice or it's not that big a 

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deal, intensify like it becomes 
so much worse. 

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So normally I've been noticing 
like my week before my period, 

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during my ludial phase, and then
the week of my menstrual cycle, 

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my teeth will get really 
sensitive, like the nerve 

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endings. 
And so I noticed that and, and 

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then I, I was panicking when it 
first happened because I 

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thought, Oh my gosh, if I go to 
the dentist and I got all kinds 

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of dental traumas there, that's 
kind of a big thing that was 

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super scary. 
But I, I started tracking like, 

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oh wow, no, this happened about 
the same time last month because

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I feel in that little trekker 
thing and I just write random 

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stuff down because you and I 
both have said slicks, random 

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things will show up. 
And yesterday, of course, I 

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started three days early and it 
wasn't just like, OK, we're 

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going to give you the little 
signal. 

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And then all of a sudden, you 
know, you got a little prep days

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before everything really starts.
I didn't get that. 

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I got, I got a signal yesterday 
morning and then it all started 

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yesterday afternoon and last 
night. 

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I my ear was hurting, my top of 
my jaw on the right side of all 

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of my teeth up there hurt. 
And it's stuff like this is like

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starting to recognize these 
signs, but it's worse this time 

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because I started having some 
POTS flare up. 

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But now that I did, you're 
already inflamed and flared up 

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from and then this gets layered 
on top of it, right? 

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It is unreal. 
It is really like I feel crazy a

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lot of the time when all of this
happened because they're it's 

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like that, like have you turned 
and then be like my teeth hurt 

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and I know what it hurts like 
when you have to go to the 

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dentist. 
This isn't the same kind of 

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teeth hurt, but my teeth hurt 
right? 

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Like and I get all right, if my 
ears get itchy or my feet eat 

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the itchy feet, I don't 
understand. 

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I forget it and there's no 
amounts of moisturizer that 

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would stop the itch on my feet. 
I don't understand it. 

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And it's really like we'll do 
your little signals, your little

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warning that stuff is happening,
though my itchy feet is always 

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my little signal that I am in 
like coming toward my period 

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somewhere. 
Something is happening that my 

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hormones that my feet are great 
and then it'll pass. 

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But I really have to say the 
layering on of the Perry 

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menopause symptoms with the pop 
is it's almost like, I don't 

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know, I don't even know how to 
just spray. 

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It's like someone else takes 
your bodden from you for a 

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little bit. 
That's how I feel like you're 

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just onto the ride and that's. 
Feel like somebody turns the 

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dial up on everything that. 
Like everything, and I don't 

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mean to be angry and mean at 
people and things like, but I 

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you just feel trapped in your 
own skin. 

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OK, we're we're going to talk 
about that for a SEC last week. 

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I am telling you, I it had 
probably been since my late 30s 

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that I had like this out of 
nowhere Superintendent rage 

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experience. 
And it hit me last week and 

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y'all, it was so bad. 
I was walking down my driveway 

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cussing and screaming like a 
crazy person. 

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Now I live out in the country 
and have a quarter mile long 

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driveway, so it was kind of a 
good thing. 

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But I'm walking down an opera 
and I blail in my hands and I am

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just, I was, I don't like the 
Tasmanian devil. 

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And I'm just like that. 
All this stuff just coming out 

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because I had to get it out 
right And he knew I knew 

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something was not right. 
And perimenopause, this has just

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been one of those things. 
And with all the stuff that's 

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happening, like I started to 
notice. 

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Like for me, it's immediately 
when I start to get really bad, 

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like Vertigo and dizzy. 
That's like comes on 1st for me 

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usually. 
And I'll get like a sort of racy

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heart and I'll feel a little 
short of breath. 

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Like those are some of the ways 
that I notice it and I'll get 

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like a little dull headache. 
You know, some of those little 

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things are the signals that, you
know, some pot stuff's coming up

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for me and that's been creeping 
in. 

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And then, of course, being in my
luteal phase last week, 

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everything intensified and 
that's the first time. 

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And y'all, I'm 51. 
So, I mean, it's been a minute 

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since I have had this kind of 
intense, but I knew it was a 

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chemical thing. 
And that's the worst. 

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Part you can. 
Feel that it's a chemical you're

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like I am. 
This is not like who is this 

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you're unrecognizable to sell. 
Sometimes I like the. 

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Dragon Lady. 
Yeah, like, and I know people 

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joke about it all the time. 
They see memes about it online 

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and everything. 
But like, you know how we get to

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a phase where we're like, we 
anybody eating here, right? 

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Like the sound of their chewing 
and you're like, could I? 

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I will whip your face right now.
My own chewing my own. 

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I mean, I annoy. 
Do it to ourselves. 

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I annoy myself and I think that,
you know, a lot of this stuff is

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happening for me together, but 
it's almost for me. 

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And I don't know if you feel the
same way, but I you know, I 

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could deal with my pop and I was
dealing with my nuisance of 

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periods and they were separate 
thing for me. 

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Most of my so my pots is acting 
up. 

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Let me do XYZ. 
This is about my period. 

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Let me do XYZ. 
But now I'm in this New Year's 

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very menopause thing that nobody
understands and they are 

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connected together now. 
And so sometimes what I use are 

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my pots doesn't work for my 
period right. 

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And all back in this is a game 
that needs to find itself to 

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men. 
I'd I don't like this but how 

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dangled they are? 
I feel like I'm played whack A 

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mole for tuts. 
OK, so for me, one of the things

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that I do to help, like 
recognizing the signals and sort

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of at least allowing a little 
space when I know, like for me, 

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the week of my period, this is 1
where I do like my rest and 

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reset. 
Like I don't book any big stuff 

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this week. 
And sometimes I do have a flight

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things event and it happens, but
traditionally I'm like pretty 

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rigid around that time because I
know there's so much going on 

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right now. 
I don't know how I'm going to 

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feel. 
It's less predictable sometimes.

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So I block that off. 
But then I also use my hormone 

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harmony tracker and I just kind 
of track even the most random, 

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like obscure stuff that I'm 
something comes up, I just write

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it down. 
And I've noticed like over a 

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couple months, I can track stuff
with something that you do to 

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kind of help recognize your your
pot symptoms and signal. 

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Literally for me is one of the 
hardest things that I struggle 

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with the most because I'm 
somebody I really, really 

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struggle with identifying my 
body signal. 

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And So what I actually do for my
health is take care of myself in

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a very moderated way all the 
time. 

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So like I don't ever let down my
guard around my pots. 

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I have things that I do all, you
know, everyday, all the, you 

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know, in an effort to keep it 
controlled because I don't 

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always catch the signal. 
So I'm not somebody who can be 

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kind of reactive to my symptoms.
I have to do symptom management 

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ahead, if that makes sense. 
So I take a lot of supplements 

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at night. 
I take, I take magnesium, I take

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vitamin DI take right. 
So I take a lot of supplements 

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to support when I know what is 
going on. 

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I do have electrolyte drinks. 
Those are out there and things 

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like that. 
And so I drink them, I make sure

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I drink two of them away, one of
them first thing in the morning,

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right? 
Other thing that I can kind of 

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that I've noticed for me is I'm 
very weather sensitive. 

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So I can more than anything 
else, if I look at the weather 

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and I have an idea of what's 
coming and what days are, you 

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know, I kind of could say, oh, 
well, that day I'm not going to 

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be able to do too much. 
I can already see that I'm going

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to be impacted in that way. 
And so I try to not set myself 

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00:12:46,040 --> 00:12:48,920
up for failure by ignoring those
things. 

223
00:12:49,160 --> 00:12:52,880
A lot of what I do is prep and 
then of course I then I'm like 

224
00:12:52,880 --> 00:12:55,400
the emergency. 
Then the other side of prep is 

225
00:12:55,400 --> 00:12:58,640
to be the emergency preparedness
scent. 

226
00:12:58,760 --> 00:13:01,440
So I catch them with me around 
it, right? 

227
00:13:01,440 --> 00:13:05,080
I carry make sure I always have 
electrolyte little packets with 

228
00:13:05,080 --> 00:13:08,280
me or I make sure that I'm 
thinking about salt and do I 

229
00:13:08,280 --> 00:13:12,600
have it with me and just making 
sure I have the emergency things

230
00:13:12,600 --> 00:13:15,000
if I'm wasn't able to prepare 
for some. 

231
00:13:15,880 --> 00:13:18,520
Oh yeah, I keep one of the 
little electrolyte thing tab, 

232
00:13:18,760 --> 00:13:20,440
you know, water packet things in
my purse. 

233
00:13:20,760 --> 00:13:22,960
But you know, I'm like you, I 
use a lot of different 

234
00:13:22,960 --> 00:13:25,800
supplements and stuff. 
What I have found, and this has 

235
00:13:25,800 --> 00:13:28,200
been really good, I use 
something called magic mineral 

236
00:13:28,200 --> 00:13:31,160
salt. 
We'll sit magnesium mineral 

237
00:13:31,160 --> 00:13:32,560
salt. 
I will send you the link for 

238
00:13:32,560 --> 00:13:33,920
the. 
Write it down. 

239
00:13:33,920 --> 00:13:35,480
Look at us. 
We're here giving each other 

240
00:13:35,480 --> 00:13:36,520
advice to. 
I will. 

241
00:13:36,720 --> 00:13:38,920
We'll see. 
There's a link to all the stuff 

242
00:13:38,920 --> 00:13:41,680
that I use 'cause I shared this 
in our Hormone Harmony and I'll 

243
00:13:41,680 --> 00:13:45,360
also share that download for 
everybody that's like your 

244
00:13:45,360 --> 00:13:48,600
Hormone Harmony with your COVID 
curing health condition that 

245
00:13:48,600 --> 00:13:52,160
cover endometriosis, Pecos, all 
kinds of stuff, POTS, the whole 

246
00:13:52,160 --> 00:13:54,240
thing. 
I'm going to share that 'cause I

247
00:13:54,240 --> 00:13:55,920
think this is something that's 
really important. 

248
00:13:56,400 --> 00:13:58,040
But I mean, this stuff has been 
great. 

249
00:13:58,040 --> 00:14:03,160
And I just add a little dash of 
this into my very first cup of 

250
00:14:03,160 --> 00:14:06,880
my everyday dose mushroom coffee
'cause I got off caffeine last 

251
00:14:06,880 --> 00:14:08,600
year. 
Oddly. 

252
00:14:09,880 --> 00:14:13,520
I was such a coffee addict, but 
and then and so I just do that. 

253
00:14:13,520 --> 00:14:16,680
I kind of kind of like you, just
the how do I prepare? 

254
00:14:16,680 --> 00:14:19,480
How do I do preventative things,
you know? 

255
00:14:19,480 --> 00:14:21,520
Yeah. 
And then have that emergency kit

256
00:14:21,520 --> 00:14:23,320
First off. 
But I love your check in the 

257
00:14:23,320 --> 00:14:25,440
weather because you know the 
barometric pressure. 

258
00:14:28,040 --> 00:14:30,920
I do, and this is one of the 
things that I was invalidated 

259
00:14:30,920 --> 00:14:34,400
about, by the way, my entire 
life was my sensitivity to the 

260
00:14:34,400 --> 00:14:36,560
barometric pressure. 
What do you mean? 

261
00:14:36,560 --> 00:14:38,320
You know it's gonna rain? 
Do you know how many people I 

262
00:14:38,320 --> 00:14:41,200
could have spared by telling 
them to get an umbrella in my 

263
00:14:41,200 --> 00:14:44,080
life? 
Like any beautiful. 

264
00:14:44,440 --> 00:14:47,080
But I have to know because it 
also impacts my migraine. 

265
00:14:47,280 --> 00:14:49,840
It'll impact my brain fog, 
right? 

266
00:14:50,560 --> 00:14:53,400
Lots of different things, but 
mostly it limits my, you know 

267
00:14:53,400 --> 00:14:55,560
what I'm capable of on those 
days. 

268
00:14:55,600 --> 00:14:59,400
And in the summertime, those 
winters are tiny, you know. 

269
00:15:01,120 --> 00:15:07,040
What's some ways that you know 
you decide what gets your spoons

270
00:15:07,040 --> 00:15:11,320
on Flare? 
Days, OK, so on flare days to me

271
00:15:11,320 --> 00:15:14,480
is like selfish day, right? 
That's my number 1. 

272
00:15:14,480 --> 00:15:17,840
So I, I am somebody who gives, 
gives, I love, I love to give my

273
00:15:17,840 --> 00:15:20,000
energy to people. 
I love to give my time to 

274
00:15:20,000 --> 00:15:22,000
people. 
I love to collaborate with 

275
00:15:22,000 --> 00:15:24,320
people. 
I love to support other people's

276
00:15:24,320 --> 00:15:26,960
work, right? 
But when I go into a flare, 

277
00:15:27,200 --> 00:15:30,080
those are the days when I call 
to all of those people and say, 

278
00:15:30,080 --> 00:15:35,040
I have always been here for you,
but I cannot make our meeting or

279
00:15:35,040 --> 00:15:39,840
I need to reschedule our this or
whatever because I need to do 

280
00:15:39,840 --> 00:15:43,280
take that time. 
And any energy I do have really 

281
00:15:43,280 --> 00:15:46,720
has to go to my priorities, 
which for me or myself and my 

282
00:15:46,720 --> 00:15:49,200
family, right? 
And so that means I have to make

283
00:15:49,200 --> 00:15:51,440
sure that my dogs get that. 
And I have to make sure that I 

284
00:15:51,440 --> 00:15:54,600
get that, that I take care of my
hygiene, that my husband has 

285
00:15:54,600 --> 00:15:58,440
what he needs, that we're, we're
all safe and have what we need, 

286
00:15:58,760 --> 00:16:00,400
right? 
Because in that time, I don't 

287
00:16:00,400 --> 00:16:02,600
have all of my everything 
available to me. 

288
00:16:02,920 --> 00:16:05,840
And then if I have anything 
leftover, I could think about 

289
00:16:05,840 --> 00:16:08,920
giving it to other people. 
But usually on flair days, what 

290
00:16:08,920 --> 00:16:13,280
I try to do is not right. 
I try to, you know, this my body

291
00:16:13,280 --> 00:16:15,680
saying stop. 
That's why I treat it. 

292
00:16:16,120 --> 00:16:19,320
You know it's my body signals 
because I don't listen to slow 

293
00:16:19,320 --> 00:16:24,560
down very well, right? 
That's a really, I love that. 

294
00:16:25,840 --> 00:16:28,800
It's interesting. 
I, I was really thinking about 

295
00:16:28,800 --> 00:16:35,480
this as I've had a couple taste 
lately and, and it's, it's been 

296
00:16:35,480 --> 00:16:39,680
one of those things where I'm 
like, you know, I actually 

297
00:16:39,680 --> 00:16:40,880
didn't even think twice about 
it. 

298
00:16:40,880 --> 00:16:47,200
Like I, I was on reflection that
I, I noticed, Oh wow, I had a 

299
00:16:47,200 --> 00:16:50,960
bunch of stuff the other day on 
my calendar and I was really 

300
00:16:50,960 --> 00:16:52,960
just not doing well. 
It was hard to stand up. 

301
00:16:53,120 --> 00:16:57,080
It was just, I wasn't feeling 
well and my brain was just not 

302
00:16:57,080 --> 00:17:00,840
doing the thing. 
And I went, what do I need? 

303
00:17:01,920 --> 00:17:04,440
That's the big question I always
ask myself, what do I need and 

304
00:17:04,440 --> 00:17:11,119
have an Alexa Thyme in and 
really for me, I do know, you 

305
00:17:11,119 --> 00:17:14,839
know, and I just need to listen 
for a second like you just need 

306
00:17:14,839 --> 00:17:18,599
to get your butt in bed. 
You need to have like nothing 

307
00:17:18,599 --> 00:17:21,240
watch some fun TV. 
And just. 

308
00:17:21,319 --> 00:17:24,240
Stay in the house and be cool. 
Don't mean go outside. 

309
00:17:24,680 --> 00:17:28,720
I was like, OK, and I just 
immediately sent out a couple of

310
00:17:28,720 --> 00:17:32,480
messages and I said, I'm not 
feeling great today. 

311
00:17:32,480 --> 00:17:36,720
I would not be the best person 
to show up for what we're doing.

312
00:17:37,280 --> 00:17:39,400
I would like to reschedule. 
Here's the link. 

313
00:17:39,400 --> 00:17:42,720
Let's do that. 
And do you know, in the minute I

314
00:17:42,800 --> 00:17:47,080
in the moment, I not question 
myself, I didn't go, oh God, 

315
00:17:47,080 --> 00:17:48,080
they probably need blah, blah, 
blah. 

316
00:17:48,080 --> 00:17:49,200
I didn't think about any of 
that. 

317
00:17:49,200 --> 00:17:52,080
I was just like, what do I need?
OK, this is what I need to do. 

318
00:17:52,520 --> 00:17:53,960
And then I reflected back on 
that. 

319
00:17:53,960 --> 00:17:58,080
I'm like, holy cow. 
Like that felt so empowering and

320
00:17:58,080 --> 00:18:03,040
so freeing because I didn't 
question, I didn't shame, I 

321
00:18:03,040 --> 00:18:06,360
didn't blame, I didn't try and 
force myself to do stuff. 

322
00:18:06,880 --> 00:18:11,000
And I was like, how much better 
than I feel the next day. 

323
00:18:11,040 --> 00:18:12,960
I was like, I felt like a new 
person. 

324
00:18:13,200 --> 00:18:14,880
Well, that's and that's the 
thing. 

325
00:18:14,880 --> 00:18:16,880
I want us all. 
I hope that everybody who's 

326
00:18:16,880 --> 00:18:18,880
listening gets this right 
Because sure, we're talking 

327
00:18:18,880 --> 00:18:20,880
about POTS. 
We've also talked about prior 

328
00:18:20,880 --> 00:18:24,040
menopause and periods, but this 
could be about anything. 

329
00:18:24,280 --> 00:18:28,320
When you get to that place of 
overwhelm where your brain is 

330
00:18:28,320 --> 00:18:31,720
like, I'm tired and I can't, you
deserve that break. 

331
00:18:31,880 --> 00:18:34,600
You deserve to give that to 
yourself because that's what you

332
00:18:34,600 --> 00:18:36,440
need. 
If you needed to go pee, you 

333
00:18:36,440 --> 00:18:38,360
wouldn't tell yourself, no, I 
have to do this. 

334
00:18:38,360 --> 00:18:41,640
I'm not going to go pee, right? 
So it's like it's understanding 

335
00:18:41,640 --> 00:18:44,880
that those that's part of your 
body's communication to you is 

336
00:18:44,880 --> 00:18:47,680
when, right. 
And what happens when we don't 

337
00:18:47,680 --> 00:18:49,720
pay attention is we do really 
crappy work. 

338
00:18:49,920 --> 00:18:53,080
That's what I want to tell you 
when you show up places and you 

339
00:18:53,080 --> 00:18:55,400
are not your full self. 
You're a crappy friend, you're a

340
00:18:55,400 --> 00:18:58,080
crappy spouse, you're a crappy 
parent, you're a crappy 

341
00:18:58,080 --> 00:19:00,200
everything. 
So you're not even, you showed 

342
00:19:00,200 --> 00:19:02,720
up, but you're not even there 
and doing what you want, the 

343
00:19:02,720 --> 00:19:04,800
person, you're not the person 
you want to be when you're 

344
00:19:04,800 --> 00:19:07,400
there, right? 
And so we have to remember that 

345
00:19:07,400 --> 00:19:10,160
we're doing everybody else a 
favor too by taking that time 

346
00:19:10,160 --> 00:19:13,240
for ourselves because whoever 
you rescheduled with would 

347
00:19:13,240 --> 00:19:16,640
rather be with you when you're 
feeling well, then, you know, 

348
00:19:16,640 --> 00:19:19,160
with you when you can barely, 
you know, keep your eyes open or

349
00:19:19,160 --> 00:19:20,600
stay awake or any of those 
things. 

350
00:19:21,320 --> 00:19:23,840
And so we, I don't know where 
that trap comes from when it 

351
00:19:23,840 --> 00:19:26,000
works for everybody, but we all 
feel like, oh, I shouldn't 

352
00:19:26,000 --> 00:19:27,880
reschedule. 
I should push myself through, 

353
00:19:28,600 --> 00:19:31,560
right? 
I think what are the tips that 

354
00:19:31,560 --> 00:19:34,480
really helped me because 
sometimes I was like, I'm not 

355
00:19:34,480 --> 00:19:37,160
really sure what I need. 
So what I would do because I'm 

356
00:19:37,160 --> 00:19:41,000
like you like my love language 
is giving and I, I gift a lot 

357
00:19:41,000 --> 00:19:43,840
of, you know, time, resources, 
all that kind of stuff. 

358
00:19:43,880 --> 00:19:45,880
That's my love language. 
I'm the same. 

359
00:19:46,360 --> 00:19:50,520
And so I kind of used that and 
instead I flipped it when I 

360
00:19:50,720 --> 00:19:53,120
sometimes if I'm like, I don't 
know what the hell I need. 

361
00:19:53,400 --> 00:19:56,160
I don't know. 
I'm just like, if my really good

362
00:19:56,160 --> 00:19:58,960
friend Becca came to me and said
this is how she was feeling, 

363
00:19:58,960 --> 00:20:04,600
what would I tell her? 
What would I want her to have? 

364
00:20:04,960 --> 00:20:08,280
You know, that kind of thing. 
And when I flipped it, then I 

365
00:20:08,320 --> 00:20:10,440
was immediately like, oh, this, 
this and this. 

366
00:20:11,280 --> 00:20:13,480
Right. 
And because they come that, I 

367
00:20:13,480 --> 00:20:15,920
don't know, we touch on that 
space of all the shame that 

368
00:20:15,920 --> 00:20:19,720
come, right? 
That comes up for us as we are 

369
00:20:19,960 --> 00:20:21,560
processing what's happening to 
us. 

370
00:20:21,720 --> 00:20:26,200
Because the whole world is we've
been fooled into believing, 

371
00:20:26,200 --> 00:20:28,040
right? 
This myth about productivity 

372
00:20:28,320 --> 00:20:31,760
that if somehow we are not 
currently producing some kind of

373
00:20:31,760 --> 00:20:35,360
materials, we are, you know, 
just occupying space, for 

374
00:20:35,400 --> 00:20:38,080
instance, that someone else 
could be occupying, right? 

375
00:20:38,440 --> 00:20:42,480
And the minute chronic illness 
raises its ugly head into your 

376
00:20:42,480 --> 00:20:48,920
life, you have to reframe how 
you think about rest and what 

377
00:20:48,920 --> 00:20:52,360
you beliefs are around rest, 
right? 

378
00:20:52,800 --> 00:20:56,120
And whose, whose voice is in 
your head, right? 

379
00:20:56,120 --> 00:20:59,840
Like whose repetitive stuff is 
in there. 

380
00:20:59,840 --> 00:21:03,800
Because this, we've talked about
it before, that fear of being 

381
00:21:03,800 --> 00:21:07,720
caught resting like that, 
because that comes up for this 

382
00:21:07,720 --> 00:21:10,880
all the time. 
And yet if we don't rest, we 

383
00:21:10,880 --> 00:21:13,640
don't get better. 
So you have no choice. 

384
00:21:13,680 --> 00:21:17,320
And if you're truly chronically 
I'll, if you don't rest, your 

385
00:21:17,320 --> 00:21:21,440
illness will make sure that you 
rest one way or another. 

386
00:21:21,680 --> 00:21:25,640
And so it's about can I choose 
one to rest or do I let my 

387
00:21:25,640 --> 00:21:27,440
chronic illness juice when I 
rest? 

388
00:21:29,240 --> 00:21:32,160
It it's you know your health is 
your wealth, right? 

389
00:21:32,160 --> 00:21:34,960
And I didn't even plan this, but
y'all I've got on the perfect 

390
00:21:34,960 --> 00:21:38,200
T-shirt for today. 
My T-shirt says hustle at the 

391
00:21:38,200 --> 00:21:41,440
top and has a line through it 
and underneath it real big. 

392
00:21:41,440 --> 00:21:44,960
It has a line. 
Yeah, that is it. 

393
00:21:46,640 --> 00:21:49,480
And I think that's one of the 
things, and this is where I 

394
00:21:49,480 --> 00:21:54,560
really struggled because I've 
had that productivity and 

395
00:21:54,560 --> 00:21:59,280
performance equated to my love 
ability and my worthiness, my 

396
00:21:59,280 --> 00:22:05,280
value, right? 
And when I, it was complete, 

397
00:22:05,280 --> 00:22:07,440
like all of my chronic 
conditions, it was like the 

398
00:22:07,440 --> 00:22:10,800
perfect storm and my entire body
shut down and I was bedridden 

399
00:22:10,800 --> 00:22:12,080
and I couldn't even lift my 
hands. 

400
00:22:12,080 --> 00:22:14,840
I had two little kids at home 
and, you know, my husband was 

401
00:22:14,840 --> 00:22:17,120
overseas. 
And this was just like the 

402
00:22:17,200 --> 00:22:20,920
absolute worst. 
And there was this part of me, 

403
00:22:20,920 --> 00:22:24,680
and I remember it was about two 
full years, honestly, of just 

404
00:22:24,680 --> 00:22:32,600
this horrible internal 
viciousness beeping myself up 

405
00:22:32,680 --> 00:22:37,040
every day because my body, I 
felt like my body had betrayed. 

406
00:22:37,840 --> 00:22:39,440
Yeah. 
Who had quit? 

407
00:22:39,640 --> 00:22:45,920
It was revolting against me. 
And when I flipped that 

408
00:22:45,920 --> 00:22:49,080
perspective, thanks to some 
really beautiful people in my 

409
00:22:49,080 --> 00:22:53,800
life who said, feel like there 
might be a different way to look

410
00:22:53,800 --> 00:22:56,440
at this. 
This isn't your body betraying 

411
00:22:56,440 --> 00:22:57,360
you. 
Perhaps. 

412
00:22:57,520 --> 00:23:01,280
What if this is your body 
telling you what you need, but 

413
00:23:01,280 --> 00:23:03,280
you just don't know how to 
listen yet? 

414
00:23:06,760 --> 00:23:09,680
Yeah. 
And that if Abby won't, because 

415
00:23:09,680 --> 00:23:12,280
we're so busy listening to 
whatever the other voices out 

416
00:23:12,280 --> 00:23:14,720
there telling us what we're 
supposed to do, what we should 

417
00:23:14,720 --> 00:23:19,720
do, all of these things, right. 
But this is wrapped, I think, 

418
00:23:19,720 --> 00:23:26,880
for me to around a lot of our 
police around aging women, women

419
00:23:26,880 --> 00:23:30,240
and aging, right? 
Gosh forbid that we should need 

420
00:23:30,240 --> 00:23:33,400
more rest because we're getting 
older, right? 

421
00:23:33,400 --> 00:23:36,960
Just for that, right? 
Or that we've, if you want to 

422
00:23:36,960 --> 00:23:40,240
put it in those terms, we've 
earned rest by our years on this

423
00:23:40,240 --> 00:23:43,720
planet, right? 
However we want to talk about 

424
00:23:43,720 --> 00:23:46,760
it, right? 
But aging is a component of 

425
00:23:46,760 --> 00:23:49,240
this. 
You cannot, even if you were a 

426
00:23:49,240 --> 00:23:53,240
quote UN quote productive person
in your 20s that looks different

427
00:23:53,240 --> 00:23:55,800
in your 40s, you don't have the 
same capacity. 

428
00:23:56,440 --> 00:23:59,360
And that's those the job. 
I think that's the lesson in 

429
00:23:59,360 --> 00:24:03,680
chronic illness for me is, you 
know, I don't get to decide the 

430
00:24:03,680 --> 00:24:06,760
speed of thing. 
Sometimes I have to rest, 

431
00:24:07,360 --> 00:24:09,200
sometimes my body has to force 
me. 

432
00:24:11,640 --> 00:24:14,320
But I also spent, and I don't 
know if this is for you, I spent

433
00:24:14,320 --> 00:24:20,760
a lot of years ignoring my meat 
suit and I wanted nothing to do 

434
00:24:20,760 --> 00:24:23,760
with it. 
It was so annoying to me, right 

435
00:24:23,960 --> 00:24:25,920
that I feel like this is my 
lesson. 

436
00:24:25,920 --> 00:24:27,800
And no, you have to pay 
attention to that. 

437
00:24:28,600 --> 00:24:31,560
You don't get tried on. 
Like you don't get to just wear 

438
00:24:31,560 --> 00:24:33,800
it like a suit carrying your 
brain around. 

439
00:24:33,800 --> 00:24:37,280
You have to take care of it. 
This is the lapse because I was 

440
00:24:37,280 --> 00:24:39,440
so jealousy. 
I just want to take my brain out

441
00:24:39,440 --> 00:24:43,520
and put it somewhere else. 
Hey, that I feel very much like 

442
00:24:43,520 --> 00:24:47,600
I am my brain and like it's 
just, you know, inside this meat

443
00:24:47,600 --> 00:24:50,200
suit, but I could take it and 
put it in another meat suit and 

444
00:24:50,200 --> 00:24:52,000
I still feel like me. 
I don't, you know what I mean? 

445
00:24:52,000 --> 00:24:55,800
Like my brain is genuinely who I
feel that I am. 

446
00:24:55,800 --> 00:24:59,400
That's where I feel I exist. 
And this is just like the the I 

447
00:24:59,760 --> 00:25:03,680
don't know, the car that I'm in.
This had the vehicle of for my 

448
00:25:03,680 --> 00:25:07,000
brain. 
The interesting thing, I love 

449
00:25:07,000 --> 00:25:11,760
that we're talking about those. 
So I had this very unusual dream

450
00:25:12,160 --> 00:25:14,600
the other night and I woke up, 
you know, early in the morning 

451
00:25:14,600 --> 00:25:16,160
when you get in that dream 
state. 

452
00:25:16,160 --> 00:25:18,920
And I was sort of in that lucid 
dreaming state where I was like 

453
00:25:18,920 --> 00:25:20,760
conscious, but also still during
new. 

454
00:25:21,640 --> 00:25:26,480
And this very clear image came 
and I didn't want to forget it 

455
00:25:26,480 --> 00:25:29,280
because I've been like, you 
know, the meat suit, the skin 

456
00:25:29,280 --> 00:25:31,280
bag, all that kind of stuff. 
It's just like, I don't know, 

457
00:25:31,320 --> 00:25:35,040
it's just like the brain, which 
was just so beautiful. 

458
00:25:35,040 --> 00:25:39,360
You're going to love it. 
It was the Earth swing. 

459
00:25:40,440 --> 00:25:44,920
This vessel is our earth swing. 
Like I even saw a globe on a 

460
00:25:44,920 --> 00:25:47,520
swing, like moving back and 
forth, and it is standing 

461
00:25:47,520 --> 00:25:48,600
around. 
You know how when you're little 

462
00:25:48,600 --> 00:25:51,880
and you get in the swing and you
spin yourself around and you go 

463
00:25:52,080 --> 00:25:54,000
in every direction, you go high 
or low? 

464
00:25:54,000 --> 00:25:56,920
And I was like, yeah, actually 
that's pretty accurate. 

465
00:25:56,920 --> 00:25:59,040
So I was like, it's my earth 
swing. 

466
00:25:59,640 --> 00:26:03,000
Oh, I like this. 
I like, but that we, I 

467
00:26:03,000 --> 00:26:06,440
genuinely, I know, I don't know 
if you're out there and there 

468
00:26:06,440 --> 00:26:09,840
are typical people listening, do
you feel like you're attached to

469
00:26:09,840 --> 00:26:12,800
like it's all one package or do 
you break 'cause I don't 

470
00:26:12,800 --> 00:26:16,320
necessarily feel that way. 
I feel like my brain was placed 

471
00:26:16,320 --> 00:26:19,920
into this package and I'm you 
know, the package is optional to

472
00:26:19,920 --> 00:26:23,120
me. 
You you like I feel like could 

473
00:26:23,120 --> 00:26:25,160
be that brain in a jar, you 
smooth beer. 

474
00:26:25,720 --> 00:26:27,480
So I'd be fine. 
I wouldn't have to deal with 

475
00:26:27,480 --> 00:26:28,800
pops. 
It would all be great. 

476
00:26:29,600 --> 00:26:31,480
I mean. 
Honestly, I think if I could do 

477
00:26:31,480 --> 00:26:34,240
that, I like, I'll just want to 
have like one of those bionic 

478
00:26:34,240 --> 00:26:35,560
bodies. 
Right. 

479
00:26:36,120 --> 00:26:39,120
Yeah. 
But like, how do we reframe 

480
00:26:39,120 --> 00:26:42,880
this, especially when we're in a
POTS flare? 

481
00:26:42,880 --> 00:26:46,720
Because, you know, if it's not 
just a couple of days, if you're

482
00:26:46,720 --> 00:26:51,200
in a flare that's lasting for a 
long time, you and I both had 

483
00:26:51,200 --> 00:26:53,840
those. 
There's a lot of crud that comes

484
00:26:53,840 --> 00:26:57,520
up because you're you can 
navigate the whole belief system

485
00:26:57,520 --> 00:27:00,520
and the Shane stuff and give 
yourself some rest for a short 

486
00:27:00,520 --> 00:27:03,240
time. 
But there's this point of time, 

487
00:27:03,880 --> 00:27:06,920
but we hit it and all of a 
sudden it's like no longer 

488
00:27:06,920 --> 00:27:08,680
acceptable. 
Yeah. 

489
00:27:09,200 --> 00:27:13,400
Well, that is I think for me is 
about understanding your new 

490
00:27:13,400 --> 00:27:16,600
normal, which is a terrible way 
to say excite the word normal. 

491
00:27:17,160 --> 00:27:19,840
But when you have chronic 
illness, when you enter 

492
00:27:19,840 --> 00:27:25,080
perimenopause, all of it, right,
you're adjusting to a new 

493
00:27:25,080 --> 00:27:28,400
normal. 
So your standards, what you were

494
00:27:28,400 --> 00:27:31,960
holding yourself to before have 
to change. 

495
00:27:32,360 --> 00:27:34,960
And if you don't change them 
now, you're holding yourself to 

496
00:27:34,960 --> 00:27:37,560
old standards that you can't 
possibly attain anymore. 

497
00:27:38,160 --> 00:27:39,920
And that's I think our grave 
mistake. 

498
00:27:40,200 --> 00:27:43,120
We have to, you know, you might 
have been, it's again, you might

499
00:27:43,120 --> 00:27:45,640
have been one thing in your 20s,
but now you're in your 40s and 

500
00:27:45,640 --> 00:27:49,360
you have to kind of reframe the 
whole thing and what your 

501
00:27:49,360 --> 00:27:52,400
capacity is, what you want to be
doing, how much of that. 

502
00:27:52,400 --> 00:27:55,000
So when you're, I think in a 
especially when you're in an 

503
00:27:55,000 --> 00:27:57,720
extended flare, it's easy to 
land in depression. 

504
00:27:58,400 --> 00:28:02,800
What is my purpose? 
Am I even bothering, right? 

505
00:28:03,040 --> 00:28:06,000
I don't even waste. 
I used to say I'm just a waste 

506
00:28:06,000 --> 00:28:08,360
of oxygen. 
I'm just thinking up somebody 

507
00:28:08,360 --> 00:28:11,600
else's air, right? 
And things like that. 

508
00:28:11,600 --> 00:28:14,440
And it's easy to go into that. 
But again, that's attached to 

509
00:28:14,440 --> 00:28:19,120
that productivity thing, right? 
It's when you're only resting 

510
00:28:19,120 --> 00:28:21,600
for too long. 
If you feel like you should be 

511
00:28:21,600 --> 00:28:24,760
doing something else or be 
somewhere else, right? 

512
00:28:25,240 --> 00:28:28,920
And So what I say to people is 
you have to create a new 

513
00:28:28,920 --> 00:28:31,800
standard, a new set of normal. 
And if that means you nap every 

514
00:28:31,800 --> 00:28:35,280
day and that's your new normal, 
then you nap every day and that 

515
00:28:35,320 --> 00:28:38,080
is your new normal. 
And it's not about a standard, 

516
00:28:38,600 --> 00:28:41,160
you know? 
These standards and 

517
00:28:41,160 --> 00:28:43,640
expectations, oh man, they could
be so heavy. 

518
00:28:44,000 --> 00:28:47,560
You know, one of the things I 
love, and I know that you have 

519
00:28:47,560 --> 00:28:49,440
this experience too, in your 
groups. 

520
00:28:49,880 --> 00:28:53,840
And it's like the genius, the 
wisdom that comes from our 

521
00:28:53,840 --> 00:28:57,960
collective conversations. 
And the other day in our 

522
00:28:57,960 --> 00:29:01,600
alignment Sundays group, we were
talking about some hard stuff 

523
00:29:01,840 --> 00:29:05,080
and one of our members shared a 
phrase that they had heard 

524
00:29:05,080 --> 00:29:07,240
recently. 
And I was like, that's so good. 

525
00:29:07,760 --> 00:29:15,920
And she said if they could, they
would like, Oh my gosh. 

526
00:29:15,920 --> 00:29:19,600
You know, like sometimes if 
somebody's hurt your feelings or

527
00:29:19,600 --> 00:29:23,200
maybe they did something or you 
know, I was thinking about this 

528
00:29:23,200 --> 00:29:25,720
from a plots fleer. 
It's like the days that I need 

529
00:29:25,720 --> 00:29:28,000
to rest, you know, if I could do
something, I would. 

530
00:29:28,000 --> 00:29:33,800
But today I I'm and that's OK. 
Like pushing yourself isn't, 

531
00:29:33,960 --> 00:29:36,360
isn't the norm. 
That shouldn't be acceptable 

532
00:29:36,360 --> 00:29:38,720
behavior, pushing yourself past 
your limits. 

533
00:29:39,240 --> 00:29:42,120
And yet we're all asked really 
from a young age to push 

534
00:29:42,120 --> 00:29:45,560
ourselves fast. 
I, I really, I feel like it 

535
00:29:45,560 --> 00:29:48,160
starts pressing school, like we 
don't get to school really 

536
00:29:48,160 --> 00:29:50,200
because we need some place to 
send them all their parents 

537
00:29:50,200 --> 00:29:53,760
work, right? 
I'm asking kids to sit for that 

538
00:29:53,760 --> 00:29:56,800
many hours, right? 
And and it's beyond their 

539
00:29:56,800 --> 00:29:58,720
capacity. 
So we get used. 

540
00:29:58,880 --> 00:30:01,400
To that way. 
Right. 

541
00:30:01,400 --> 00:30:05,800
I mean, it's and so we can't, we
have to, you know, pushing 

542
00:30:05,800 --> 00:30:08,840
through is something we're told 
and taught to do so early on. 

543
00:30:09,120 --> 00:30:11,480
And that's I think the piece 
that we have to change for 

544
00:30:11,480 --> 00:30:14,280
ourselves, right? 
That's not fair. 

545
00:30:14,720 --> 00:30:17,720
We have limit because you're 
human, and that's OK. 

546
00:30:19,720 --> 00:30:24,120
So what's something right now 
that you are in the process of 

547
00:30:24,200 --> 00:30:29,760
unlearning around your needs or 
anything? 

548
00:30:30,640 --> 00:30:37,920
Think you know I am a natural 
helper person and I am not 

549
00:30:37,920 --> 00:30:42,480
someone who accepts help well. 
So like, I give help, fantastic.

550
00:30:42,480 --> 00:30:47,720
I will help every, but I am not 
an asker of help. 

551
00:30:47,960 --> 00:30:51,800
Like there I still am working 
around the shame of needing help

552
00:30:51,800 --> 00:30:55,960
and needing support. 
I think probably because I'm 

553
00:30:56,000 --> 00:30:57,800
always need support for weird 
things. 

554
00:30:57,800 --> 00:31:02,920
That was like the things I asked
for support around and probably 

555
00:31:02,920 --> 00:31:05,760
even until the day if I told 
people some of the things I need

556
00:31:05,760 --> 00:31:07,960
support around, they would 
really judge around it. 

557
00:31:08,280 --> 00:31:11,000
So really that's something I'm 
still working on and something 

558
00:31:11,000 --> 00:31:14,960
that I need to be humble about 
because when I am in a flare, I 

559
00:31:14,960 --> 00:31:17,880
really need help. 
I can't get up a million times. 

560
00:31:18,280 --> 00:31:20,080
I have to make sure I'm 
hydrating. 

561
00:31:20,240 --> 00:31:22,240
I have to, right? 
There are things that I, I have 

562
00:31:22,240 --> 00:31:23,920
to do in a flare to get out of 
the flare. 

563
00:31:24,920 --> 00:31:26,880
And so I do need help and 
support for those things. 

564
00:31:26,880 --> 00:31:29,800
So that's something that me and 
my little ego need to work on 

565
00:31:30,120 --> 00:31:32,560
about not asking for help for 
ourselves. 

566
00:31:33,920 --> 00:31:40,480
What about you? 
I am in the place of practicing 

567
00:31:40,600 --> 00:31:47,440
that more frequently as I've 
gotten to place of uncomfortable

568
00:31:47,440 --> 00:31:53,920
and knowing that I can ask, I'm 
good with that part, but I don't

569
00:31:53,920 --> 00:31:58,240
practice actually asking because
I'm like, who do I ask? 

570
00:31:58,240 --> 00:32:00,960
So part of sort of what I'm 
unlearning and part of this 

571
00:32:00,960 --> 00:32:04,800
process for me has been who do I
identify? 

572
00:32:04,800 --> 00:32:07,520
So I just kind of started 
preemptively working on a list 

573
00:32:07,520 --> 00:32:09,680
around this, I don't know, a 
couple months ago. 

574
00:32:09,680 --> 00:32:12,920
And it's like, well, if I need 
this kind of help, who would be 

575
00:32:12,920 --> 00:32:17,080
the person I would want to ask? 
And so that way when I do need 

576
00:32:17,080 --> 00:32:19,320
it, I've already got something 
to go back to. 

577
00:32:19,840 --> 00:32:23,640
But for me, it's kind of like, 
OK, pause for a minute. 

578
00:32:24,400 --> 00:32:27,000
What do you need? 
What? 

579
00:32:27,200 --> 00:32:30,000
Who's person that you can ask 
for this and then actually go 

580
00:32:30,000 --> 00:32:34,480
ask them? 
Not just a theory, I'm saying. 

581
00:32:35,640 --> 00:32:39,440
Right, this is a great person, 
but I you can't get frozen and 

582
00:32:39,440 --> 00:32:43,560
they ask right, You have to make
sure we and there is around that

583
00:32:43,560 --> 00:32:46,520
whole piece, right? 
We have we have work to do all 

584
00:32:46,520 --> 00:32:49,720
of us, because I think many 
people are willing to get help, 

585
00:32:49,720 --> 00:32:51,560
but so few people are willing to
ask. 

586
00:32:51,560 --> 00:32:54,560
We have trained ourselves to 
believe it's a weakness to need 

587
00:32:54,560 --> 00:32:58,640
assistant, right? 
And that we shouldn't and 

588
00:32:58,640 --> 00:33:01,440
layered, we shouldn't show our 
weakness to anybody. 

589
00:33:01,640 --> 00:33:03,840
So we shouldn't ask for help. 
Someone shouldn't know. 

590
00:33:04,480 --> 00:33:05,840
And I think that's a huge 
mistake. 

591
00:33:06,000 --> 00:33:09,200
I think that's a terrible habit 
to me and I am desperately 

592
00:33:09,200 --> 00:33:10,800
working. 
I'm asking. 

593
00:33:12,400 --> 00:33:15,760
OK, So collectively as a 
community here together and 

594
00:33:15,760 --> 00:33:18,840
things that really matter, Becca
and I are not going to be the 

595
00:33:18,840 --> 00:33:20,840
chief standing alone here. 
We hope will. 

596
00:33:20,840 --> 00:33:23,400
Not. 
Let's do this together. 

597
00:33:23,400 --> 00:33:27,920
Let's find a way that we can, 
can support one another in this.

598
00:33:28,000 --> 00:33:31,800
And for me, I think sometimes, 
Oh my gosh, when we talk about 

599
00:33:31,800 --> 00:33:34,600
how do we advocate for 
ourselves, you know, how do we 

600
00:33:35,200 --> 00:33:39,600
have connection with, with other
people, especially when it comes

601
00:33:39,600 --> 00:33:44,000
to like when we're in a flare. 
So Becca, how do you explain 

602
00:33:44,000 --> 00:33:48,240
POTS to other people who don't 
have it or aren't familiar with 

603
00:33:48,240 --> 00:33:50,520
it when you're in a flare and 
you need some help and they're 

604
00:33:50,520 --> 00:33:52,280
like, what the heck do you need 
to do that for? 

605
00:33:52,280 --> 00:33:57,600
You did it 2 days ago, right? 
I have noticed that if I truly 

606
00:33:57,600 --> 00:34:01,040
am in a flare and I actually 
need something, that I do my 

607
00:34:01,040 --> 00:34:03,200
darndest not to explain a damn 
thing. 

608
00:34:03,760 --> 00:34:08,280
That is actually because when I 
am in a flare, I need something 

609
00:34:08,280 --> 00:34:11,800
and it is not my responsibility 
to educate you in that moment, 

610
00:34:12,159 --> 00:34:16,520
right? 
So. 

611
00:34:16,600 --> 00:34:19,320
Oh, happily educate you around 
POTS. 

612
00:34:19,320 --> 00:34:22,480
I will share resources, right? 
But when I'm in a flare, that is

613
00:34:22,480 --> 00:34:24,880
not my time to educate. 
That's when I have to take care 

614
00:34:24,880 --> 00:34:29,480
of self. 
But at the same time, I also 

615
00:34:29,480 --> 00:34:31,320
need community more than 
anything else. 

616
00:34:31,320 --> 00:34:33,600
So when I'm in a flare, there is
nothing that I love more than 

617
00:34:33,600 --> 00:34:37,080
going into my POTS haste book 
book group and reading everybody

618
00:34:37,080 --> 00:34:39,639
silly memes about all the things
you deal with when you're 

619
00:34:39,639 --> 00:34:42,560
chronically I'll because it 
takes away that isolation. 

620
00:34:42,560 --> 00:34:46,440
Here you are stuck in bed, all 
of these things, but then you 

621
00:34:46,440 --> 00:34:47,920
see there's other people stuck 
in bed. 

622
00:34:48,120 --> 00:34:50,639
They're stuck in bed far away 
from you, but they are also 

623
00:34:50,639 --> 00:34:53,760
having these thoughts or these 
conversations or these thinking.

624
00:34:54,800 --> 00:34:57,720
And that always makes me laugh 
and it always makes me remember 

625
00:34:57,720 --> 00:34:59,720
I'm not alone in it. 
And then I'm not crazy. 

626
00:34:59,720 --> 00:35:03,000
Other people are having these 
symptoms and all of those 

627
00:35:03,000 --> 00:35:05,120
things. 
And a lot of the time the 

628
00:35:05,120 --> 00:35:10,200
solutions for many of my 
problems, mind, my mind 

629
00:35:10,200 --> 00:35:12,680
community, when I see other 
people posting, right, You'll 

630
00:35:12,680 --> 00:35:17,640
see, oh, someone found this in a
couple of you know, this thing 

631
00:35:17,680 --> 00:35:20,640
and or this way to calculator, 
this way to track. 

632
00:35:20,960 --> 00:35:24,480
And then you can find options 
for yourself and you know that 

633
00:35:24,480 --> 00:35:26,720
there's somebody else out there 
is thinking about it as much as 

634
00:35:26,720 --> 00:35:30,960
you are at the close at 7:00. 
So I to me, that's the key for 

635
00:35:30,960 --> 00:35:34,880
me is I'm reminding myself that 
I'm not alone because when I 

636
00:35:34,880 --> 00:35:37,600
start to feel alone and I bleed 
it, I go into that depression 

637
00:35:37,600 --> 00:35:41,200
mode where why am I here? 
Why am I doing all the things 

638
00:35:41,200 --> 00:35:44,600
I'm doing? 
Yeah, absolutely. 

639
00:35:44,600 --> 00:35:50,880
It's, it's one of the reasons 
that I, I'm such a huge advocate

640
00:35:50,880 --> 00:35:54,560
and champion of the invisible 
disabilities organization. 

641
00:35:54,560 --> 00:35:59,280
And I have joined their campaign
for the last two years. 

642
00:35:59,280 --> 00:36:03,680
And it's, it's important because
I think we can't do these things

643
00:36:03,680 --> 00:36:05,680
sometimes when we're in a flare,
we just don't have the energy 

644
00:36:05,680 --> 00:36:07,760
and that's not where our 
capacity needs to go. 

645
00:36:08,160 --> 00:36:10,440
And there's plenty of other 
times, you know, like when you 

646
00:36:10,480 --> 00:36:13,920
are feeling well, those are 
great times to advocate in a way

647
00:36:13,920 --> 00:36:17,080
that works for you. 
You know, like my, my friend Rex

648
00:36:17,080 --> 00:36:19,080
scanner. 
I, I love them so much. 

649
00:36:19,400 --> 00:36:21,840
They were like, there are times 
I just don't feel safe. 

650
00:36:21,840 --> 00:36:24,000
There's times I just don't have 
the energy, the brain width, the

651
00:36:24,000 --> 00:36:25,560
capacity. 
But I can wear a T-shirt. 

652
00:36:26,240 --> 00:36:31,080
Yep, you know, I just something 
that simple or just, you know, a

653
00:36:31,080 --> 00:36:34,480
general like just image post and
leave it at that. 

654
00:36:35,520 --> 00:36:40,120
And you got to remember, we were
always because so few people 

655
00:36:40,120 --> 00:36:43,200
really know about like POTS and 
M casts and LR Stanlow's 

656
00:36:43,200 --> 00:36:46,360
hypermobility, all of the Co 
occurring conditions that show 

657
00:36:46,360 --> 00:36:50,240
up in our lives. 
People just on average aren't 

658
00:36:50,240 --> 00:36:54,640
very well educated in our human 
bodies to begin with. 

659
00:36:54,920 --> 00:36:57,000
You know, we don't get about 
these things in school. 

660
00:36:57,680 --> 00:37:01,400
And because we are struggling 
with them, we become the experts

661
00:37:01,400 --> 00:37:03,080
on this. 
I mean, we honestly, we did the 

662
00:37:03,080 --> 00:37:05,200
deep dives, we do the research, 
all this stuff. 

663
00:37:05,200 --> 00:37:07,840
And we're always going to know. 
I mean, I see this in our POTS 

664
00:37:07,840 --> 00:37:11,040
groups all the time they were 
in, it's like, Oh my gosh, I had

665
00:37:11,040 --> 00:37:13,360
to educate my doctor. 
How many times did we go? 

666
00:37:13,360 --> 00:37:16,920
And we are educating our medical
professionals on how to treat us

667
00:37:16,920 --> 00:37:19,640
right? 
And it's just, it's exhausting. 

668
00:37:20,080 --> 00:37:23,120
And so really that's something I
love that you shared that back 

669
00:37:23,120 --> 00:37:24,680
out. 
We have to really think about. 

670
00:37:24,760 --> 00:37:29,280
It's not my job to educate you, 
but it is my job to let you know

671
00:37:29,280 --> 00:37:32,040
what the boundaries are and what
I need in 1X. 

672
00:37:33,040 --> 00:37:34,600
Right. 
Like, that's, I think there's a 

673
00:37:34,600 --> 00:37:38,080
time and place, but it happened 
to me also when I got my autism 

674
00:37:38,080 --> 00:37:41,040
diagnosis right. 
There was a sudden expectation 

675
00:37:41,040 --> 00:37:44,360
that then I was an expert in 
autism and I had all the answers

676
00:37:44,360 --> 00:37:47,240
around everything for all right,
just because I had it. 

677
00:37:47,480 --> 00:37:50,800
And it's not my job as an 
autistic person to educate. 

678
00:37:50,920 --> 00:37:53,640
Have I now chosen it as my job? 
Yeah. 

679
00:37:53,920 --> 00:37:58,040
But it is not my inherent 
obligation as an autistic person

680
00:37:58,040 --> 00:38:01,040
to educate. 
And so I am fascinated by the 

681
00:38:01,040 --> 00:38:03,840
amount of people who ask 
questions to an autistic person 

682
00:38:03,840 --> 00:38:11,920
when they're in meltdown. 
The the most understanding, the 

683
00:38:11,920 --> 00:38:14,240
least, whatever. 
And that's how I feel when I'm 

684
00:38:14,240 --> 00:38:17,600
in a flare and someone asked, 
what do I mean by Bob, 'cause I 

685
00:38:17,600 --> 00:38:20,080
don't feel good and I don't have
the patience. 

686
00:38:20,080 --> 00:38:22,240
And I'm like, thus trying to 
take care of myself. 

687
00:38:22,520 --> 00:38:24,960
And so I do remind myself, I 
don't have to. 

688
00:38:25,840 --> 00:38:27,080
I just have to tell you what I 
need. 

689
00:38:27,080 --> 00:38:29,360
And if you're not able to help 
me with what I need, then I need

690
00:38:29,360 --> 00:38:31,680
to move on 'cause I have to take
care of myself right now. 

691
00:38:32,240 --> 00:38:34,840
You know, and there's a time and
a place when, if I'm feeling 

692
00:38:34,840 --> 00:38:38,120
well, I would gladly speak an 
hour and a half on POTS and what

693
00:38:38,120 --> 00:38:39,760
it is. 
And that would impacts me and 

694
00:38:39,760 --> 00:38:42,680
all of those things. 
And so we need to remember that 

695
00:38:42,680 --> 00:38:44,400
we're allowed to put that 
boundary up. 

696
00:38:44,720 --> 00:38:47,000
You know, just 'cause I have the
information doesn't mean you 

697
00:38:47,000 --> 00:38:52,200
deserve to get it right now. 
I mean, right, 'cause Google it,

698
00:38:52,360 --> 00:38:53,560
right? 
Exactly. 

699
00:38:56,200 --> 00:38:59,520
Yeah. 
I mean, and I think that one of 

700
00:38:59,520 --> 00:39:02,080
the things that makes a big 
difference, you know, like you 

701
00:39:02,080 --> 00:39:05,800
said, we do tend to isolate when
we're not feeling well because 

702
00:39:05,800 --> 00:39:09,400
it takes energy, it takes that 
capacity to be with other 

703
00:39:09,400 --> 00:39:11,320
people. 
And so that's exhausting. 

704
00:39:11,320 --> 00:39:14,560
And sometimes it's even my 
sensory system and all this 

705
00:39:14,560 --> 00:39:18,520
stuff happening during a flare 
up is just like, no, I, I can't 

706
00:39:18,520 --> 00:39:20,960
be around other people. 
Just too hot. 

707
00:39:25,960 --> 00:39:28,720
No, But if I'm in my ludial 
phase, it's for your safety and 

708
00:39:28,720 --> 00:39:31,800
I'm not. 
It's really, you know, you know 

709
00:39:31,800 --> 00:39:33,960
yourself. 
And so we have to call those 

710
00:39:33,960 --> 00:39:35,880
limits, you know, and it's when 
you have POTS. 

711
00:39:36,680 --> 00:39:39,160
Like if I had to go somewhere 
where I had to wear specific 

712
00:39:39,160 --> 00:39:41,320
clothes when I'm in a POTS 
flare, why not? 

713
00:39:41,880 --> 00:39:48,840
No, no, because no, I need like 
I need be. 

714
00:39:50,120 --> 00:39:53,000
I need to not be in anything. 
That's weird feeling. 

715
00:39:53,000 --> 00:39:57,480
No, nothing too tight, right? 
It's a situation. 

716
00:39:59,360 --> 00:40:01,880
Oh my gosh. 
And and just like the days where

717
00:40:02,800 --> 00:40:04,800
the. 
The blood and everything isn't 

718
00:40:04,800 --> 00:40:07,600
pooling in my legs and my 
extremities and I can't quite 

719
00:40:07,640 --> 00:40:10,520
you and I have to wrestle myself
into those Dang Ted hose. 

720
00:40:10,520 --> 00:40:15,480
Joel, I live in central Alabama 
in the another circle of heat L 

721
00:40:15,480 --> 00:40:19,720
and humidity and I am wrestling 
myself, my little fluffy body 

722
00:40:19,800 --> 00:40:23,320
into these Dang Ted hose. 
And it is just like, Oh my gosh.

723
00:40:23,560 --> 00:40:26,880
I actually saw in our pots 
Facebook, one of the pots 

724
00:40:26,880 --> 00:40:29,120
Facebook groups, somebody had 
somebody's from about two 

725
00:40:29,120 --> 00:40:32,120
different designs for something.
You put the Ted hose on and then

726
00:40:32,120 --> 00:40:35,000
slide it up so you're not like 
wrestling and choking yourself 

727
00:40:35,000 --> 00:40:36,480
to death. 
Because I feel like I'm 

728
00:40:36,480 --> 00:40:39,320
suffocating when I put those 
things on because I have like 

729
00:40:39,320 --> 00:40:42,920
constriction stuff. 
It it's almost like, OK, maybe 

730
00:40:43,080 --> 00:40:46,400
maybe I'll try that, you know? 
And there's just things you can 

731
00:40:46,400 --> 00:40:48,880
get in community that you can't 
get anywhere else. 

732
00:40:48,880 --> 00:40:55,720
And I think it's also one of the
places where when I felt really 

733
00:40:55,720 --> 00:40:59,440
invalidated, especially by 
medical appointments and things 

734
00:40:59,440 --> 00:41:04,320
like, I, I needed community. 
I needed to know other people 

735
00:41:04,320 --> 00:41:07,400
saw me, Like, I wasn't 
experiencing like, like this 

736
00:41:07,400 --> 00:41:09,800
crazy thing. 
And somebody looks at me, you 

737
00:41:09,800 --> 00:41:13,280
know, like at the doctor's 
office, like a third eye or 

738
00:41:13,280 --> 00:41:16,400
something. 
Yeah, when not, there is nothing

739
00:41:16,400 --> 00:41:18,800
that feels better than saying 
you have a weird symptom like 

740
00:41:18,800 --> 00:41:21,840
your teeth hurt, typing it into 
your Facebook group and having 

741
00:41:21,840 --> 00:41:26,920
everybody Oh yes, yes, right, 
'cause you're like, please, you 

742
00:41:26,920 --> 00:41:30,480
understand, right. 
Like thank goodness, and that 

743
00:41:30,480 --> 00:41:33,200
piece is not something that 
anything you can get anywhere 

744
00:41:33,200 --> 00:41:35,880
than community. 
All of those people have stepped

745
00:41:35,880 --> 00:41:38,640
in the shoes, you know, and so 
that's why it feels good. 

746
00:41:38,640 --> 00:41:41,000
It feels like somebody caught 
you, right. 

747
00:41:41,000 --> 00:41:43,160
It feels like you get caught by 
by everything. 

748
00:41:43,160 --> 00:41:46,800
And so that to me is for me one 
of the things that I rely on the

749
00:41:46,800 --> 00:41:49,640
most when I'm having really 
hardcore mental health days 

750
00:41:49,640 --> 00:41:53,520
around either my players or my 
autism, which yes, I still have 

751
00:41:53,520 --> 00:42:00,320
them around my the look check 
in. 

752
00:42:00,320 --> 00:42:03,040
I know Facebook is like an old 
person thing now, but we have 

753
00:42:03,040 --> 00:42:06,760
some really old long standing 
group on there from, you know, 

754
00:42:06,800 --> 00:42:09,480
in our community. 
And when I'm having a bad day, I

755
00:42:09,480 --> 00:42:12,720
go there because I know someone 
else was in a pill, know I'm 

756
00:42:12,720 --> 00:42:17,040
feeling that day, and I can be 
like, yeah, me too, you know? 

757
00:42:18,760 --> 00:42:23,040
And I think just to kind of 
bring this conversation that I, 

758
00:42:23,120 --> 00:42:26,080
I hope has been of great service
to you for listening. 

759
00:42:26,080 --> 00:42:29,200
If you have been experiencing 
some POTS flares this summer, if

760
00:42:29,200 --> 00:42:33,600
you have add any of the stuff I 
cannot shared and maybe some 

761
00:42:33,600 --> 00:42:35,680
different things we want to know
about those two. 

762
00:42:35,680 --> 00:42:39,440
But we also want to talk about 
like, what is success look like 

763
00:42:39,440 --> 00:42:43,320
in a flare because we can really
kind of get caught on all the 

764
00:42:43,320 --> 00:42:47,040
stuff that's not going well. 
But how do we start to be gentle

765
00:42:47,040 --> 00:42:49,720
with ourselves to go, you know 
what, that was a micro win. 

766
00:42:49,720 --> 00:42:54,080
Or I just gave myself permission
to rest and that was a huge 

767
00:42:54,120 --> 00:42:55,920
success. 
Right. 

768
00:42:56,200 --> 00:42:58,920
I mean, we have to package those
things up and look at them 

769
00:42:58,920 --> 00:43:01,160
properly, right? 
A flare is a flare. 

770
00:43:01,160 --> 00:43:04,240
It's going to do its thing and 
it's going to roll through a 

771
00:43:04,240 --> 00:43:06,240
cycle and then at some point it 
will end. 

772
00:43:06,520 --> 00:43:09,640
Are there things we can do to 
support the ending of that? 

773
00:43:09,640 --> 00:43:13,080
Yes, right, they're stupid. 
You can remember to hydrate, you

774
00:43:13,080 --> 00:43:15,240
can remember to put your feet up
right. 

775
00:43:15,240 --> 00:43:17,520
You can remember to lay down 
when it's possible. 

776
00:43:17,760 --> 00:43:19,600
Don't do too much exertion, 
right? 

777
00:43:19,600 --> 00:43:24,240
We can do all of those things, 
but it to me it's the pausing 

778
00:43:24,240 --> 00:43:27,320
and awareness. 
Yes, I am in flair. 

779
00:43:27,320 --> 00:43:31,280
We are acknowledging I am in 
flair, right? 

780
00:43:31,640 --> 00:43:35,760
That to me is a package to win. 
Every time I say to myself, I'm 

781
00:43:35,760 --> 00:43:40,200
not crazy, I don't feel good, I 
am in a flare and I acknowledge 

782
00:43:40,200 --> 00:43:42,480
it and then say, do I need to 
hydrate? 

783
00:43:42,480 --> 00:43:44,600
Do I need electrolytes? 
Should I have a pickle? 

784
00:43:44,880 --> 00:43:46,600
Do I? 
What could I do for myself? 

785
00:43:46,880 --> 00:43:50,320
That's a win to me, 'cause I've 
acknowledged its existence, 

786
00:43:50,520 --> 00:43:52,440
right? 
Which means it's not this all 

787
00:43:52,440 --> 00:43:54,640
powerful thing hanging above me 
anymore. 

788
00:43:55,000 --> 00:43:57,560
You're real, you're happening. 
And just like if I had a 

789
00:43:57,560 --> 00:43:59,920
headache, I would. 
What could I do to make it 

790
00:43:59,920 --> 00:44:01,360
better? 
And that, to me, is a win, 

791
00:44:01,840 --> 00:44:03,520
right? 
If I can get through a flare 

792
00:44:03,520 --> 00:44:07,440
without a just without being 
depressed at all, I consider 

793
00:44:07,440 --> 00:44:10,720
that an even bigger one. 
Oh my gosh, yes. 

794
00:44:12,320 --> 00:44:17,040
One of the things for me that 
has been such a huge way to 

795
00:44:17,040 --> 00:44:22,320
reframe and to really begin to 
look at and and really feel 

796
00:44:22,320 --> 00:44:26,040
successful even in a flare. 
It's been just simply 

797
00:44:26,040 --> 00:44:30,680
acknowledge that the reason that
I have a particular symptom or 

798
00:44:30,680 --> 00:44:34,000
condition is it because I'm 
being punished, isn't because 

799
00:44:34,000 --> 00:44:37,480
I'm a bad person, isn't because 
I did something wrong. 

800
00:44:39,440 --> 00:44:43,800
It's just part of my journey and
it's the way the symptoms flare 

801
00:44:43,800 --> 00:44:46,520
up or just sometimes how my body
is responding to an 

802
00:44:46,520 --> 00:44:49,320
environmental thing. 
It can something that's totally 

803
00:44:49,320 --> 00:44:53,320
out of my control. 
It isn't because I didn't do 

804
00:44:53,320 --> 00:44:58,840
something or I did something 
wrong, because I would be pretty

805
00:44:58,840 --> 00:45:01,160
hard on myself thinking I could 
have prevented this. 

806
00:45:01,160 --> 00:45:03,800
I could have had more water, I 
could have done this, this, you 

807
00:45:03,800 --> 00:45:06,360
know, somehow. 
And that can be really hard. 

808
00:45:06,720 --> 00:45:09,640
Yes, like I could, should have, 
could have or should have done 

809
00:45:09,640 --> 00:45:13,560
more or something, but it's not 
we we shouldn't ratchet like 

810
00:45:13,560 --> 00:45:14,480
punishment. 
You're right. 

811
00:45:14,480 --> 00:45:18,040
It it's very easy for us to take
it as like a personal 

812
00:45:18,400 --> 00:45:21,760
punishment. 
But no, I think there's lessons 

813
00:45:21,760 --> 00:45:24,680
in it for us. 
I think those of us who were 

814
00:45:24,960 --> 00:45:28,520
gifted our chronic illness, 
right, we were given it for a 

815
00:45:28,520 --> 00:45:30,400
reason. 
There's something in it for us. 

816
00:45:30,400 --> 00:45:32,760
There's a lesson to learn. 
And it might just be that we're 

817
00:45:32,760 --> 00:45:35,920
the people that have to show the
world that we're all going too 

818
00:45:35,920 --> 00:45:38,080
fast and that we need to slow 
down. 

819
00:45:40,080 --> 00:45:41,920
Definitely. 
You know, you and I have 

820
00:45:41,920 --> 00:45:44,880
something pretty special coming 
up to help everybody 

821
00:45:44,880 --> 00:45:50,480
intentionally take that choice 
to slow down, to really tap into

822
00:45:50,480 --> 00:45:52,480
yourself. 
And Becca and I are really 

823
00:45:52,480 --> 00:45:54,200
excited. 
We are putting together a 

824
00:45:54,360 --> 00:45:59,280
three-part workshop series, The 
Journey of Self Renewal, and our

825
00:45:59,280 --> 00:46:02,200
first workshops could be coming 
up at the end of September and 

826
00:46:02,200 --> 00:46:03,680
it's going to be the fresh 
start. 

827
00:46:03,680 --> 00:46:07,880
Rewrite the story of you, Becca.
Tell me. 

828
00:46:07,880 --> 00:46:10,160
I mean, you and I were planning 
this and talking about the end 

829
00:46:10,160 --> 00:46:13,080
of the. 
Year, we are going to tackle the

830
00:46:13,080 --> 00:46:14,960
evil monster of negative self 
talk. 

831
00:46:15,120 --> 00:46:18,200
That is what we are going to do.
We are going to tackle that 

832
00:46:18,200 --> 00:46:21,200
monster. 
Talk about how we reprogram that

833
00:46:21,200 --> 00:46:24,360
and how we take control of that 
situation so that the things in 

834
00:46:24,360 --> 00:46:27,280
our life that we're doing are 
choices, not stuff that we feel 

835
00:46:27,280 --> 00:46:30,920
pushed to or are habitually 
doing, which is even worse. 

836
00:46:31,960 --> 00:46:34,160
Well, it totally is. 
I'm so excited about this. 

837
00:46:34,320 --> 00:46:36,640
We're going to make sure that 
y'all have all the information 

838
00:46:36,640 --> 00:46:39,040
that you need coming up in the 
next couple of weeks. 

839
00:46:39,040 --> 00:46:41,720
We'll have that ad on both of 
our social media channels and 

840
00:46:41,720 --> 00:46:43,200
we'll send it out to our e-mail 
list. 

841
00:46:43,480 --> 00:46:46,480
If you're not yet following the 
show, hit the follow button. 

842
00:46:46,480 --> 00:46:49,000
Make sure you do the 
notifications so you don't miss 

843
00:46:49,000 --> 00:46:51,320
anything that we have coming up 
because Beckon are really 

844
00:46:51,320 --> 00:46:54,680
excited about this three-part 
workshop series to help you 

845
00:46:54,680 --> 00:46:59,240
rewrite the story of you to 
obliterate that mean negative 

846
00:46:59,240 --> 00:47:02,600
little voice that's just beaten 
you up inside that really has no

847
00:47:02,600 --> 00:47:05,880
business being there. 
Get out. 

848
00:47:05,880 --> 00:47:07,160
We're going to teach you how to 
do it. 

849
00:47:08,040 --> 00:47:10,200
We are, we're going to do it. 
Take care of y'all, have a 

850
00:47:10,240 --> 00:47:14,640
fabulous month and we'll see you
next month here on things that 

851
00:47:14,640 --> 00:47:16,200
really matter. 
Bye bye. 

852
00:47:16,880 --> 00:47:22,080
It's been quiet. 
Alright, Energy Mastery, let's 

853
00:47:22,080 --> 00:47:26,960
turn the tide. 
Top shelf guests dropping wisdom

854
00:47:26,960 --> 00:47:29,200
bombs. 
Join us next week. 

855
00:47:29,400 --> 00:47:34,440
Where the energy's strong beyond
crying burnout, we're breaking 

856
00:47:34,560 --> 00:47:36,440
free. 
Podcast pumping. 

857
00:47:36,480 --> 00:47:41,680
Follow energy tips and tricks to
push off fight fast pace and 

858
00:47:42,080 --> 00:47:43,440
fun. 
You'll feel alive. 

859
00:47:43,440 --> 00:47:47,080
Energy Mastery. 
Come along for the ride behind 

860
00:47:50,160 --> 00:47:50,880
Beyond. 
We're on the rise. 

861
00:47:50,960 --> 00:47:58,440
Join us as we form our drops. 
Just guests. 

862
00:47:59,040 --> 00:48:01,800
I need to energy throughout our 
past.

