1 00:00:00,100 --> 00:00:03,300 Hey, I'm hyper mobile and if you're listening to this, I'm 2 00:00:03,300 --> 00:00:17,600 guessing you might be too. And if you're not sure what high 3 00:00:17,600 --> 00:00:22,400 probability even is or hsd or heds, well, you've come to the 4 00:00:22,400 --> 00:00:24,900 right place. Welcome to the help. 5 00:00:24,900 --> 00:00:27,600 I'm hyper mobile podcast. My name is Alex and I'm your 6 00:00:27,600 --> 00:00:30,500 hypermobile host and I'm going to be taking you on a journey. 7 00:00:30,800 --> 00:00:33,200 About all things Piper will be related. 8 00:00:33,400 --> 00:00:36,900 We're talking about everything from diagnostic criteria to the 9 00:00:36,900 --> 00:00:40,400 Baton scale to even just like navigating Life as a 10 00:00:40,408 --> 00:00:44,400 high-profile person dealing with with school or work or dating. 11 00:00:44,400 --> 00:00:47,400 We're going to get to everything eventually and it's going to be 12 00:00:47,400 --> 00:00:50,200 a journey. But speaking of Journeys, let's 13 00:00:50,200 --> 00:00:52,300 start by talking a little bit about mine. 14 00:00:53,500 --> 00:00:57,000 I haven't talked much yet about myself because my body isn't 15 00:00:57,000 --> 00:01:00,400 your body and it's been really important for me to keep the 16 00:01:00,400 --> 00:01:03,900 focus on this community and my patient population and not just 17 00:01:03,900 --> 00:01:07,300 my individual experience. But today, I'm going to share a 18 00:01:07,300 --> 00:01:11,700 little bit about who I am, what I do and how I got to working as 19 00:01:11,700 --> 00:01:15,300 an See a path with hypermobile patients, despite my Canadian 20 00:01:15,300 --> 00:01:17,700 accent. I'm a UK registered osteopath. 21 00:01:17,700 --> 00:01:20,700 My clinic office is in marylebone in London and I 22 00:01:20,708 --> 00:01:24,000 specialize in working with patients, with hsd heds and 23 00:01:24,000 --> 00:01:26,300 other disorders diseases and clinical presentations, 24 00:01:26,300 --> 00:01:28,400 involving hypermobile connective tissue. 25 00:01:28,700 --> 00:01:30,200 I do want to stress. I also work with patients 26 00:01:30,200 --> 00:01:32,300 remotely all over the world. So it's been really interesting 27 00:01:32,300 --> 00:01:35,600 getting to learn about different Medical Systems and different 28 00:01:35,600 --> 00:01:37,600 issues people. Or I should say hypermobile 29 00:01:37,600 --> 00:01:41,500 people face all over the world anyways, at the start of my 30 00:01:41,500 --> 00:01:42,000 career. Her. 31 00:01:42,000 --> 00:01:45,300 I was working primarily with sports injuries and specifically 32 00:01:45,300 --> 00:01:48,800 sports injuries in professional athletes and athletic 33 00:01:48,800 --> 00:01:51,600 individuals. However, I started to notice a 34 00:01:51,607 --> 00:01:54,900 pattern and I was getting more and more referrals to me of 35 00:01:54,900 --> 00:01:57,700 patients who had particularly complex or chronic, or what were 36 00:01:57,700 --> 00:02:01,200 deemed to be treatment-resistant injuries and eventually noticed 37 00:02:01,200 --> 00:02:03,800 that these people seem to have something in common, which was 38 00:02:04,100 --> 00:02:07,100 annexed a degree of hypermobile connective tissue affecting 39 00:02:07,100 --> 00:02:09,699 their presentation. Of course, there are other 40 00:02:09,699 --> 00:02:13,100 reasons why injuries can be complex or Treatment-resistant. 41 00:02:13,300 --> 00:02:16,000 But this was something which started to become a bigger 42 00:02:16,000 --> 00:02:20,400 component of my clinical work in terms of my education because 43 00:02:20,400 --> 00:02:23,300 this does really affect my clinical approach quite a bit 44 00:02:23,300 --> 00:02:25,800 actually because my education is being a bit different than most 45 00:02:25,800 --> 00:02:29,100 osteopaths. I've done to four year 46 00:02:29,100 --> 00:02:32,500 university degrees. My first degree was in Canada at 47 00:02:32,500 --> 00:02:35,200 the University of Western Ontario and it was an English 48 00:02:35,200 --> 00:02:38,100 language and literature degree and my primary area of Interest 49 00:02:38,100 --> 00:02:40,100 was 20th century, British and Irish of lit. 50 00:02:40,300 --> 00:02:43,800 If there are any big. English literature enthusiasts 51 00:02:43,800 --> 00:02:47,000 out there. Unfortunately, my mom was 52 00:02:47,000 --> 00:02:49,300 diagnosed with triple negative breast cancer in the second year 53 00:02:49,300 --> 00:02:51,800 of my degree. This was a huge deal for me, of 54 00:02:51,800 --> 00:02:54,600 course, and it started to affect things like what electives I 55 00:02:54,608 --> 00:02:56,500 chose. So I was debating maybe going 56 00:02:56,500 --> 00:02:59,500 into medicine or Health Care related field and I started to 57 00:02:59,500 --> 00:03:01,800 choose science courses for my electives. 58 00:03:01,900 --> 00:03:04,200 So, for all my UK listeners, I do want to stress the North 59 00:03:04,200 --> 00:03:06,600 American University. Degree system is very different. 60 00:03:06,700 --> 00:03:09,900 You often will have, especially in an undergraduate degree, the 61 00:03:09,900 --> 00:03:12,500 ability to take a wide variety. Courses. 62 00:03:12,500 --> 00:03:15,000 And I just started to choose courses, like, physiology and 63 00:03:15,000 --> 00:03:17,400 biology because I wanted to understand the human body 64 00:03:17,400 --> 00:03:19,700 better. I personally had always had some 65 00:03:19,700 --> 00:03:22,200 weird health issues, and we'll talk more in detail about my 66 00:03:22,200 --> 00:03:24,800 journey and other day because it is a long story. 67 00:03:24,900 --> 00:03:28,200 My health started to decline after my mom died, which was 68 00:03:28,200 --> 00:03:30,900 about four months after my first degree ended. 69 00:03:31,400 --> 00:03:35,200 I was unwell and brokenhearted and I went traveling a little 70 00:03:35,200 --> 00:03:39,000 bit and I eventually ended up moving to the UK around this 71 00:03:39,000 --> 00:03:41,000 time. I had some treatment on a 72 00:03:41,000 --> 00:03:44,800 shoulder injury, he and I had previously, had Physiotherapy 73 00:03:44,800 --> 00:03:46,900 and different types of manual therapy treatment, but I had 74 00:03:46,900 --> 00:03:50,000 found that it had made my symptoms worse, not better. 75 00:03:50,000 --> 00:03:52,800 And it had seemed like a very the whole manual therapy. 76 00:03:52,800 --> 00:03:55,700 Field seemed very pointless to me at that time, which I find 77 00:03:55,700 --> 00:03:58,700 quite funny given that now I am technically a manual therapist. 78 00:03:59,000 --> 00:04:03,300 However, the treatment that I had on my shoulder this time led 79 00:04:03,300 --> 00:04:05,400 to some improvement, it didn't fix it. 80 00:04:05,900 --> 00:04:10,400 But it demonstrated to me that it was in theory, fixable maybe, 81 00:04:10,400 --> 00:04:14,600 but improvable, Certainly. So this started to give me hope 82 00:04:14,600 --> 00:04:17,300 that I maybe didn't have to have shoulder pain all the time and 83 00:04:17,300 --> 00:04:20,399 if you've seen my somebody content on social media, I tell 84 00:04:20,399 --> 00:04:23,000 the story about how I was trying to explain to all the manual 85 00:04:23,000 --> 00:04:25,100 therapist I was seeing at the time that my shoulder felt 86 00:04:25,100 --> 00:04:26,200 quote-unquote. Like homeless. 87 00:04:26,200 --> 00:04:28,200 I didn't know how to say stable or unstable. 88 00:04:28,200 --> 00:04:30,400 So I say, it felt homeless because it didn't feel settled. 89 00:04:30,800 --> 00:04:33,300 Anyways, we'll talk again about hypermobile patients and 90 00:04:33,300 --> 00:04:35,900 language and communication and feelings and other time. 91 00:04:36,500 --> 00:04:39,100 But anyways, I started to realize I could fix some things 92 00:04:39,100 --> 00:04:41,700 that we're going on in my body and I started to try to do that. 93 00:04:41,900 --> 00:04:44,400 As I in conjunction with my osteopathy degrees, it was 94 00:04:44,400 --> 00:04:46,000 really interesting. So, I was learning all of these 95 00:04:46,000 --> 00:04:50,200 things and in my spare time I was trying to find ways to make 96 00:04:50,200 --> 00:04:53,400 myself feel better. I did my osteopathy degree in 97 00:04:53,400 --> 00:04:55,400 the UK. It's technically a master's in 98 00:04:55,400 --> 00:04:58,100 osteopathy, and today, I continue to work as a UK 99 00:04:58,100 --> 00:05:00,900 registered osteopath for my clinic office in London, as well 100 00:05:00,900 --> 00:05:04,400 as online with patients. Now, a lot of people I think 101 00:05:04,400 --> 00:05:08,600 would find it weird for a healthcare worker to have an 102 00:05:08,600 --> 00:05:10,600 English literature degree, or a degree in the Arts. 103 00:05:10,900 --> 00:05:13,600 And I've actually had a few People ask if I regret doing my 104 00:05:13,600 --> 00:05:17,500 first degree but I personally believe it was just as important 105 00:05:17,500 --> 00:05:20,300 as my osteopathy degree because my patients are people. 106 00:05:20,400 --> 00:05:23,900 First and foremost. And what is the study of English 107 00:05:23,900 --> 00:05:26,100 literature? If not a study of people were 108 00:05:26,100 --> 00:05:30,500 looking at the thoughts and ideas and the contemplations of 109 00:05:30,500 --> 00:05:34,800 people over time, I like to joke that my English degree was 110 00:05:34,800 --> 00:05:37,200 theory of people. And my osteopathy degree was 111 00:05:37,200 --> 00:05:40,700 applied people and I do believe that this has contributed to my 112 00:05:41,100 --> 00:05:42,700 holistic. Approach that I take with 113 00:05:42,700 --> 00:05:45,500 patients today, of course, I believe that words. 114 00:05:45,500 --> 00:05:47,600 Matter, I wanted to be an English profit actually for a 115 00:05:47,600 --> 00:05:52,400 while and I believe that stories are powerful and as important as 116 00:05:52,400 --> 00:05:56,500 data collection and rigorous statistical analysis is, if 117 00:05:56,500 --> 00:05:58,700 there's one thing I've learned through my work with patients 118 00:05:58,700 --> 00:06:00,400 and connecting with this community online. 119 00:06:00,400 --> 00:06:03,600 It's that stories have the power to change lives. 120 00:06:04,100 --> 00:06:07,200 And speaking of that, I want all of you to know that you have 121 00:06:07,200 --> 00:06:11,400 truly changed mine. I feel so much less alone, and 122 00:06:11,400 --> 00:06:13,100 so much. Less weird because of you. 123 00:06:13,600 --> 00:06:17,100 And I've learned so much from all of the insightful thoughtful 124 00:06:17,100 --> 00:06:19,300 comments that you take the time to leave. 125 00:06:19,800 --> 00:06:22,400 So I just want to thank you for not only making me feel less 126 00:06:22,400 --> 00:06:26,200 alone but for making me a better clinician and a better human 127 00:06:26,200 --> 00:06:28,500 being. And I truly believe that by 128 00:06:28,500 --> 00:06:32,500 connecting about connective tissue disorders, we can change 129 00:06:32,500 --> 00:06:35,800 lives. Before we get into the topic of 130 00:06:35,800 --> 00:06:38,800 this podcast episode which is going to be everything, I wish 131 00:06:38,800 --> 00:06:40,800 people knew in less than 10 minutes. 132 00:06:41,500 --> 00:06:47,300 I I want to stress that, as I said, just now words matter, and 133 00:06:47,400 --> 00:06:50,900 it's important to be thoughtful about which words we use, and 134 00:06:50,900 --> 00:06:54,100 how we use language, you will notice that I've used the word 135 00:06:54,100 --> 00:06:58,100 hypermobile so far, I want to stress that benign. 136 00:06:58,100 --> 00:06:59,500 Higher permeability is very much. 137 00:06:59,500 --> 00:07:02,500 A thing significant percentage of the population is, 138 00:07:02,500 --> 00:07:06,300 hypermobile to some extent and not all of that percentage has 139 00:07:06,400 --> 00:07:11,400 heds or hsd. The reason that I use the word 140 00:07:11,400 --> 00:07:14,500 hyper Mobile instead of something like suspected / 141 00:07:14,500 --> 00:07:19,600 diagnosed heds. /, H, SD is not only because that would be quite 142 00:07:19,600 --> 00:07:23,500 the mouthful, it's because it's essential, it's key to remember 143 00:07:23,500 --> 00:07:26,300 that. A diagnosis is a privilege. 144 00:07:26,600 --> 00:07:30,500 There are going to be people all over the world who cannot access 145 00:07:30,600 --> 00:07:33,200 a diagnosis. It could be because of monetary 146 00:07:33,200 --> 00:07:35,600 restrictions. It could be because of different 147 00:07:36,100 --> 00:07:38,200 cultural issues. It could be because of their 148 00:07:38,200 --> 00:07:42,000 inability to access even basic Medical Care in some Trees. 149 00:07:42,000 --> 00:07:44,300 Okay. So it's key to remember that a 150 00:07:44,300 --> 00:07:47,900 diagnosis is a privilege and that's why I use the word 151 00:07:47,900 --> 00:07:50,600 hypermobile. However, there are people who 152 00:07:50,600 --> 00:07:53,900 are hypermobile, who do not have heds nhst. 153 00:07:54,500 --> 00:07:57,000 And there are also people who are hypermobile who have another 154 00:07:57,000 --> 00:08:00,500 connective tissue disorder or disease, that is not heds or 155 00:08:00,508 --> 00:08:03,100 hsd. So we're using this term because 156 00:08:03,100 --> 00:08:05,200 it's inclusive. It covers everyone. 157 00:08:05,200 --> 00:08:08,400 But I don't want you to think that just because you have one 158 00:08:08,800 --> 00:08:11,400 mildly hypermobile joints. That means that you necessarily 159 00:08:11,400 --> 00:08:15,500 have A disease or a disorder going on, okay? 160 00:08:15,500 --> 00:08:18,200 And this is why good medical management and appropriate, 161 00:08:18,200 --> 00:08:22,800 medical investigation is so important for all of these 162 00:08:22,800 --> 00:08:23,700 issues. Okay? 163 00:08:24,000 --> 00:08:26,100 And again, I don't think I mentioned this earlier, but I'm 164 00:08:26,100 --> 00:08:28,700 going to mention it now. I'm not a medical doctor. 165 00:08:29,000 --> 00:08:33,400 I'm not a doctor of osteopathy. I'm a UK registered osteopath. 166 00:08:33,400 --> 00:08:36,600 Okay. So as always, if you ever hear 167 00:08:36,600 --> 00:08:39,200 anything on this podcast, which makes you concerned about 168 00:08:39,299 --> 00:08:43,799 anything going on in your body. Please seek out appropriate 169 00:08:43,799 --> 00:08:47,800 medical advice from a trusted qualified, healthcare provider. 170 00:08:48,000 --> 00:08:50,500 Okay. Anyways, continuing on, with the 171 00:08:50,500 --> 00:08:52,700 discussion of language, when it comes to things like gender, 172 00:08:52,700 --> 00:08:55,800 sex, pronouns etc, for the purposes of this podcast, I will 173 00:08:55,800 --> 00:08:58,000 try to be in line with the guidelines from the National 174 00:08:58,000 --> 00:08:59,800 Institute of Health. I'm going to try and put the 175 00:08:59,808 --> 00:09:02,100 link in the show notes. You'll notice, this means, I 176 00:09:02,100 --> 00:09:05,300 occasionally use phrases like all genders or all Sexes, and 177 00:09:05,300 --> 00:09:07,800 that's just me trying to be accurate when it comes to this 178 00:09:07,800 --> 00:09:10,900 stuff. If I ever say anything, where 179 00:09:10,900 --> 00:09:12,900 you feel like I didn't I get it right. 180 00:09:13,100 --> 00:09:16,300 Please do feel free to contact me directly again. 181 00:09:16,300 --> 00:09:19,300 I'll try and put my email in the show notes, but you can find me 182 00:09:19,300 --> 00:09:21,300 online. If you're looking for me on 183 00:09:21,300 --> 00:09:24,200 social media, my my account is the hyperbola helpline or 184 00:09:24,200 --> 00:09:27,500 hyperbole helpline on YouTube Instagram and Tick-Tock. 185 00:09:28,100 --> 00:09:32,500 Anyways what you've come for everything, I wish people knew 186 00:09:32,700 --> 00:09:36,900 in less than 10 minutes so this topic actually was inspired from 187 00:09:36,900 --> 00:09:40,400 a life that I did and I had someone ask me hey if we were 188 00:09:40,400 --> 00:09:42,800 just like doing an elevator Her ride and that is all the time we 189 00:09:42,800 --> 00:09:44,100 had. What would you want to tell me 190 00:09:44,100 --> 00:09:45,900 about hypermobility? Like what would you want to 191 00:09:45,900 --> 00:09:47,000 make? Sure I knew. 192 00:09:47,100 --> 00:09:49,700 This is the answer to that. Is it everything? 193 00:09:49,800 --> 00:09:51,600 No. Because guess what? 194 00:09:51,600 --> 00:09:55,400 I have an episode layout of like 30 episodes lined up at this 195 00:09:55,400 --> 00:09:56,800 point. There's a lot to talk about. 196 00:09:56,800 --> 00:10:00,200 But these are a few things which I think people are not aware of 197 00:10:00,200 --> 00:10:03,000 and I want to make sure that you are aware of them. 198 00:10:03,000 --> 00:10:06,800 Okay, you ready. Let's go Point number one. 199 00:10:07,100 --> 00:10:10,500 Incurable does not mean untreatable. 200 00:10:10,800 --> 00:10:15,300 This is the Most important phrase if there's anything that 201 00:10:15,300 --> 00:10:19,600 I leave any type of like Legacy that I leave about working with 202 00:10:19,600 --> 00:10:22,400 hypermobile patients, it's that just because something is 203 00:10:22,400 --> 00:10:25,000 incurable does not mean it's untreatable and whether that's 204 00:10:25,000 --> 00:10:27,500 finding that treatment, that gives that patient a huge 205 00:10:27,500 --> 00:10:29,600 Improvement or even just a treatment, gives that patient a 206 00:10:29,608 --> 00:10:32,700 1% Improvement. It's essential that we fight for 207 00:10:32,700 --> 00:10:34,900 every single Improvement available when it comes to 208 00:10:34,900 --> 00:10:37,000 quality of life. Because as I said earlier, 209 00:10:37,000 --> 00:10:40,200 patients are people and I want everyone to have the best 210 00:10:40,200 --> 00:10:43,300 quality of life possible. Yeah, but if you take five words 211 00:10:43,300 --> 00:10:46,500 away from this podcast, the phrase of the day is incurable 212 00:10:46,800 --> 00:10:51,900 does not mean untreatable. Okay Point number two because I 213 00:10:51,900 --> 00:10:55,000 get this all the time in the comments on social media, the 214 00:10:55,000 --> 00:10:58,200 Baton scale hate, the Baton scale. 215 00:10:58,400 --> 00:11:01,600 The Baton scale is just a test for generalized joint 216 00:11:01,600 --> 00:11:05,500 hypermobility. It is not a diagnostic 217 00:11:05,500 --> 00:11:09,700 assessment for heds or hsd. It is a tool. 218 00:11:09,700 --> 00:11:11,600 It's a measurement that can be used to control. 219 00:11:11,800 --> 00:11:15,300 Butte to the understanding of a patient's hypermobility, but 220 00:11:15,300 --> 00:11:17,900 that's all it is. It's certainly not perfect and I 221 00:11:17,908 --> 00:11:19,900 would say it's actually potentially a bit flawed and 222 00:11:19,900 --> 00:11:22,300 we'll talk about that more. We will do a whole episode on 223 00:11:22,300 --> 00:11:25,100 the bait and scale but if you're one of those patients and you 224 00:11:25,100 --> 00:11:27,000 spoke with the health care provider and they did a painting 225 00:11:27,000 --> 00:11:29,700 scale and you failed it but you're not feeling well and you 226 00:11:29,708 --> 00:11:32,300 keep seeing my content or you keep, you know, having things 227 00:11:32,300 --> 00:11:35,200 that make you think you might be, hypermobile please remember 228 00:11:35,200 --> 00:11:39,300 that, the bait and scale, is simply one way of looking at 229 00:11:39,300 --> 00:11:42,900 high permeability in a patient and it is no Way diagnostic. 230 00:11:43,000 --> 00:11:45,700 Okay. Now Point number three, 231 00:11:46,400 --> 00:11:49,400 hypermobile connective tissue affects multiple systems 232 00:11:49,400 --> 00:11:53,200 throughout your body, including your gastrointestinal system, 233 00:11:53,200 --> 00:11:56,400 your cardiovascular system, your immune system and your 234 00:11:56,400 --> 00:11:59,100 neurological system and more systems. 235 00:11:59,100 --> 00:12:02,200 It affects almost everything in your body in some way or another 236 00:12:02,300 --> 00:12:06,900 this is because connective tissue as per the name connects 237 00:12:06,900 --> 00:12:09,500 things. And if we look at just a very 238 00:12:09,500 --> 00:12:12,100 simple way of structure like a peripheral nerve, We have heard 239 00:12:12,100 --> 00:12:16,100 of your median nerve, or the very famous sciatic nerve nerves 240 00:12:16,100 --> 00:12:18,300 are connective tissue structures. 241 00:12:18,400 --> 00:12:20,800 Almost as much as their neurological structures. 242 00:12:21,200 --> 00:12:24,600 A peripheral nerve has a wrapping of connective tissue. 243 00:12:25,200 --> 00:12:27,400 So, again, I don't know why we're not talking about 244 00:12:27,400 --> 00:12:29,700 connective tissue and we're seeing patients, who are having 245 00:12:29,700 --> 00:12:31,100 some issues going on with their nerves? 246 00:12:31,100 --> 00:12:34,300 At something that really really we need to talk about more but 247 00:12:34,300 --> 00:12:38,800 always remember that. Hypermobile connective tissue 248 00:12:38,900 --> 00:12:40,600 diseases. Disorders conditions, whatever 249 00:12:40,600 --> 00:12:42,300 they're not just a muscle in Joint thing. 250 00:12:42,800 --> 00:12:47,100 They are multi-systemic thing, which affects unfortunately, 251 00:12:47,100 --> 00:12:51,800 every patient in different ways and this is partly why they are 252 00:12:51,900 --> 00:12:55,400 often missed. Anyways, moving on, you will 253 00:12:55,400 --> 00:12:59,400 hear me talk a lot about scar tissue and inflammation. 254 00:12:59,900 --> 00:13:02,700 This is kind of the lens through which I view. 255 00:13:03,100 --> 00:13:05,800 Most of my clinical rationale. If I'm suggesting a treatment 256 00:13:05,800 --> 00:13:08,400 intervention, it's either to address a change in the tissue, 257 00:13:08,400 --> 00:13:11,000 which I believed to be related to fibrosis, which is the 258 00:13:11,000 --> 00:13:15,000 technical term. Scar tissue or to a disregulated 259 00:13:15,000 --> 00:13:18,300 inflammatory process. And for me, these two 260 00:13:18,300 --> 00:13:20,800 physiological processes are kind of at the root cause of why 261 00:13:20,800 --> 00:13:24,300 hypermobile people are in pain. So anyways, on that note Point 262 00:13:24,300 --> 00:13:27,500 number four is that scar tissue will never disappear. 263 00:13:27,500 --> 00:13:30,900 It's important to understand that scar tissue forms as a 264 00:13:30,900 --> 00:13:34,100 consequence of injury sometimes and that scar tissue is like 265 00:13:34,100 --> 00:13:35,900 gristle in a cheap piece of steak. 266 00:13:36,100 --> 00:13:39,100 It's hard and it behaves mechanically differently to the 267 00:13:39,100 --> 00:13:42,100 surrounding tissue around it and in hypermobile to It's that 268 00:13:42,100 --> 00:13:44,600 surrounding tissue that uninjured tissue that surrounds. 269 00:13:44,600 --> 00:13:47,000 The scar is actually hypermobile tissue. 270 00:13:47,400 --> 00:13:51,100 So we have the very stretchy uninjured tissue and the stiff 271 00:13:51,300 --> 00:13:53,200 injured tissue that stiff scar tissue. 272 00:13:53,700 --> 00:13:56,400 And we'll talk more about mechanisms of re-injury and 273 00:13:56,400 --> 00:13:59,500 chronic injury and other day, but it's the relationship 274 00:13:59,500 --> 00:14:02,300 between that scar tissue and and uninjured tissue, which in my 275 00:14:02,300 --> 00:14:06,600 opinion creates conditions, which allow this chronic injury 276 00:14:06,600 --> 00:14:09,100 to occur. Now, that being said, although 277 00:14:09,100 --> 00:14:13,500 Scar Tissue will never disappear Had magically be reabsorbed by 278 00:14:13,500 --> 00:14:16,800 the body at this point. In time, Scar Tissue can be 279 00:14:16,800 --> 00:14:18,500 improved. We can of scar tissue that is 280 00:14:18,500 --> 00:14:20,600 more functional or less functional. 281 00:14:20,600 --> 00:14:24,800 And we want ideally, especially in hypermobile patients is scar 282 00:14:24,800 --> 00:14:27,400 tissue that can tolerate mechanical loading, without 283 00:14:27,400 --> 00:14:31,600 resulting in a re-injury. But what we want is just to make 284 00:14:31,600 --> 00:14:35,500 those sites of injury function as well as they possibly can. 285 00:14:35,500 --> 00:14:40,200 And again, I promise, I will do episodes explaining my thoughts 286 00:14:40,200 --> 00:14:42,900 and my Approach and how How I achieve that with patients that 287 00:14:42,900 --> 00:14:46,400 I work with. Now Point number six, muscle 288 00:14:46,400 --> 00:14:49,700 mass is the only quote-unquote out that I know of. 289 00:14:49,700 --> 00:14:52,200 So sometimes you will see these patients and you may have come 290 00:14:52,200 --> 00:14:54,100 across like some stories online or you. 291 00:14:54,100 --> 00:14:58,300 Maybe you know, someone who have this magical Improvement and 292 00:14:58,300 --> 00:15:01,000 it's just incredible because they were really unwell and now 293 00:15:01,000 --> 00:15:03,800 they seem to be absolutely fine. And they're like, just going out 294 00:15:03,800 --> 00:15:07,100 and doing everything and have a significantly improved quality 295 00:15:07,100 --> 00:15:10,000 of life. This is because in order to 296 00:15:10,000 --> 00:15:12,700 stabilize a hypermobile joints We have someone with really 297 00:15:12,700 --> 00:15:15,000 hypermobile shoulders to use myself as an example. 298 00:15:15,600 --> 00:15:18,700 You have to help that patient build their own braces. 299 00:15:18,700 --> 00:15:22,400 And by braces, I mean muscle mass muscle mass around a joint 300 00:15:22,400 --> 00:15:26,200 helps to keep it stable. It helps to tighten it up and I 301 00:15:26,200 --> 00:15:28,600 have to say, like I used to feel really self-conscious about my 302 00:15:28,600 --> 00:15:31,500 shoulders, they're pretty big, they're pretty muscular, but you 303 00:15:31,500 --> 00:15:34,100 know what, I think of the pain I had before, I had that muscle 304 00:15:34,100 --> 00:15:39,000 mass and having slender shoulders, and letting my muscle 305 00:15:39,000 --> 00:15:41,200 mass disappear on them is not an option for me. 306 00:15:41,200 --> 00:15:46,000 I Fight to keep my muscle mass. However it isn't easy to build 307 00:15:46,000 --> 00:15:47,600 muscle mass. I have to say, I'm always 308 00:15:47,600 --> 00:15:50,100 surprised at how many patients come to me and tell me that they 309 00:15:50,100 --> 00:15:53,100 were told by their doctor. Oh yeah, just just do strength 310 00:15:53,100 --> 00:15:56,100 training or just build some muscle mass like it like it's 311 00:15:56,100 --> 00:15:59,200 easy. It's not easy for anyone and 312 00:15:59,200 --> 00:16:02,100 it's incredibly hard for hypermobile patients building 313 00:16:02,100 --> 00:16:06,900 muscle mass while avoiding injury when your hypermobile is 314 00:16:06,900 --> 00:16:09,200 so hard. Okay, so if you've had a hard 315 00:16:09,200 --> 00:16:12,600 time with that, I want you to understand That I'm not 316 00:16:12,600 --> 00:16:15,900 surprised, okay? But secondly, I want to stress. 317 00:16:15,900 --> 00:16:19,100 It's also not possible or safe for everyone. 318 00:16:19,400 --> 00:16:22,000 There are some people with some very rare conditions who end up 319 00:16:22,000 --> 00:16:24,700 having life-limiting consequences from their 320 00:16:24,700 --> 00:16:28,400 connective tissue, okay, but there are also some people who 321 00:16:28,400 --> 00:16:30,800 have connective tissue where although it causes them, a lot 322 00:16:30,800 --> 00:16:34,300 of problems, they are able to build muscle mass and to have 323 00:16:34,300 --> 00:16:36,600 significant improvements. So it's all about finding what 324 00:16:36,600 --> 00:16:40,700 every patient is physically able to do and working in supporting 325 00:16:40,700 --> 00:16:44,200 them in that as As much as possible and that's why Fitness 326 00:16:44,200 --> 00:16:46,000 and strength training is something I'm very passionate 327 00:16:46,000 --> 00:16:49,500 about but again I want to stress it's not possible or safe for 328 00:16:49,500 --> 00:16:52,700 everyone and if you're not sure as always speak with your 329 00:16:52,700 --> 00:16:54,800 trusted health care provider. Okay. 330 00:16:55,300 --> 00:17:01,100 And finally, final point heds and hsd affect everyone 331 00:17:01,400 --> 00:17:03,600 differently. The thing is you see a lot of 332 00:17:03,600 --> 00:17:05,900 similarities and that's partly why we have such like a big 333 00:17:05,900 --> 00:17:08,500 Community online because I'll say something, I'll describe 334 00:17:08,500 --> 00:17:11,400 some certain things that I observed in patients and so many 335 00:17:11,400 --> 00:17:14,099 people We'll see that and say, oh my gosh, that's me. 336 00:17:14,800 --> 00:17:17,500 However, when I see these patients in clinic and we're 337 00:17:17,500 --> 00:17:20,800 going through the details of how they're affected and issues 338 00:17:20,800 --> 00:17:23,000 they've struggled with so far or treatment that's worked or 339 00:17:23,000 --> 00:17:27,000 hasn't worked for them. I cannot stress how unique every 340 00:17:27,000 --> 00:17:30,800 patient is my work and I feel so lucky to have the work that I 341 00:17:30,800 --> 00:17:34,000 do, but my work is infinitely interesting. 342 00:17:34,300 --> 00:17:37,300 Because although we have the the same, in my opinion, kind of 343 00:17:37,300 --> 00:17:40,500 underlying physiological processes involving scar tissue 344 00:17:40,500 --> 00:17:43,200 and inflammation, and And the consequences of hypermobile 345 00:17:43,200 --> 00:17:47,200 connective tissue. Every patient is so different 346 00:17:47,200 --> 00:17:49,800 and I describe it to my patients, as it's like being 347 00:17:49,800 --> 00:17:52,200 someone who quite simply has a body where they cannot buy 348 00:17:52,200 --> 00:17:56,000 clothing off the rack, they have to get clothes custom made by a 349 00:17:56,000 --> 00:17:59,900 tailor for hypermobile patients, what they really benefit from. 350 00:18:00,000 --> 00:18:04,400 And unfortunately, it's hard to access these days is bespoke 351 00:18:04,600 --> 00:18:07,300 Medical Care. They benefit from truly 352 00:18:07,300 --> 00:18:10,700 patient-centered, truly individualized care because 353 00:18:10,700 --> 00:18:14,400 their bodies are all just So different and so unique, even 354 00:18:14,400 --> 00:18:17,700 though there are a lot of similarities and this is why I 355 00:18:17,700 --> 00:18:20,700 use the analogy of variations in a theme. 356 00:18:21,100 --> 00:18:23,200 So I'm a classically trained pianist. 357 00:18:23,200 --> 00:18:26,400 I don't know if any of you out there, play piano, but you may 358 00:18:26,400 --> 00:18:29,500 have heard Mozart's Twinkle Twinkle Little Star and I 359 00:18:29,500 --> 00:18:32,800 believe that Mozart actually wrote 12 variations on that 360 00:18:32,800 --> 00:18:37,400 theme, now they all sound very different, but if you play any 361 00:18:37,400 --> 00:18:39,700 one of those variations to someone, they're going to say, 362 00:18:39,700 --> 00:18:41,500 oh, that sounds like Twinkle Twinkle Little Star. 363 00:18:41,600 --> 00:18:44,200 Our and that's how I view my hypermobile patients. 364 00:18:44,800 --> 00:18:49,200 They are same but different and they are variations on a theme. 365 00:18:49,800 --> 00:18:51,500 I hope you found those points helpful. 366 00:18:51,500 --> 00:18:54,800 Of course, it's not everything. I wish people knew we would need 367 00:18:54,800 --> 00:18:58,700 an elevator ride. That's about ten hours long 368 00:18:58,700 --> 00:19:01,700 maybe to cover everything. I wish people knew but those are 369 00:19:01,700 --> 00:19:04,300 just a few points and to give you kind of an idea of some of 370 00:19:04,300 --> 00:19:06,300 the topics we'll be talking about and what you can kind of 371 00:19:06,300 --> 00:19:09,100 expect from help I'm hypermobile. 372 00:19:09,700 --> 00:19:12,300 Now in terms of other Your plans. 373 00:19:12,300 --> 00:19:18,800 I'm so excited to tell you about my a probability HQ private 374 00:19:18,800 --> 00:19:21,300 membership. So, hypermedia HQ is a private 375 00:19:21,300 --> 00:19:24,400 membership community that gives the scientifically minded 376 00:19:24,400 --> 00:19:27,200 hypermobile person a non-judgmental place to share 377 00:19:27,200 --> 00:19:31,200 thoughts, strategies and experiences on how to navigate 378 00:19:31,200 --> 00:19:34,300 life in a hyper mobile body. I compare a lot of my work with 379 00:19:34,300 --> 00:19:36,800 patients to almost being like a compass like just figuring out 380 00:19:36,800 --> 00:19:40,400 how how on Earth do I like like I said navigate life how do I 381 00:19:40,400 --> 00:19:42,200 get through all this stuff? How do I Make progress. 382 00:19:42,200 --> 00:19:43,400 I have this weird thing going on. 383 00:19:43,400 --> 00:19:45,100 Has anyone else ever experienced this? 384 00:19:45,400 --> 00:19:48,900 I'm so excited about this private membership community, 385 00:19:48,900 --> 00:19:52,500 and I'm thrilled to be telling you that it will be launching on 386 00:19:52,500 --> 00:19:54,700 Friday. June 23rd. 387 00:19:54,800 --> 00:19:58,900 There will be regular lives specifically a weekly live where 388 00:19:58,900 --> 00:20:02,400 I'm on for an hour and a half, and we are talking about a 389 00:20:02,408 --> 00:20:05,700 topic, as well as a Q&A. And, of course, there are going 390 00:20:05,700 --> 00:20:08,300 to be different forms, which will be managed, and I will be 391 00:20:08,308 --> 00:20:10,600 sharing some more insight into that on my different social 392 00:20:10,600 --> 00:20:12,700 media profiles. If you want to see what it looks 393 00:20:12,700 --> 00:20:14,500 like, please go there. I want you to know. 394 00:20:14,500 --> 00:20:17,000 Of course, what you're signing up for and to decide if it's 395 00:20:17,000 --> 00:20:19,100 great for you, but I'm just so excited about it because I've 396 00:20:19,100 --> 00:20:22,000 always wanted a place where you can talk about everything and 397 00:20:22,000 --> 00:20:25,300 I'm hoping that this will be it. If you're nervous about Discord, 398 00:20:25,300 --> 00:20:27,200 don't stress. I'm going to be making some 399 00:20:27,200 --> 00:20:30,200 tutorials. It's basically, just, it's, it's 400 00:20:30,200 --> 00:20:33,600 a way to almost make like a library a way to make a meeting. 401 00:20:33,600 --> 00:20:37,700 It's like a meeting place. Has a baby with a library and 402 00:20:37,700 --> 00:20:39,900 it's just all very organized and you can find whatever you're 403 00:20:39,900 --> 00:20:42,000 looking for their, it's also really Cool from an 404 00:20:42,000 --> 00:20:45,200 accessibility perspective because there are ways that we 405 00:20:45,200 --> 00:20:48,500 can talk using voice. So you can like leave voice 406 00:20:48,500 --> 00:20:50,700 notes if that's your thing or if your hands are hurting and you 407 00:20:50,700 --> 00:20:53,300 can't use your hands, I can leave different types of media 408 00:20:53,300 --> 00:20:56,200 content on their live recordings will, of course, be available on 409 00:20:56,200 --> 00:20:59,800 there, for people to view those private lives and I'm so excited 410 00:20:59,800 --> 00:21:03,300 because I will be able to again do a regular Q&A. 411 00:21:03,700 --> 00:21:09,600 I love Q&A but it got a bit overwhelming on my Tick Tock in 412 00:21:09,600 --> 00:21:12,600 particular just because the community, So big on there. 413 00:21:12,800 --> 00:21:15,100 So I'm quite excited to have a private membership Community, 414 00:21:15,100 --> 00:21:19,200 where I will be able to give a little bit more of a focused and 415 00:21:19,200 --> 00:21:22,400 just a more detailed presence to the people who are on there. 416 00:21:22,400 --> 00:21:25,100 So if that's something that interests, you, please, mark, 417 00:21:25,100 --> 00:21:29,000 that in your calendar, sign up, and make sure that you get my 418 00:21:29,000 --> 00:21:30,900 email notification so that you will be able to get that 419 00:21:30,900 --> 00:21:32,500 Founders rate. If that's something that you 420 00:21:32,500 --> 00:21:35,900 really are Keen for. Okay, now, additionally, I want 421 00:21:35,900 --> 00:21:38,500 to encourage you. If you've enjoyed today's 422 00:21:38,500 --> 00:21:43,000 episode to subscribe, download like Share save follow. 423 00:21:43,000 --> 00:21:47,500 Whatever your support is truly so appreciated and I'm so 424 00:21:47,500 --> 00:21:52,700 grateful to have had you with me for this today and finally never 425 00:21:52,700 --> 00:21:55,500 let anyone do your sparkle. I hope you have a good day. 426 00:21:55,500 --> 00:21:57,700 Take care. And we'll catch up next time.