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Hey, I'm Hypermobile and if 
you're listening to this, I'm 

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guessing that you might be too. 
Hi, my name is Alex and I'm your

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Hypermobile host. 
And today we are talking about a

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highly requested topic. 
We are talking about intimacy. 

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So if you're someone who, this 
would not be the right thing for

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you to listen to right now. 
If you're someone who maybe is 

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not the right age or you're not 
feeling up for content that 

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would be a bit adult in nature, 
this is the time for you to go 

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check out one of my other 
episodes. 

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You can find all of them on 
YouTube, Spotify, iTunes and of 

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course you can find them on my 
website, A Hyperbole hq.com. 

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It has just all been redone. 
It is looking fantastic. 

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There are blog posts, there's a 
little shop, Go check it out. 

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There's actually a little quiz 
too, I think is super cute, but 

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go check it out. 
Let me know what you think. 

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And if you want to see archived 
episodes, that's a good place 

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too. 
But for today, we are talking 

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about sex. 
We're talking about sex because 

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somebody needs to talk about 
sex. 

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When you go and look up 
hypermobile elderdemol syndrome 

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and sex or look up like kind of 
searches online to try and see 

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what research has been done, 
what books has this been talked 

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about? 
And there's not much there. 

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So today you're going to get my 
thoughts on why I think 

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hyperbole. 
People have so many issues when 

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it comes to sex. 
Some of the common conditions 

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that aren't really talked about 
enough, that people think 

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they're alone in, but really 
they're actually quite common in

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this patient population that 
have to do with hypermobility 

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and sex. 
So many big words today and I'm 

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going to talk you through two of
the most common injuries 

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involving sex that I hear about 
from patients and some clinical 

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strategies that I use in terms 
of just reducing or sorry, 

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stopping those injuries from 
happening or just reducing the 

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ways in which they affect these 
people as well. 

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I do want to stress if you're 
looking for a community for an 

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awesome, super incredible online
community, I cannot recommend 

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enough the Hypermobility HQ 
Discord. 

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It is a private membership so 
it's £9.99 per month and it is 

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for the scientifically minded 
hypermobile person to share 

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thoughts, ideas and strategies 
and just experiences on what 

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it's like to really live in a 
hypermobile body. 

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As I said already, the community
is incredible. 

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I wasn't sure what it was going 
to be like when I made it, but 

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it has become my favorite corner
of the Internet by far. 

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There are weekly lives with 
yours truly talking about all 

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kinds of subjects. 
Last week we talked about 

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disability and what does 
disability even mean And are all

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hypermobile people disabled 
anyways? 

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That was a really good one. 
We also have guest speakers, we 

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have a monthly Q&A and we have 
special events. 

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So yeah, the Christmas party was
awesome. 

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But anyways, if that interests 
you again, you can find more 

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info on my website, but without 
further delay. 

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Let's get into today's episode 
and one last delay, medical 

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disclaimer. 
Of course this is not medical 

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advice. 
If you are having a health issue

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of any kind, I urge you to go 
speak directly to your medical 

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doctor regarding it, because we 
always want to be safe. 

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And here we're just talking 
about kind of some anatomy, some

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Physiology, and we're talking 
about stuff that's for 

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informational purposes only. 
So if you're worried, please go 

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seek out appropriate medical 
Care. 

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Now, hypermobility and sex. 
Why is it such a problem? 

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Well, there's a couple things 
going on. 

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We have of course to think 
always this is, this is how my 

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brain works. 
I I hope it helps you. 

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But I always think about 
hypermobile, hypermobile people 

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and injuries in the context of 
mechanical issues. 

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So that's that wonky collagen 
that's kind of affecting things 

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from a structural perspective, 
that's those dislocations, 

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subluxations or partial 
dislocations and muscle injuries

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and so on. 
That's that category. 

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But we also have of course the 
neurological component as well, 

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like for sex to you know, and 
there are many ways people can 

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have sex. 
They are like infinite ways. 

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But for a lot of different 
sexual acts to happen, there are

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certain autonomic nervous system
functions that take place. 

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So for example, in order for 
someone to have an erection, 

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there are certain things that 
have to go on with blood 

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pressure and blood flow 
direction, all these things. 

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And that's due that happens due 
to a component of your autonomic

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nervous system. 
It's that kind of behind the 

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scenes. 
It's not like you can just will 

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it to happen magically. 
It's something which happens 

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kind of seemingly magically on 
its own until it doesn't. 

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And then it gets really, really 
frustrating for that individual 

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sometimes. 
And as well, of course, you have

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to think of things from a 
inflammatory perspective too, 

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and there's a psychological 
component. 

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So hypermobile people have 
issues with often many of these 

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things, but let's get let's go 1
by 1, Let's keep it simple. 

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OK, So from a mechanical 
perspective, the problem with a 

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lot of different ways in which 
people have sex is that we have 

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irregular movements happening. 
We have people doing movements 

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that they haven't done ever or 
for a long time or that they 

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certainly don't do regularly. 
We have legs going up. 

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We have people lying and can 
kind of awkward positions. 

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And although that might be OK 
for someone with normal 

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connective tissue, for someone 
who's hyper mobile, the 

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consequences of doing that can 
be much worse. 

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Instead of having, I don't know,
like shoulder pain for like a 

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couple days after maybe an 
adventurous experience with 

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their partner or partners, you 
can have someone who goes on to 

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have, like really serious and 
disabling neck pain for the rest

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of their life following 
something that was seemingly 

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just a normal thing to do, 
right? 

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So we have the, the environment,
we have the situation where we 

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can have injuries occur with 
more problematic consequences. 

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We also of course have 
activities which often require a

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repetitive motion. 
So again there's a lot of 

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repetitive hand motions, 
repetitive hip motions. 

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We have a lot of repetitive 
things going on and in general I

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find that that is the kind of 
highest risk type of activity 

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for a hypermobile body. 
These patients will often be 

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fine doing a movement once. 
You know, if I ask a patient say

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with shoulder pain, say it's 
like a sports, you know, a 

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rotator cuff strain type 
presentation and I ask them to 

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raise their arm overhead once, 
they'll be fine. 

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They won't have any pain. 
But if they raise their arm 

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overhead like 50 times, that's 
when they start to get that 

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pain. 
It happens after that repetitive

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motion. 
So a lot of sexual activities 

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that people do involve 
repetitive motions and that can 

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be really problematic for 
hypermobile people. 

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Of course, when we look at it 
from an autonomic nervous system

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perspective, there is a lot of 
stuff that needs to happen in 

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sequence, in the right order, at
the right time and in the right 

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way. 
We talked about erections 

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briefly to go talk, to talk 
about people with vaginas and 

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vulvas. 
Let's talk about arousal. 

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So people think that you are 
just supposed to magically 

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become all lubricated and like 
ready to go. 

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And that does not happen 
necessarily for everyone, 

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especially not for patients who 
are hyper mobile. 

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And that can have to do with 
issues involving dysautonomia. 

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So this means like negative, 
like it's not working so well. 

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Autonomia again refers to that 
component of your nervous system

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that does all the magical things
that are just supposed to 

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magically happen, like for 
example digestion of food. 

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I'm not telling my stomach to 
digest my food right now. 

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It's just doing it luckily, 
which is great. 

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But when it comes to arousal, 
not only do we have of course, 

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potentially that person with a 
vagina, they're not able to 

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produce that lubricative fluid. 
They're not producing that 

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arousal fluid and that's causing
the tissue to be dry, which 

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again is going to increase their
risk of injury potentially. 

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So that's leading. 
You know, that's a autonomic 

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nervous system issue, which is 
potentially leading to a 

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mechanical issue. 
But we also have on top of that 

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the potential for psychological 
harm from that. 

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That person might think, oh, my 
body should just get aroused. 

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That's the normal thing to do. 
Everyone else does it, like why?

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Why should I not be able to do 
it? 

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It's the, it's the same thing 
with erections. 

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Again, people think, oh, I 
should just be able to have that

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happen, but it's not happening 
for me. 

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And there's a lot of, I think 
feeling like a failure. 

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I think feeling like a physical 
failure is a huge problem when 

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it comes to being a hyper mobile
person. 

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And it's something which we need
to, I think, talk about more as 

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a community. 
I I hope that people understand 

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if there's one take away from 
this episode, it's that. 

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I promise you, you are not alone
in whatever issue you're 

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experiencing involving what 
we're talking about today. 

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Now we talked about the 
mechanical issues, the 

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connective tissue and joint 
injuries and so on. 

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We talked about the autonomic 
nervous system and problems 

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regarding that stuff that's just
supposed to happen that 

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sometimes doesn't happen. 
Now we are going to talk about 

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the inflammatory issues that can
arise. 

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So a lot of hypermobile people, 
especially again people with 

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vaginas, they're going to have 
issues with things like chronic 

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yeast infections, chronic 
urinary tract infections. 

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These will be things often 
they'll have treated and they'll

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come back and look at them 
treated again these kind of 

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chronic undulating infections. 
This happens partially because I

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think that these patients are 
not being seen by medical 

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doctors who have a deep 
understanding of hypermobile 

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connective tissue and how it 
affects people who have these 

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infections. 
So hypermobile patient with for 

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example a yeast infection or 
thrush is being given standard 

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treatment which is not working 
for them when they need a an 

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appropriate treatment for their 
presentation. 

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Maybe that higher level of 
clinical management, but having 

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those types of issues makes that
person potentially associate 

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their vagina and their vulva and
that whole region with pain. 

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It also might make them feel 
like a a failure because they 

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can't be available for a 
penetrative sex or sex involving

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those regions when their partner
maybe wants them to if these 

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infections are near constant 
which they really can be for 

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some people. 
So we have that inflammatory 

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component as well and then on 
top of all that we have the 

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psychological component. 
So I will hear sometimes from 

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patients and from this community
about people who feel like 

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failures because their partner 
wants to do certain sex acts, 

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They can't do them or they need 
to do them in a modified way and

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their partner is not being what 
a a partner needs to be. 

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Their partner is not being 
supportive and loving and caring

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and solution oriented. 
Instead, their partner is really

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putting them down and really 
adding to that and that type of 

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interaction, I think long term, 
especially for patients who are 

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younger, sets them up to be in 
really, really harmful and 

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potentially even abusive 
relationship situations long 

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term because they've been told 
they're the problem, their body 

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is, you know, the failure. 
Like they're the they're the 

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whole issue in this 
relationship. 

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If only their body works better.
If only they could do this, then

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things would be all, you know, 
sunshine and roses. 

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And again, that's that's often 
not the case. 

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So there are all types of 
different ways that these issues

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interact, and I think that's 
what makes it so challenging and

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so nuanced when thinking about 
hypermobility and sex. 

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Now I also want to stress that 
as much as we can have like 

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these seemingly, like, you know,
isolated issues, there are 

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actually a lot of medical terms 
and medical diagnosis for 

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conditions involving pain during
sex. 

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So we talked about disparinia, 
which affects about 30% of the 

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population, was a statistic I 
read online. 

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Again, check the show notes, 
I'll put some research down 

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there. 
You can check check out my stats

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and if I got anything wrong, you
can e-mail me. 

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We also have things like Volvo, 
Dinia, Vestibulidinia and 

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Vaginismus. 
So again, when I hear about 

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these things from patients, they
often think that they are the 

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only person that I've ever heard
of who has this. 

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No. 
Vulvodynia and vaginismus are 

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common when I'm doing a medical 
history with patients who have 

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00:11:20,720 --> 00:11:22,920
who have vaginas and vulvas. 
Again, I want to stress I'm not 

230
00:11:22,920 --> 00:11:24,960
a medical doctor, I'm a UK 
registered osteopath. 

231
00:11:24,960 --> 00:11:27,000
But it is part of my medical 
history. 

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00:11:27,000 --> 00:11:29,800
When I talk with a patient to 
understand their health on a 

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00:11:29,800 --> 00:11:32,800
more like holistic level, I want
to know about their respiratory,

234
00:11:32,840 --> 00:11:35,480
respiratory system, their 
cardiovascular system and even 

235
00:11:35,480 --> 00:11:37,960
their reproductive system 
because it's all connected as as

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00:11:37,960 --> 00:11:41,920
we all know too well. 
Anyways, vaginist Smiths and 

237
00:11:41,920 --> 00:11:45,400
vulvodynia affect approximately,
I think statistics say about 10%

238
00:11:45,400 --> 00:11:47,880
of the population. 
I suspect that number would be 

239
00:11:47,880 --> 00:11:50,920
much higher, but I think it's 
really under reported and under 

240
00:11:50,920 --> 00:11:53,520
researched. 
It's very difficult to find 

241
00:11:53,520 --> 00:11:55,960
research discussing 
hypermobility and sex. 

242
00:11:56,280 --> 00:11:58,640
And again, this is something 
which I think people should 

243
00:11:58,760 --> 00:12:01,640
research more and should talk 
about more because I know it 

244
00:12:01,640 --> 00:12:05,800
really is hurtful and upsetting 
for a lot of patients and the 

245
00:12:05,800 --> 00:12:08,000
community members I hear from 
who who are going through this 

246
00:12:08,000 --> 00:12:10,680
stuff as well. 
The reason why it's important to

247
00:12:10,680 --> 00:12:13,120
get these things diagnosed is 
that there are sometimes 

248
00:12:13,120 --> 00:12:15,360
different treatment and 
management options out there. 

249
00:12:16,040 --> 00:12:19,280
There are there's a whole class 
of physiotherapist called listen

250
00:12:19,280 --> 00:12:21,800
My Words called a pelvic floor 
physiotherapist. 

251
00:12:21,800 --> 00:12:24,360
And I do hear sometimes about 
patients who've had life 

252
00:12:24,360 --> 00:12:27,120
changing and wonderful 
experiences with their pelvic 

253
00:12:27,120 --> 00:12:30,360
floor physiotherapist. 
So there are options, but step 

254
00:12:30,360 --> 00:12:32,600
one of course is understanding 
what's going on. 

255
00:12:33,080 --> 00:12:36,320
So as well we need to think 
about other conditions which 

256
00:12:36,320 --> 00:12:38,160
aren't appreciated and aren't 
discussed enough. 

257
00:12:38,840 --> 00:12:42,800
One which in particular I think 
that we need more research on in

258
00:12:42,800 --> 00:12:46,600
its relationship to 
hypermobility and heds and HSD 

259
00:12:46,800 --> 00:12:50,840
is Pyrenees disease. 
So that's PEYRON i.e. 

260
00:12:51,120 --> 00:12:54,880
Apostrophe S disease and this 
condition is when you get what 

261
00:12:54,880 --> 00:12:57,400
they refer to as a plaque. 
But when you read in in research

262
00:12:57,400 --> 00:12:59,560
it's often also called scar 
tissue as well. 

263
00:12:59,920 --> 00:13:02,120
So I'm just going to use the 
word scar tissue here because it

264
00:13:02,120 --> 00:13:04,360
fits more consistently with how 
I talk about injury and 

265
00:13:04,360 --> 00:13:06,840
hypermobile tissue. 
But we have scar tissue 

266
00:13:06,840 --> 00:13:12,720
formation within the penis which
affects its ability to to shape,

267
00:13:12,720 --> 00:13:16,280
to have an erection basically. 
It starts to have issues with 

268
00:13:16,280 --> 00:13:19,040
that because we have the tissue 
which needs to be kind of you 

269
00:13:19,040 --> 00:13:21,560
know be able to accommodate the 
shape of the erection. 

270
00:13:21,760 --> 00:13:25,680
We have scar tissue and injury 
there and that can be really, 

271
00:13:25,680 --> 00:13:30,640
really painful for people. 
Men make up a a small minority 

272
00:13:30,640 --> 00:13:32,720
of the symptomatic patients who 
are hyper mobile. 

273
00:13:32,720 --> 00:13:35,480
So again with A with a 
condition, let's say for example

274
00:13:35,600 --> 00:13:38,800
heds it's autosomal dominance. 
So theoretically the split 

275
00:13:38,800 --> 00:13:42,080
should be 5050 in clinic I 
should see half males and half 

276
00:13:42,320 --> 00:13:44,840
females or half, half patients 
who are XY and half patients who

277
00:13:44,840 --> 00:13:47,400
are XX ray theoretically. 
And of course there are other 

278
00:13:47,400 --> 00:13:49,680
versions I like. 
There are so many different 

279
00:13:49,680 --> 00:13:53,480
presentations we can have from 
chromosomes and different gender

280
00:13:53,480 --> 00:13:55,640
identities and so on. 
But in theory it should be a 

281
00:13:55,640 --> 00:13:57,880
5050 split if we just look at it
in that really simple way. 

282
00:13:58,400 --> 00:14:02,680
But I see a vast majority of 
females because they tend to be 

283
00:14:02,680 --> 00:14:05,360
the ones who are more 
symptomatic. 

284
00:14:05,360 --> 00:14:09,000
These people who are kind of 
have these estrogen dominant 

285
00:14:09,000 --> 00:14:11,320
hormonal profiles, these are the
ones who are more symptomatic. 

286
00:14:11,520 --> 00:14:14,440
We'll do an episode on that 
probably in a month or two. 

287
00:14:14,960 --> 00:14:19,360
But I see a smaller percentage 
of people who are testosterone 

288
00:14:19,360 --> 00:14:22,840
dominant and I really think that
although of course we need to 

289
00:14:22,840 --> 00:14:25,080
talk about the issues that 
affect these more estrogen 

290
00:14:25,080 --> 00:14:29,600
dominant patients, we need to 
not forget about the people who 

291
00:14:29,600 --> 00:14:32,560
are testosterone dominant and 
that the males who are affected 

292
00:14:32,840 --> 00:14:35,200
by these symptoms, you know they
matter too. 

293
00:14:35,560 --> 00:14:38,360
So Pyrenees disease, it's not 
talked about enough. 

294
00:14:38,360 --> 00:14:41,280
There is no research that's been
done as far as I can see 

295
00:14:41,560 --> 00:14:45,040
investigating a potential link 
to Heds or HSD. 

296
00:14:45,320 --> 00:14:49,200
But my hunch is that it's going 
to be something which is very 

297
00:14:49,200 --> 00:14:52,160
much correlated and maybe even a
a comorbidity for some of these 

298
00:14:52,160 --> 00:14:56,320
pay for this particular group of
hypermobile individuals who have

299
00:14:56,320 --> 00:14:58,960
a penis. 
So it's something which we need 

300
00:14:58,960 --> 00:15:01,800
to talk about more. 
It's one of those conditions 

301
00:15:01,800 --> 00:15:04,920
again, where injury it's a it's 
a consequence of cumulative 

302
00:15:04,920 --> 00:15:06,480
injury. 
So the penis gets injured and 

303
00:15:06,480 --> 00:15:08,840
scar tissue forms and it's 
inappropriate scar tissue 

304
00:15:08,840 --> 00:15:11,760
formation and poor tissue 
healing, which again, if you 

305
00:15:11,760 --> 00:15:13,760
know anything about 
hypermobility, you're like this.

306
00:15:13,760 --> 00:15:16,440
This sounds very similar to how 
injuries happen in other parts 

307
00:15:16,440 --> 00:15:20,240
of hypermobile bodies, but it's 
something where we certainly do 

308
00:15:20,240 --> 00:15:23,960
need more attention being 
brought to it and we need to 

309
00:15:23,960 --> 00:15:26,400
make sure that these patients 
are being identified early and 

310
00:15:26,400 --> 00:15:28,600
getting the right medical 
treatment and the right support.

311
00:15:29,240 --> 00:15:34,000
Now moving on, we are going to 
talk about two issues that I 

312
00:15:34,000 --> 00:15:37,520
hear from commonly in patients 
and what I, you know, kind of 

313
00:15:37,520 --> 00:15:40,520
the strategies or thoughts I 
have about positively affecting 

314
00:15:40,520 --> 00:15:43,160
those issues. 
So when it comes to sex and 

315
00:15:43,160 --> 00:15:47,440
intimacy, the two most common 
issues that I hear about are hip

316
00:15:47,440 --> 00:15:51,480
pain and wrist pain. 
Hip pain, obviously this is 

317
00:15:51,480 --> 00:15:55,880
particularly an issue for people
who are lying on their back, 

318
00:15:55,880 --> 00:15:59,320
sometimes with their legs out. 
That can be, you know, really 

319
00:15:59,320 --> 00:16:01,320
challenging on the hip joints 
and on some of the connective 

320
00:16:01,320 --> 00:16:03,400
tissue there. 
And wrist pain for patients who 

321
00:16:03,400 --> 00:16:05,960
are putting their their body 
weight through their wrist. 

322
00:16:06,440 --> 00:16:10,640
Now, hip pain first. 
So hips are joints, which again 

323
00:16:10,640 --> 00:16:12,720
are under appreciated in the 
assessment of hypermobile 

324
00:16:12,720 --> 00:16:14,480
patients. 
The bait and scale does not 

325
00:16:14,480 --> 00:16:17,000
really look at hips. 
Some people argue that touching 

326
00:16:17,000 --> 00:16:19,640
the floor assesses hip mobility.
I think it looks at arm length 

327
00:16:19,640 --> 00:16:23,120
more than hip mobility. 
But anyways, hips are not 

328
00:16:23,120 --> 00:16:25,640
appreciated enough in terms of 
the assessment of hypermobile 

329
00:16:25,640 --> 00:16:28,000
patients. 
In order to really assess 

330
00:16:28,000 --> 00:16:30,280
someone's hip from an from an 
orthopaedic perspective, that 

331
00:16:30,280 --> 00:16:32,280
patient needs to be lying on 
their back on the table. 

332
00:16:32,480 --> 00:16:33,720
You need to be moving the hip 
around. 

333
00:16:33,840 --> 00:16:35,800
You need to have done a lot and 
been trained in it. 

334
00:16:35,800 --> 00:16:39,080
And ideally of course you would 
have some medical imaging on top

335
00:16:39,080 --> 00:16:41,800
of that. 
The reason I say that is because

336
00:16:41,800 --> 00:16:44,400
as much as we can and do see 
issues with the connective 

337
00:16:44,400 --> 00:16:47,600
tissue in people's hips, the 
ligaments and the muscle and all

338
00:16:47,600 --> 00:16:50,720
these different components, the 
tendons and so on, We also see 

339
00:16:50,720 --> 00:16:53,640
issues very actually quite 
commonly I would say with the 

340
00:16:53,640 --> 00:16:55,640
bones themselves. 
So there are different 

341
00:16:55,840 --> 00:16:59,280
anatomical presentations or 
conditions that people can have 

342
00:16:59,440 --> 00:17:04,760
where their their femur, their 
femur, their femur or the kind 

343
00:17:04,760 --> 00:17:07,200
of the the socket. 
We if we have a ball and socket 

344
00:17:07,200 --> 00:17:09,440
joint in the hip, we have the 
the ball which is the femur, the

345
00:17:09,440 --> 00:17:12,480
socket which is acetamulum and 
the bones can be shaped 

346
00:17:12,480 --> 00:17:15,000
differently. 
So sometimes we have more of a a

347
00:17:15,000 --> 00:17:17,119
Bony issue than a connective 
tissue issue. 

348
00:17:17,359 --> 00:17:20,440
Sometimes we have both, which 
makes a more challenging 

349
00:17:20,440 --> 00:17:23,359
management of that patient 
presenting with that injury. 

350
00:17:24,240 --> 00:17:26,040
But we need to know what's going
on in the hip. 

351
00:17:26,040 --> 00:17:28,119
So if you're someone who's 
having pain during sex in your 

352
00:17:28,119 --> 00:17:30,640
hips, please speak to your 
appropriately qualified 

353
00:17:30,640 --> 00:17:33,120
healthcare provider because 
hopefully they will help you get

354
00:17:33,120 --> 00:17:35,760
the right investigations and 
figure out that diagnosis for 

355
00:17:35,760 --> 00:17:39,200
you. 
But in terms of hip pain during 

356
00:17:39,200 --> 00:17:43,360
sex, what I think really causes 
this pain is the fact that the 

357
00:17:43,360 --> 00:17:46,360
patient has to just kind of hold
their legs in that position. 

358
00:17:46,840 --> 00:17:50,960
And interestingly, it's often a 
position that I use to provoke 

359
00:17:50,960 --> 00:17:54,240
symptoms in a patient in clinic.
So in my assessment as an 

360
00:17:54,240 --> 00:17:57,680
osteopath, I want to see, like, 
what makes the pain worse, what 

361
00:17:57,680 --> 00:18:00,240
makes the pain better. 
And when I take that patient's 

362
00:18:00,240 --> 00:18:02,720
hip into flexion, so I'm 
bringing their knee up toward 

363
00:18:02,720 --> 00:18:05,400
their chest and abduction. 
So I'm moving their knees 

364
00:18:05,400 --> 00:18:08,000
slightly out. 
That is often a range of motion,

365
00:18:08,000 --> 00:18:10,160
which makes the patient's pain 
worse. 

366
00:18:10,200 --> 00:18:13,480
And funnily enough, if you can 
imagine lying on your back with 

367
00:18:13,480 --> 00:18:16,680
your knee coming up toward your 
chest and your your thigh going 

368
00:18:16,680 --> 00:18:19,160
slightly out, that is a position
which a lot of people use 

369
00:18:19,160 --> 00:18:23,120
routinely when they have sex and
holding it there. 

370
00:18:23,760 --> 00:18:26,160
I'm not surprised that that is 
causing pain for a lot of 

371
00:18:26,160 --> 00:18:28,000
people. 
So what can you do? 

372
00:18:28,600 --> 00:18:32,680
Step one is going to be to just 
have a lot of pillows, bolsters,

373
00:18:32,680 --> 00:18:34,920
supports. 
I've talked about positions of 

374
00:18:34,920 --> 00:18:39,720
true rest in previous episodes. 
I was on the Book Gang podcast 

375
00:18:39,720 --> 00:18:42,880
actually recently talking about 
true rest and supported body 

376
00:18:42,880 --> 00:18:44,880
positions when reading. 
So you can go check that out as 

377
00:18:44,880 --> 00:18:46,360
well. 
I might try and link it in the 

378
00:18:46,360 --> 00:18:49,120
show notes too, but we want to 
find ways that you can 

379
00:18:49,120 --> 00:18:54,000
essentially prop up your body. 
So if you have pillows, if you 

380
00:18:54,000 --> 00:18:56,040
don't have pillows, you can use 
like folded up sweaters or 

381
00:18:56,040 --> 00:19:00,040
whatever, get stuff, shove those
things outside your hips, okay, 

382
00:19:00,040 --> 00:19:01,960
you want them shut, you want 
them pressing up against your 

383
00:19:01,960 --> 00:19:04,360
lateral thigh. 
And by doing that you're 

384
00:19:04,360 --> 00:19:07,240
creating kind of a scaffolding 
so that your legs can then 

385
00:19:07,560 --> 00:19:10,360
relax. 
And that is going to really 

386
00:19:10,360 --> 00:19:13,440
reduce how much those symptoms 
in the hips are aggravated. 

387
00:19:13,440 --> 00:19:17,760
Most likely as well, if you have
the budget for it or the space, 

388
00:19:18,000 --> 00:19:20,560
you can go buy all types of 
phone blocks. 

389
00:19:20,760 --> 00:19:25,080
There is a whole world of kit 
you can buy for having sex. 

390
00:19:25,400 --> 00:19:28,680
So you could go and say you know
what, I want some wedges like, 

391
00:19:28,680 --> 00:19:32,000
you know, like those like slices
of cheese I got, everyone knows 

392
00:19:32,000 --> 00:19:33,880
the wedges. 
You can get a wedge, basically a

393
00:19:33,880 --> 00:19:35,720
wedge pillow. 
You could get two wedge cushions

394
00:19:35,920 --> 00:19:38,960
and have your legs resting 
against those beautifully and 

395
00:19:38,960 --> 00:19:40,560
that could be really, really 
comfy for you. 

396
00:19:41,360 --> 00:19:43,360
Now I think a lot of people get 
self-conscious and they're like,

397
00:19:43,360 --> 00:19:44,600
oh this sounds like so much set 
up. 

398
00:19:44,600 --> 00:19:47,480
This is so elaborate. 
Think back if, if you have like 

399
00:19:47,480 --> 00:19:50,080
a a partner that you're thinking
of in mind, think back to when 

400
00:19:50,080 --> 00:19:53,480
you first met them. 
You probably spent hours getting

401
00:19:53,480 --> 00:19:55,720
ready. 
You were probably like making 

402
00:19:55,720 --> 00:19:57,560
sure you're doing extra stuff in
the shower. 

403
00:19:57,720 --> 00:19:59,960
You were probably, if you're 
putting on makeup, being really 

404
00:19:59,960 --> 00:20:02,320
precise in that you were 
probably like, I don't know, 

405
00:20:02,320 --> 00:20:04,800
looking for dust, like at the 
top of the door frame, like you 

406
00:20:04,800 --> 00:20:07,000
were going around your flat and 
making sure that it looked 

407
00:20:07,000 --> 00:20:10,080
perfect. 
It's OK to take that same amount

408
00:20:10,080 --> 00:20:12,480
of attention in detail and 
continue to have that as a 

409
00:20:12,480 --> 00:20:16,040
component of your sex life. 
There's this idea that we just 

410
00:20:16,040 --> 00:20:18,320
have to be like ready to go at a
moment's notice. 

411
00:20:18,320 --> 00:20:22,080
And that's not possible for 
people who have chronic 

412
00:20:22,400 --> 00:20:24,760
injuries, chronic illness and 
people who are disabled. 

413
00:20:25,200 --> 00:20:28,760
So I think drills really lean 
into that, that indulgence, like

414
00:20:28,760 --> 00:20:32,080
indulge yourself, make it an 
event, make it fun, because 

415
00:20:32,080 --> 00:20:33,960
that's going to help you long 
term. 

416
00:20:34,480 --> 00:20:36,120
And I think it could be really 
fun for your partner too. 

417
00:20:36,640 --> 00:20:39,600
Now on top of that, if you are 
someone who's OK to look at more

418
00:20:39,600 --> 00:20:42,200
elaborate things, there are 
different like chairs and 

419
00:20:42,200 --> 00:20:45,040
devices and things you can like 
hang from your ceiling, Be safe,

420
00:20:45,120 --> 00:20:48,000
be safe. 
But it could be kind of fun to 

421
00:20:48,000 --> 00:20:51,480
look into the whole world. 
Have supported sex devices out 

422
00:20:51,480 --> 00:20:53,760
there. 
I might do a blog post on this. 

423
00:20:53,760 --> 00:20:56,120
If I do check it out, there'll 
be some good stuff in there. 

424
00:20:56,680 --> 00:21:01,080
Now on top of that, you can also
look at braces and supports. 

425
00:21:01,440 --> 00:21:05,360
So something which can certainly
affect pain during sex is 

426
00:21:05,360 --> 00:21:07,360
dysautonomia. 
So again, for patients who have 

427
00:21:07,360 --> 00:21:10,120
issues with regulating their 
their blood pressure and where 

428
00:21:10,120 --> 00:21:13,120
blood flow is going, some of 
these patients find compressive 

429
00:21:13,120 --> 00:21:14,880
garments helpful. 
They find like compressive 

430
00:21:14,880 --> 00:21:16,640
compression socks for example, 
really helpful. 

431
00:21:17,160 --> 00:21:19,840
What I would love to see, I 
don't know if it exists and I I 

432
00:21:19,880 --> 00:21:22,680
think I read about someone doing
this online, so if I can find 

433
00:21:22,680 --> 00:21:26,120
the original post online I will.
But you could take like a pair 

434
00:21:26,120 --> 00:21:30,320
of high waisted compression 
stockings and just, you know, 

435
00:21:30,720 --> 00:21:33,000
adjust the groin area if you 
needed to do that. 

436
00:21:33,000 --> 00:21:34,560
But that way you're keeping that
compression going. 

437
00:21:34,560 --> 00:21:36,720
You're taking care of yourself, 
you're prioritizing your health 

438
00:21:36,720 --> 00:21:40,400
and your body, but you're still 
able to do what you want to do 

439
00:21:40,400 --> 00:21:43,720
with your partner potentially. 
So don't be shy to do, like I 

440
00:21:43,720 --> 00:21:46,600
call it, arts and crafts. 
If you have a problem and 

441
00:21:46,600 --> 00:21:49,360
there's a reasonable way you can
have a solution, just go for it 

442
00:21:49,360 --> 00:21:54,200
and just make it like a style. 
Now on top of that, we talked 

443
00:21:54,200 --> 00:21:57,280
earlier about that knee being 
bent kind of toward the chest. 

444
00:21:57,720 --> 00:22:01,040
I find that typically patients 
are comfiest in what I call like

445
00:22:01,040 --> 00:22:03,760
a, a mid range, right. 
So instead of having the knee up

446
00:22:03,760 --> 00:22:06,160
as close to your chest, it might
be helpful to have that kind of 

447
00:22:06,160 --> 00:22:09,760
knee further away and in more of
a mid range flexion position. 

448
00:22:10,120 --> 00:22:12,760
And of course you could just be 
changing positions routinely as 

449
00:22:12,760 --> 00:22:14,240
well. 
Changing positions is a great 

450
00:22:14,240 --> 00:22:17,240
way to not be in any position 
for too long and that's going to

451
00:22:17,240 --> 00:22:20,640
help to reduce your injury rate 
now. 

452
00:22:21,400 --> 00:22:24,560
But on top of that, if we look 
at wrist issues, you can 

453
00:22:24,560 --> 00:22:26,920
certainly look into braces. 
So again, the wrist pain I hear 

454
00:22:26,920 --> 00:22:28,040
about, it's kind of like a 
plank. 

455
00:22:28,040 --> 00:22:30,320
So you know, when people are 
doing a plank in like a Pilates 

456
00:22:30,320 --> 00:22:33,040
class and they get wrist pain, 
it's really common in patients 

457
00:22:33,040 --> 00:22:35,920
who are hypermobile because 
their risks, some of their 

458
00:22:35,920 --> 00:22:37,360
wrists are just really, really 
slender. 

459
00:22:37,360 --> 00:22:39,520
We see a lot of patients with 
arachnodactyly with different 

460
00:22:39,520 --> 00:22:42,360
changes in the hand and the 
wrist anatomy and their wrist is

461
00:22:42,360 --> 00:22:45,520
not able to support their body 
weight or even part of their 

462
00:22:45,520 --> 00:22:48,200
body weight as well. 
These patients have excessive 

463
00:22:48,200 --> 00:22:50,720
ranges of motion. 
I was shocked. 

464
00:22:50,720 --> 00:22:53,600
I have very hypermobile risk and
I was shocked when I realized 

465
00:22:53,600 --> 00:22:57,080
the normal range of motion and 
what I have and what I see in a 

466
00:22:57,080 --> 00:23:00,080
lot of a lot of my patients 
because it is far inside the 

467
00:23:00,080 --> 00:23:02,760
realms of what's of what is 
normal range of motion. 

468
00:23:03,200 --> 00:23:06,200
So having a little bit of extra 
support can be helpful. 

469
00:23:06,600 --> 00:23:08,560
Now, can you wear a medical 
brace in bed? 

470
00:23:08,560 --> 00:23:10,400
Yeah, of course you can. 
You can wear a medically 

471
00:23:10,400 --> 00:23:12,920
prescribed brace. 
There are all kinds you can talk

472
00:23:12,920 --> 00:23:15,520
with your health care provider. 
You can get rigid braces, soft 

473
00:23:15,520 --> 00:23:17,520
braces there. 
There's a whole world of of 

474
00:23:17,520 --> 00:23:20,120
braces waiting out there for you
should you want those or should 

475
00:23:20,120 --> 00:23:22,960
you need them. 
But you can also look at 

476
00:23:22,960 --> 00:23:25,480
alternative strategies. 
So one of my favourites. 

477
00:23:25,640 --> 00:23:28,880
Oh, I do have it here. 
You can get just like an Olympic

478
00:23:28,880 --> 00:23:31,440
weightlifting wrist drop 
support. 

479
00:23:31,760 --> 00:23:34,520
So I got into these through my 
work with weightlifter patients 

480
00:23:34,520 --> 00:23:36,520
initially back when I was 
working primarily with sports 

481
00:23:36,520 --> 00:23:37,880
people. 
I'm gonna hold it up. 

482
00:23:37,880 --> 00:23:40,920
If you're watching my video, you
can see it, but there's a strip 

483
00:23:41,360 --> 00:23:44,360
of fabric with just a little 
kind of piece of, I don't know, 

484
00:23:44,800 --> 00:23:47,280
like a shoelace on the end, 
almost like a fabric ribbon. 

485
00:23:47,800 --> 00:23:55,160
And you can just loop it around 
your wrist and that creates a 

486
00:23:55,160 --> 00:23:58,320
beautiful little brace. 
And you could do them in 

487
00:23:58,320 --> 00:24:00,800
different colors and have 
different ways of having 

488
00:24:00,800 --> 00:24:02,320
support. 
You can find all kinds online. 

489
00:24:02,320 --> 00:24:04,480
So that can be a really simple, 
cost effective brace. 

490
00:24:04,840 --> 00:24:07,920
You can get different ones, like
I've seen them as low as kind of

491
00:24:07,920 --> 00:24:10,680
like, I don't know, under 10 lbs
and as high as like 20 lbs. 

492
00:24:10,680 --> 00:24:13,720
So these are awesome. 
You can find them on my Amazon 

493
00:24:13,720 --> 00:24:16,040
shop. 
You can also get, of course, 

494
00:24:16,160 --> 00:24:19,160
different kinds of tape. 
So some patients love tape, Some

495
00:24:19,160 --> 00:24:22,920
patients hate tape by the people
who hate tape, myself included. 

496
00:24:23,120 --> 00:24:24,880
And they normally hate tape 
because they get hives. 

497
00:24:24,880 --> 00:24:27,040
There can be like a sensory ick,
but also they might just get a 

498
00:24:27,040 --> 00:24:29,360
rash, which is a very reasonable
reason to hate tape. 

499
00:24:30,240 --> 00:24:33,200
But what we need to not forget 
about is there is tape out there

500
00:24:33,400 --> 00:24:36,760
that adheres to itself. 
So you can get this tape in the 

501
00:24:36,760 --> 00:24:39,160
very kind of sports tape looking
way. 

502
00:24:39,160 --> 00:24:43,440
It'll be kind of like that kind 
of tan color, you know, maybe 

503
00:24:43,440 --> 00:24:46,040
it's the look you want in your 
sex life. 

504
00:24:46,040 --> 00:24:47,280
Maybe it's not the look you 
want. 

505
00:24:47,680 --> 00:24:50,280
If it's not the look that you 
want, or if you can do with like

506
00:24:50,280 --> 00:24:52,720
a different kind of support. 
There are different kinds of 

507
00:24:52,720 --> 00:24:56,800
tape. 
This, for example, is tape that 

508
00:24:56,800 --> 00:24:59,680
has a a different finish. 
It's kind of like a red glossy 

509
00:24:59,680 --> 00:25:03,720
finish and it adheres to itself 
and you can do all kinds of 

510
00:25:03,720 --> 00:25:06,160
things with this tape, including
make, wrist braces. 

511
00:25:06,160 --> 00:25:08,320
So this might be a really good 
option. 

512
00:25:08,320 --> 00:25:11,520
And finally, of course, when 
you're looking at more 

513
00:25:11,520 --> 00:25:16,720
elaborate, elaborate, elaborate 
lingerie setups, there are so 

514
00:25:16,720 --> 00:25:20,920
many things going on. 
Corsets, hyperbole people, a lot

515
00:25:20,920 --> 00:25:23,360
of them really like corsets. 
They like that support. 

516
00:25:23,920 --> 00:25:26,040
There are these little like I I 
call them gauntlets. 

517
00:25:26,040 --> 00:25:27,160
I don't know if there's a word 
for them. 

518
00:25:27,160 --> 00:25:30,000
I've seen them in like a window 
display before, but basically 

519
00:25:30,000 --> 00:25:31,560
they're like little wrist 
corsets. 

520
00:25:31,560 --> 00:25:34,200
Does that make any sense? 
But things that you lace up near

521
00:25:34,200 --> 00:25:36,760
your wrist. 
Now if someone could design some

522
00:25:36,760 --> 00:25:39,680
of those that are more 
supportive, that would be 

523
00:25:39,680 --> 00:25:42,560
awesome for hyper mobile people.
And if they could look gorgeous 

524
00:25:42,560 --> 00:25:44,960
at the same time, that would be 
even better. 

525
00:25:45,320 --> 00:25:48,000
So the world is your oyster when
it comes to supports and it's 

526
00:25:48,000 --> 00:25:51,080
all about taking those same 
principles that help you 

527
00:25:51,080 --> 00:25:53,840
throughout your day. 
Things like bracing or minimal 

528
00:25:53,840 --> 00:25:56,240
bracing. 
Things like finding positions of

529
00:25:56,240 --> 00:26:00,520
of true rest or supported body 
positions and applying them to 

530
00:26:00,600 --> 00:26:02,640
your sex life. 
And I think it really comes to 

531
00:26:02,640 --> 00:26:08,360
just at the end of the day, 
accepting like your body is your

532
00:26:08,360 --> 00:26:13,800
body and it has certain needs 
and it is going to help you long

533
00:26:13,800 --> 00:26:16,120
term if you address those needs.
And hopefully the people that 

534
00:26:16,120 --> 00:26:17,840
you're doing this with, if 
you're doing it with anyone, and

535
00:26:17,840 --> 00:26:20,080
if you're not and you're just on
your own, hey, that's great too.

536
00:26:20,320 --> 00:26:24,040
Like indulge you, enjoy you, you
know, make sure if you're on 

537
00:26:24,040 --> 00:26:26,000
your own, I hope that you're 
taking really good care of 

538
00:26:26,000 --> 00:26:28,760
yourself. 
But if you're with other people,

539
00:26:28,760 --> 00:26:32,320
they should be caring about you 
and the needs of your body too. 

540
00:26:32,560 --> 00:26:35,640
If you need to stop, if you need
to take a break, it's like just 

541
00:26:35,640 --> 00:26:38,880
like if you were doing a an 
exercise this program, like take

542
00:26:38,880 --> 00:26:41,440
that break, there's no shame in 
that. 

543
00:26:41,720 --> 00:26:44,800
And then come back when you feel
ready or come back to it another

544
00:26:44,800 --> 00:26:47,120
day. 
I hope that you found this 

545
00:26:47,120 --> 00:26:50,240
discussion helpful. 
I hope that maybe it's got the 

546
00:26:50,240 --> 00:26:53,920
conversation rolling for some 
people, because hypermobile 

547
00:26:53,920 --> 00:26:58,000
people and people who have 
chronic health conditions, they 

548
00:26:58,000 --> 00:27:01,800
deserve and need to be able to 
have the best sex possible in my

549
00:27:01,800 --> 00:27:03,840
opinion. 
And I hope that I've at least 

550
00:27:03,840 --> 00:27:06,080
given you some ideas from 
today's episode. 

551
00:27:06,520 --> 00:27:08,160
I can't wait to have you back 
next time. 

552
00:27:08,160 --> 00:27:11,080
I'm so happy to be back. 
I missed this and we'll catch 

553
00:27:11,080 --> 00:27:12,280
you later. 
Take care. 

554
00:27:12,520 --> 00:27:13,040
Bye.