1 00:00:00,600 --> 00:00:04,280 Hello Sir, a very good afternoon, evening and welcome 2 00:00:04,320 --> 00:00:08,039 to everyone in the community. That's it. 3 00:00:10,120 --> 00:00:10,760 Right. Tell us who you. 4 00:00:10,800 --> 00:00:13,960 Are and what you do because it's pretty mind blowing. 5 00:00:14,000 --> 00:00:15,840 It's pretty mind blowing. It's pretty mind blowing for me 6 00:00:15,840 --> 00:00:17,760 really. I guess my first thing to say is 7 00:00:17,760 --> 00:00:21,600 to everyone that listens to your podcast, you are not alone, OK? 8 00:00:22,480 --> 00:00:25,000 There's a growing network of people out there around the 9 00:00:25,000 --> 00:00:28,040 globe that are stepping forward to support the community that 10 00:00:28,040 --> 00:00:32,119 aren't in the community. I'm aware of an awful lot of 11 00:00:32,119 --> 00:00:34,920 people. I came into it on the 10th of 12 00:00:34,920 --> 00:00:39,360 January this year when I was driving my van, moving house 13 00:00:39,360 --> 00:00:44,200 from Milton Keynes up to Derby. I plan to listen to a movie on 14 00:00:44,200 --> 00:00:49,000 YouTube called The Spellers, Spellers Movie and I kind of put 15 00:00:49,000 --> 00:00:51,240 it on the audio and listen to it whilst driving. 16 00:00:51,680 --> 00:00:54,840 I did kind of nine trips over a weekend back up and down to 17 00:00:54,840 --> 00:00:57,840 Derby and listen to that and the podcast. 18 00:00:58,880 --> 00:01:01,560 And at the end of it, I kind well, end of it, if I'm honest. 19 00:01:01,560 --> 00:01:04,879 48 minutes in, I remember the time I pulled my van over on the 20 00:01:04,879 --> 00:01:10,080 M1 and cried my eyes. And I find it really hard just 21 00:01:10,080 --> 00:01:13,320 talking about that because I listened to a movie that was 22 00:01:13,320 --> 00:01:16,720 about autistic norm speaking children that could communicate 23 00:01:16,720 --> 00:01:20,080 by literally pointing to individual letters in a stencil 24 00:01:20,080 --> 00:01:22,800 board. And these eight children that 25 00:01:22,800 --> 00:01:25,920 were featured in the movie just said, I'm in here. 26 00:01:26,520 --> 00:01:32,280 They were their first words and it blew me away and I and I, I 27 00:01:32,280 --> 00:01:38,800 would have this massive surge of I've got to do something and I 28 00:01:38,800 --> 00:01:42,080 need to help. I haven't a clue what I was 29 00:01:42,080 --> 00:01:44,640 going to do. I didn't know what was coming. 30 00:01:44,640 --> 00:01:48,320 But where are we? January to December 11 months 31 00:01:48,320 --> 00:01:53,200 later I read more than 120 books authored by spelling non 32 00:01:53,200 --> 00:01:55,840 speakers and their parents or co-authored. 33 00:01:56,480 --> 00:02:01,560 I've watched pretty much every movie, sorry every YouTube video 34 00:02:01,560 --> 00:02:05,000 that I could find, every talking book. 35 00:02:05,200 --> 00:02:11,000 I've joined probably 20 or 20 plus autism groups that allow me 36 00:02:11,000 --> 00:02:14,360 to access because I don't have a child allow me to access and 37 00:02:14,360 --> 00:02:17,080 I've read every post for 11 months. 38 00:02:17,680 --> 00:02:21,560 I wake up most mornings at 4:00 and I do at least three hours 39 00:02:21,760 --> 00:02:25,560 reading and studying and as much research as I can. 40 00:02:26,240 --> 00:02:31,400 And it's made me realise that all these children that are 41 00:02:31,400 --> 00:02:34,480 writing books, they have no reason to lie. 42 00:02:34,960 --> 00:02:37,360 Like it's not like they're trying to sell anything. 43 00:02:37,680 --> 00:02:40,200 So what's in there is the truth from them. 44 00:02:40,680 --> 00:02:45,960 And in there is absolute magic. And I mean magic in the terms of 45 00:02:46,560 --> 00:02:49,680 there are children writing with their parents and spelling 46 00:02:49,800 --> 00:02:53,360 letter by letter like they're not using ChatGPT here. 47 00:02:53,360 --> 00:02:57,880 It's literally letter by letter to communicate information that 48 00:02:58,000 --> 00:03:01,160 each one of you in this room and listening to the podcast, you'll 49 00:03:01,160 --> 00:03:03,960 know that your child is done in some way. 50 00:03:03,960 --> 00:03:08,080 But you think it's unique. But I've read the books and it's 51 00:03:08,080 --> 00:03:12,240 common. Like, you know, when your child 52 00:03:12,240 --> 00:03:18,120 needs something and you sense it and and that's known by 53 00:03:18,120 --> 00:03:21,840 everybody, but because it's unique in your house, because 54 00:03:21,840 --> 00:03:25,280 you're only have one child or may have two, but it's not 55 00:03:25,280 --> 00:03:28,240 common, you kind of just put, ah, be a coincidence. 56 00:03:29,040 --> 00:03:31,960 What I discovered when reading all of these books was that 57 00:03:33,040 --> 00:03:37,920 spelling, by using a stencil cut out letter board and enabling 58 00:03:37,920 --> 00:03:43,160 gross motor skills to point to those letters means that every 59 00:03:43,160 --> 00:03:45,800 child when they learn to do it. And here's the kicker. 60 00:03:45,880 --> 00:03:50,200 OK, no one has ever failed to do it. 61 00:03:52,120 --> 00:03:55,320 No one. It has 100% success rate. 62 00:03:55,880 --> 00:03:59,280 Now everyone kind of frowns at that point and goes, well why 63 00:03:59,280 --> 00:04:02,200 doesn't I know about it? Well, why doesn't the world know 64 00:04:02,200 --> 00:04:04,600 about it? That's why I cried my eyes out 65 00:04:04,600 --> 00:04:08,880 in my van because I thought, who's going to tell this story? 66 00:04:09,080 --> 00:04:12,360 Who's going to carry this forward and help every parent of 67 00:04:12,360 --> 00:04:16,839 every non speaker to just presume competence in their 68 00:04:16,839 --> 00:04:21,560 child and have belief that they can do it and give them the 69 00:04:21,560 --> 00:04:24,600 opportunity and share the kind of love that parents have with 70 00:04:24,600 --> 00:04:27,680 their kids to enable this thing to happen. 71 00:04:27,840 --> 00:04:33,240 If it's happened 100% of the time, what's the worst thing 72 00:04:33,240 --> 00:04:39,080 that can happen if you try? Like the alphabet has got 26 73 00:04:39,080 --> 00:04:40,480 letters. I got that wrong the other day 74 00:04:40,480 --> 00:04:43,880 when I was talking to someone. It's got 26 letters in it. 75 00:04:44,120 --> 00:04:48,400 The entire Internet is created from 26 letters. 76 00:04:48,960 --> 00:04:51,920 Give your children the opportunity to communicate with 77 00:04:51,920 --> 00:04:54,200 it. That's the world. 78 00:04:54,680 --> 00:04:56,520 That's what we do, and that's only the starting point. 79 00:04:56,520 --> 00:04:58,440 And that's kind of it. That's where my passion comes 80 00:04:58,440 --> 00:05:01,920 from, reading the books, assimilating the information, 81 00:05:02,080 --> 00:05:04,000 turning it into 5 minute read articles. 82 00:05:04,080 --> 00:05:07,600 Created a Facebook group where I could post the articles called 83 00:05:07,600 --> 00:05:11,640 Presume Competence and it's just the stuff I've posted. 84 00:05:11,640 --> 00:05:14,920 People comment about it and see it and read it, pass it on. 85 00:05:14,920 --> 00:05:18,440 The the comments on it are amazing and most days bring me 86 00:05:18,440 --> 00:05:22,840 to tears because people are discovering that it's there and 87 00:05:22,840 --> 00:05:24,840 that they can find a practitioner. 88 00:05:24,840 --> 00:05:28,640 The challenge we have in the UK is there are currently, I think 89 00:05:28,840 --> 00:05:32,480 18 practitioners around the UK. There's one gentleman in the 90 00:05:32,480 --> 00:05:35,400 audience who's the luckiest man in the room because he lives in 91 00:05:35,400 --> 00:05:37,680 Wrexham and he's got two people in Wrexham. 92 00:05:38,680 --> 00:05:42,600 James is somewhere around here there, he's over there and and 93 00:05:43,000 --> 00:05:47,480 and they're scattered around the rest of the country, but they 94 00:05:47,520 --> 00:05:51,320 teach people to commute, teach autistic non speakers to 95 00:05:51,320 --> 00:05:54,400 communicate using letter boards and the world opens up for them 96 00:05:55,120 --> 00:06:01,240 And it's it's jaw-dropping. I sat in June with a young guy 97 00:06:01,240 --> 00:06:05,120 called Paddy Curran, a non speaker from Birmingham. 98 00:06:05,760 --> 00:06:09,800 And I was lucky and very privileged to sit down for an 99 00:06:09,800 --> 00:06:12,840 hour with him and spell literally holding up the board 100 00:06:13,560 --> 00:06:16,080 and he communicate with me by spelling letter to letter. 101 00:06:16,080 --> 00:06:20,200 We had a conversation and I'm trying really hard not to cry my 102 00:06:20,200 --> 00:06:26,080 eyes out now because I feel the difference between that 103 00:06:26,080 --> 00:06:29,920 conversation and where most people in the room are now that 104 00:06:29,960 --> 00:06:34,720 Imagine the magic of being able to have that and then imagine 105 00:06:34,760 --> 00:06:40,160 the words that can come through because every single child is 106 00:06:40,160 --> 00:06:44,400 already at the level of their age inside. 107 00:06:44,640 --> 00:06:46,880 You know it, you genuinely know it. 108 00:06:47,320 --> 00:06:51,520 You just have that last bit you've got across to get to that 109 00:06:52,800 --> 00:06:54,600 presumed competence, belief, love. 110 00:06:54,920 --> 00:06:58,520 And then the wow moment because when you watch the Spellers 111 00:06:58,520 --> 00:07:02,520 movie, that's what I cried at. It was the moment the parents 112 00:07:02,520 --> 00:07:04,960 sat in the background watching the speller for the first time 113 00:07:05,280 --> 00:07:10,200 and there are moved to answer a question and and they typed the 114 00:07:10,200 --> 00:07:13,520 answer to the question and the parents are just like what? 115 00:07:15,200 --> 00:07:17,120 I drove my car. I can't remember the episode 116 00:07:17,120 --> 00:07:18,320 number. I wish I'd made a note of it 117 00:07:18,320 --> 00:07:21,320 before it came. But I was driving my car again 118 00:07:21,320 --> 00:07:25,480 on the M1 and and you guys were on and I was listening to the 119 00:07:25,480 --> 00:07:28,840 first moment that Thomas sent a text message. 120 00:07:28,840 --> 00:07:30,400 Oh yeah, you talked about it, Do you? 121 00:07:30,400 --> 00:07:32,360 Remember the text message when he he put? 122 00:07:32,800 --> 00:07:35,520 No, it wasn't. He put Nah something don't 123 00:07:36,800 --> 00:07:39,880 remember. He put you you'd sent it me and 124 00:07:39,880 --> 00:07:41,840 it was like Nah juice or something like that. 125 00:07:42,120 --> 00:07:44,760 But the Nah was but it it it typed out juice. 126 00:07:44,960 --> 00:07:47,080 It was that bit. And, and here's and here's what 127 00:07:47,080 --> 00:07:49,960 happened. I screamed at the loudest 128 00:07:49,960 --> 00:07:52,760 possible voice. I can't really swear as loud as 129 00:07:52,760 --> 00:07:57,120 I did on that one, but it was like, but sake, I need to speak 130 00:07:57,120 --> 00:07:59,280 to you. He can communicate. 131 00:07:59,640 --> 00:08:02,400 The doors open in miracles are on their way. 132 00:08:02,520 --> 00:08:04,080 That's what it is, yeah. Genuinely what? 133 00:08:04,080 --> 00:08:05,480 He sent a message quite quick after that. 134 00:08:05,480 --> 00:08:07,040 In fact, you'd messaged before that. 135 00:08:07,040 --> 00:08:09,280 And admittedly, because we get a lot of messages, a lot of them 136 00:08:09,280 --> 00:08:11,560 are because people are trying to get some kind of commercial 137 00:08:11,560 --> 00:08:14,040 benefit from, you know, hey, that's something really 138 00:08:14,040 --> 00:08:15,320 interesting for you. Like, yeah, how much money do 139 00:08:15,320 --> 00:08:16,480 you want? So initially when you sent that 140 00:08:16,480 --> 00:08:18,320 message and you're like, there's a Facebook group, I was like, 141 00:08:18,320 --> 00:08:20,240 this looks great. And I was like, this, this can't 142 00:08:20,240 --> 00:08:23,240 just be as simple as this. And then that had happened and 143 00:08:23,240 --> 00:08:26,600 he messes again and he was almost going fuck, fuck sake I 144 00:08:26,640 --> 00:08:28,920 don't want your money. Just read. 145 00:08:28,920 --> 00:08:31,680 This and I was like oh OK and then I didn't know you were 146 00:08:31,680 --> 00:08:33,600 coming today in two you turned up and then you were here I was 147 00:08:33,600 --> 00:08:37,559 just I was over the moon so and and there's nothing in this for 148 00:08:37,559 --> 00:08:41,159 you you've come from outside in so you don't even have a direct 149 00:08:41,520 --> 00:08:44,320 connection with any family members with autism. 150 00:08:44,920 --> 00:08:48,320 It's just something that just. All that level of research. 151 00:08:48,680 --> 00:08:52,640 Was thinking it. But he was going to be a little 152 00:08:52,680 --> 00:08:58,720 bit of autism there. I get a bit four and then I do 153 00:08:58,720 --> 00:09:00,200 this for three hours straight I think. 154 00:09:00,760 --> 00:09:02,960 Every everybody here was like. Yeah. 155 00:09:04,320 --> 00:09:06,280 Yeah, you have got a wings of. Autism eventually. 156 00:09:06,720 --> 00:09:08,440 Yeah, but on a serious. No child. 157 00:09:08,720 --> 00:09:12,040 Obviously. But on the serious note, the is 158 00:09:12,040 --> 00:09:14,760 it the presumed competence? Yeah, yeah, that that is 159 00:09:14,760 --> 00:09:16,360 massive. We've talked about that before. 160 00:09:16,760 --> 00:09:23,240 We've all seen clips of autistic teenagers or adults when they've 161 00:09:23,240 --> 00:09:25,520 been talking to their parents and they have become verbal, for 162 00:09:25,520 --> 00:09:27,080 instance. So communicate. 163 00:09:27,120 --> 00:09:30,680 They've always said, I was in there, I was trying to 164 00:09:30,680 --> 00:09:33,200 communicate with you. I thought I was communicating 165 00:09:33,200 --> 00:09:34,640 with you and you just weren't picking it up. 166 00:09:35,320 --> 00:09:38,480 So that presumed competence is a real, real big thing. 167 00:09:38,480 --> 00:09:40,680 And as parents, we don't do it because obviously we're trying 168 00:09:40,680 --> 00:09:42,400 to protect ourselves from. We've said this earlier, do you 169 00:09:42,400 --> 00:09:44,160 want something to happen? Defend yourself. 170 00:09:44,200 --> 00:09:46,200 Yeah, I won't. I won't presume too much 171 00:09:46,200 --> 00:09:48,440 competence because I'll just get upset and it's all about me 172 00:09:48,440 --> 00:09:49,480 again, isn't it? When? 173 00:09:49,600 --> 00:09:50,880 Yeah, absolutely. Absolutely. 174 00:09:50,880 --> 00:09:53,920 There's a there's a there's So because I've read so many books, 175 00:09:53,920 --> 00:09:57,080 there are some that come to mind that are really easy, easy reads 176 00:09:57,080 --> 00:09:59,760 and quick. One of them is a book called 177 00:09:59,800 --> 00:10:05,480 Underestimated by JB Handley. He's his son features in the 178 00:10:05,880 --> 00:10:13,160 Spellers movie and he's a guy that got to the end of his 179 00:10:13,160 --> 00:10:17,880 belief in anything in being able to find his son inside. 180 00:10:17,880 --> 00:10:21,160 He's kind of settled on the IT is what it is space. 181 00:10:21,880 --> 00:10:26,080 And then a friend of his recommended who put their child 182 00:10:26,080 --> 00:10:29,120 into a spelling programme. And I say a spelling programme. 183 00:10:29,120 --> 00:10:32,320 They'd gone and done a session like it was a session and they 184 00:10:32,320 --> 00:10:34,320 sent him a text message and he was like bullshit. 185 00:10:35,440 --> 00:10:37,200 No. And then he was like held it up 186 00:10:37,200 --> 00:10:41,520 and was like, well, I trust him, but really. 187 00:10:42,640 --> 00:10:45,280 And they, oh, he must be a miracle child, right? 188 00:10:45,640 --> 00:10:52,480 And this is the bit that kind of catches me every time is there 189 00:10:52,480 --> 00:10:57,600 is a speller in every town in the UK, right? 190 00:10:57,600 --> 00:10:59,720 There is a speller in every town in the UK. 191 00:11:00,160 --> 00:11:03,960 They're there somewhere because there are 4 methods that have 192 00:11:03,960 --> 00:11:06,280 been around for nearly 20 years, right? 193 00:11:06,560 --> 00:11:11,840 But because there's no academic proof and there's no like it's 194 00:11:13,360 --> 00:11:16,360 academia will will strive to show it doesn't work. 195 00:11:16,360 --> 00:11:18,640 They won't show to strive that it works. 196 00:11:19,000 --> 00:11:22,640 It's not a system that's set up like that because you will all 197 00:11:22,640 --> 00:11:25,120 think, Oh my goodness, it's a one in a million child. 198 00:11:25,720 --> 00:11:30,320 No, they're everywhere. Next year I will create a 199 00:11:30,320 --> 00:11:34,880 presumed competence day where there will be videos of from 200 00:11:34,880 --> 00:11:39,240 every parent telling every other parent in the UK why they should 201 00:11:39,240 --> 00:11:41,880 discover this and what it's done to their family. 202 00:11:42,240 --> 00:11:45,120 Why? Because I will create the 203 00:11:45,120 --> 00:11:49,840 presumed competence peace that enables there to be a spelling 204 00:11:49,840 --> 00:11:53,280 practitioner in every town or city in the UK, which means that 205 00:11:53,280 --> 00:11:56,920 no one will have to drive more than 30 miles, 30 minutes to get 206 00:11:56,920 --> 00:12:00,240 there. That's that's my commitment from 207 00:12:00,240 --> 00:12:03,520 the outside, purely as a philanthropic effort to get 208 00:12:03,520 --> 00:12:07,160 there, I've created a, or in the process of creating a no, a no 209 00:12:07,160 --> 00:12:10,160 cost, low cost website calledpresumecompetence.co.uk. 210 00:12:10,480 --> 00:12:12,960 The idea of that is just that you can find the resources, you 211 00:12:12,960 --> 00:12:16,160 can find the articles, you can read it, you can, you can. 212 00:12:16,160 --> 00:12:19,840 Then when it's set up, there'll be video content there of how to 213 00:12:19,840 --> 00:12:21,720 do these things. It's all free. 214 00:12:21,720 --> 00:12:24,800 The whole point is there's no cost to learning and it's so 215 00:12:24,840 --> 00:12:30,360 easy and you can, I think. Protisty related that is free 216 00:12:31,200 --> 00:12:33,800 would be amazing. OK, let me give you give me give 217 00:12:33,800 --> 00:12:36,960 you a bit of a shock. OK, so September 2025 there are 218 00:12:36,960 --> 00:12:42,960 205,182 people waiting for a diagnosis. 90% of them are more 219 00:12:42,960 --> 00:12:46,440 than 13 weeks and the average weight is 16 months. 220 00:12:46,760 --> 00:12:50,200 OK, that means that every day that passes there are more 221 00:12:50,200 --> 00:12:52,120 people on the list making the list longer. 222 00:12:52,760 --> 00:12:56,080 OK, so there's no more resources being allocated to make it move 223 00:12:56,080 --> 00:12:57,920 faster. It's only going to get worse. 224 00:12:58,080 --> 00:13:05,760 OK, so the National Autistic Society has an income of £99.8 225 00:13:05,760 --> 00:13:11,760 million last year. OK, go to their annual report. 226 00:13:11,960 --> 00:13:15,680 Read page 4. You'll see how many people they 227 00:13:15,680 --> 00:13:20,120 claim to have helped. The number doesn't match £99.6 228 00:13:20,120 --> 00:13:22,320 million. It's very, very small by 229 00:13:22,320 --> 00:13:24,800 comparison. OK, there's an awful lot of 230 00:13:24,800 --> 00:13:30,080 money that helps not a lot of people according to their annual 231 00:13:30,080 --> 00:13:33,320 report. OK, that's the injustice I saw. 232 00:13:34,920 --> 00:13:38,160 NICE recommends that you should be seen within 13 weeks. 233 00:13:38,240 --> 00:13:42,240 The average is 16 months. The gentleman that spoke before 234 00:13:42,240 --> 00:13:45,560 me was like, I was just sitting there just thinking, Oh my 235 00:13:45,560 --> 00:13:50,600 goodness, this is everything that the system doesn't allow 236 00:13:50,600 --> 00:13:52,400 it. So how do we change the system? 237 00:13:52,960 --> 00:13:56,000 That's the important part. The system doesn't change with 238 00:13:56,000 --> 00:13:57,480 politicians. It change with the 239 00:13:57,480 --> 00:13:59,280 administration, people that support it. 240 00:13:59,520 --> 00:14:02,240 They're the people that control this, the decision makers. 241 00:14:02,240 --> 00:14:05,040 The, the decisions are made by the politicians, but they're all 242 00:14:05,040 --> 00:14:09,040 gone in well, depends on how long governments last, but those 243 00:14:09,040 --> 00:14:11,440 people just it's just a revolving door. 244 00:14:11,800 --> 00:14:16,040 So this what has to change is the way we or sorry, the parents 245 00:14:16,040 --> 00:14:21,920 of the people who need the help the most, how they access what's 246 00:14:21,920 --> 00:14:23,800 available to get the best outcome. 247 00:14:24,120 --> 00:14:26,720 You guys have talked about it numerous times and everyone in 248 00:14:26,720 --> 00:14:31,320 this room will have as well that it's about now, but it's also 249 00:14:31,320 --> 00:14:34,360 about that feeling of when I'm not here, what next? 250 00:14:34,560 --> 00:14:37,280 What's going to happen? Well, that's what has to happen 251 00:14:37,280 --> 00:14:40,640 now. The work to change that has to 252 00:14:40,640 --> 00:14:43,400 change. It has to be done so that the 253 00:14:43,400 --> 00:14:46,000 systems are in place to support those people. 254 00:14:47,000 --> 00:14:50,920 The world has a lot of new people coming to support the 255 00:14:50,920 --> 00:14:53,000 category from outside the category. 256 00:14:55,040 --> 00:14:58,760 Many of them are doing this because they know it's the right 257 00:14:58,760 --> 00:15:02,240 thing to do. I'm coming to it because I just 258 00:15:02,240 --> 00:15:07,560 saw the opportunity to not just press pause on a podcast and 259 00:15:07,560 --> 00:15:11,840 stop listening. You know that the the passion is 260 00:15:11,840 --> 00:15:14,040 in the information that the spellers have given and they've 261 00:15:14,040 --> 00:15:17,760 written books, which is one thing that then has enabled me 262 00:15:17,760 --> 00:15:21,280 to be able to tell the stories and to help people to understand 263 00:15:21,280 --> 00:15:24,360 what can be done. Like a spelling board is the 264 00:15:24,360 --> 00:15:26,480 world's cheapest education device. 265 00:15:26,800 --> 00:15:30,280 The effort to learn how to use it to understand Co regulation 266 00:15:30,280 --> 00:15:34,040 as a parent to understand apraxia and how the brain body 267 00:15:34,040 --> 00:15:38,880 disconnect works or doesn't work and how all of the inputs of the 268 00:15:38,880 --> 00:15:42,840 senses come into to understanding what's going on 269 00:15:42,920 --> 00:15:46,760 inside your child from the inside out. 270 00:15:46,960 --> 00:15:51,160 Not the way the system looks at it from the outside in. 271 00:15:51,960 --> 00:15:55,800 Everyone can do that. It doesn't take many of those 5 272 00:15:55,800 --> 00:15:58,560 minute reads on the presumed competence page for you to go, 273 00:15:58,560 --> 00:16:01,040 oh, I didn't think about it like that. 274 00:16:01,880 --> 00:16:08,760 Maybe if I regulate myself and then see what happens, maybe 275 00:16:08,760 --> 00:16:13,240 that might help change something and just try it and see, because 276 00:16:13,760 --> 00:16:15,840 that's all I've done in reading, just seeing. 277 00:16:15,840 --> 00:16:18,120 That's what works. That's why it works and how it 278 00:16:18,120 --> 00:16:19,960 works. And I'm, as you can probably 279 00:16:19,960 --> 00:16:22,040 tell, I'm passionate about this. You can tell. 280 00:16:22,240 --> 00:16:26,920 And I, and I kind of saw, I kind of saw the opportunity to, to 281 00:16:26,920 --> 00:16:31,880 reach out and then reach much further with what the what can 282 00:16:31,880 --> 00:16:35,160 be achieved. Because yes, I've said it, I've 283 00:16:35,320 --> 00:16:36,960 recorded it. You guys, guys are going to 284 00:16:36,960 --> 00:16:39,600 broadcast it now. I put my own flag in the ground 285 00:16:39,600 --> 00:16:42,120 and gone. I've got to deliver this because 286 00:16:42,280 --> 00:16:46,240 if every parent in the UK saw a video of another parent saying 287 00:16:46,240 --> 00:16:48,880 you should do this, I've done it, Look what it difference it 288 00:16:48,880 --> 00:16:51,680 made. To me, that's like parental 289 00:16:51,680 --> 00:16:54,600 endorsement, not commercial endorsement. 290 00:16:55,360 --> 00:16:59,320 Then I've got to get the system that enables parents to become 291 00:16:59,320 --> 00:17:02,160 learners of a method and I've got to provide the method 292 00:17:02,160 --> 00:17:04,240 resource for free. That's easy. 293 00:17:04,440 --> 00:17:06,400 AI can help with a huge amount of that. 294 00:17:06,720 --> 00:17:09,079 You know, we don't have to do a massive amount of video 295 00:17:09,079 --> 00:17:11,200 recording on people. We can just type in the words 296 00:17:11,200 --> 00:17:14,079 that need to be used, edit it to write bit, and you can see how 297 00:17:14,079 --> 00:17:16,200 to do it. There are no secrets in this. 298 00:17:16,440 --> 00:17:22,680 If you go to the website communication#4communication4all.org 299 00:17:23,359 --> 00:17:29,040 then or that's Elizabeth Bonker as a non speaker who did a 300 00:17:29,320 --> 00:17:34,040 commencement speech at her passing out. 301 00:17:34,040 --> 00:17:35,960 No, it's not called passing out when you get a degree. 302 00:17:36,000 --> 00:17:37,040 I've forgotten forgotten the word. 303 00:17:37,040 --> 00:17:41,400 Thank you graduation. It was viewed 4 billion times, 304 00:17:42,120 --> 00:17:45,480 right? A non speaker communicated using 305 00:17:45,480 --> 00:17:50,640 spelling boards prior then put it into audio and it was spoken 306 00:17:50,800 --> 00:17:53,600 4 billion views from a non speaker, right? 307 00:17:54,400 --> 00:17:57,960 Then she created a an organisation that gives away all 308 00:17:57,960 --> 00:18:00,720 the how to use spelling boards for free. 309 00:18:02,200 --> 00:18:04,800 All we got to do is direct people to those and then you can 310 00:18:04,800 --> 00:18:11,640 get started. Because I feel like AI feel like 311 00:18:11,640 --> 00:18:15,840 it's a miracle moment talking to you guys and talking to the 312 00:18:15,840 --> 00:18:21,800 audience because you as parents can deliver that your own 313 00:18:21,800 --> 00:18:25,000 miracle in your own house with your own child to your own 314 00:18:25,000 --> 00:18:27,640 family. Like that's that. 315 00:18:27,640 --> 00:18:31,720 Don't come along everyday, you know, and I and I I want to 316 00:18:31,720 --> 00:18:34,800 thank you for the opportunity to let me talk and explain it. 317 00:18:35,160 --> 00:18:39,600 There's a whole host more stuff that I that I know and that I 318 00:18:40,000 --> 00:18:42,600 even chip in when you're you guys are talking on your podcast 319 00:18:42,600 --> 00:18:49,040 going you should know this. It's it's an amazing, amazing 320 00:18:49,040 --> 00:18:52,560 thing to have discovered and to have learnt that my learning 321 00:18:52,560 --> 00:18:55,440 only comes from the kids that spell. 322 00:18:56,360 --> 00:18:57,680 That's that's what that's it. It's. 323 00:18:58,080 --> 00:19:01,840 Amazing, that's. The will could do with more of 324 00:19:01,840 --> 00:19:04,520 you mate. I've been trying to clone myself 325 00:19:04,520 --> 00:19:06,240 but I don't know it hasn't worked yet if you. 326 00:19:06,600 --> 00:19:11,120 Can mate just as a as a dad mate, everything you're doing, 327 00:19:11,120 --> 00:19:13,600 you don't have to do it. So thank you. 328 00:19:14,920 --> 00:19:17,800 And sometimes it needs an excite perspective of someone looking 329 00:19:17,800 --> 00:19:20,080 in that isn't a parent. Sometimes when you're a parent, 330 00:19:20,080 --> 00:19:23,840 like the stuff that Thomas does and we try and sell it to 331 00:19:23,840 --> 00:19:25,640 another parent very easily, another parent could go. 332 00:19:25,640 --> 00:19:29,080 Yeah, but my kid won't do that. Well, sometimes someone looking 333 00:19:29,080 --> 00:19:32,520 outwards in because, I mean, we've, I, I wrote Thomas off 334 00:19:32,960 --> 00:19:36,040 very early on. You know, you probably did a bit 335 00:19:36,040 --> 00:19:37,800 more than me. Yeah. 336 00:19:38,720 --> 00:19:40,600 And he's just blown us away the last, I mean, the last 12 337 00:19:40,600 --> 00:19:42,160 months, the age of three, I think like Lydia's age. 338 00:19:42,160 --> 00:19:47,880 That would really. Really struggle with this 339 00:19:47,960 --> 00:19:51,600 because he was developing, but our communication wasn't. 340 00:19:51,720 --> 00:19:55,720 So the meltdowns were just intense and frequent and a lot 341 00:19:55,720 --> 00:19:59,120 and we were both just clashing. And I mean, in lockdown, I said 342 00:19:59,120 --> 00:20:00,640 to you and I was like, you're going to have to quit work 343 00:20:00,640 --> 00:20:02,920 because I can't, cannot be in the house with him on my own. 344 00:20:02,920 --> 00:20:04,600 It's too hard to. Get the motion. 345 00:20:05,120 --> 00:20:06,720 Right, yeah. And so to see him now. 346 00:20:08,000 --> 00:20:10,960 Now he's like juice, I'm like cool. 347 00:20:10,960 --> 00:20:13,120 I mean he's got his AC device. He could just hit the squares, 348 00:20:13,120 --> 00:20:14,640 the tiles. In fact, that would be easier. 349 00:20:14,960 --> 00:20:17,280 He doesn't. He goes Nah, keyboard and he 350 00:20:17,280 --> 00:20:20,360 spells and we're like fucking. So what So what I have to say 351 00:20:20,360 --> 00:20:22,680 about that and this this is kind of a little bit controversial, 352 00:20:22,680 --> 00:20:25,360 but this is kind of like I like controversial if you if you step 353 00:20:25,360 --> 00:20:27,680 back for a moment. So you guys, you guys are 354 00:20:27,680 --> 00:20:30,960 familiar with computers and and Hertz rates on you OK, so 355 00:20:30,960 --> 00:20:35,600 refresh rates on a screen when you have a a electronic device, 356 00:20:35,960 --> 00:20:41,080 it refreshes the picture 50 Hertz or 100 times a second you. 357 00:20:41,280 --> 00:20:42,680 Can't be human. I can't pick it up. 358 00:20:42,680 --> 00:20:45,760 OK, well. OK, OK, so, so this is the key 359 00:20:45,760 --> 00:20:48,560 part this keep up right you're you're. 360 00:20:49,120 --> 00:20:52,920 Your. Children have an ability that 361 00:20:52,920 --> 00:20:57,440 you don't, you're not aware of, OK, They see things differently. 362 00:20:57,440 --> 00:21:00,320 They don't need to look at things they don't. 363 00:21:00,440 --> 00:21:05,640 They have complete vision in both eyes, right at a high 364 00:21:05,640 --> 00:21:08,600 definition level. So when you look at a screen, 365 00:21:08,760 --> 00:21:14,000 it's doing this 100 times a second, OK, Two different lots 366 00:21:14,000 --> 00:21:18,600 of information and going on the screen 100 times a second, that 367 00:21:18,600 --> 00:21:23,160 causes a real challenge in concentration to concentrate on 368 00:21:23,160 --> 00:21:25,040 that image now. Now let's start with an AC 369 00:21:25,240 --> 00:21:29,120 device and say it's got a picture, words and letters got 370 00:21:29,120 --> 00:21:31,280 three things. They've got to try and work out 371 00:21:31,280 --> 00:21:33,400 what it is. Now while the refresh. 372 00:21:33,480 --> 00:21:36,080 Rate whilst the refresh rate is going OK and it's got blue 373 00:21:36,080 --> 00:21:40,160 light, yeah, so we all know what blue light does for neurotypical 374 00:21:40,160 --> 00:21:41,840 people. I have to check my words in 375 00:21:41,840 --> 00:21:45,720 because that's one of the land mines I sometimes tread on. 376 00:21:45,720 --> 00:21:53,280 OK, so so that it's it's different, but because we're 377 00:21:53,280 --> 00:21:57,600 looking from the outside in, we only think tech works for us, 378 00:21:58,040 --> 00:22:01,560 you know, but that tech is like it's doing this. 379 00:22:03,360 --> 00:22:07,200 So it might work, but the challenge is most people are not 380 00:22:07,200 --> 00:22:11,640 aware of optical dyspraxia. So in the room you've got in 381 00:22:11,640 --> 00:22:15,720 your audience, many of not saying the majority, but to the 382 00:22:15,720 --> 00:22:19,080 information that I've got is more than 60% of autistic non 383 00:22:19,080 --> 00:22:22,040 speakers specifically have optical dyspraxia. 384 00:22:22,040 --> 00:22:25,320 So for example, the people in the room and the cameras might 385 00:22:25,320 --> 00:22:28,000 not pick this up, but I can control my 2 individual eyes 386 00:22:28,000 --> 00:22:30,600 like this. So I so I can move my eyes 387 00:22:30,600 --> 00:22:34,960 independently, right? Most autistic people, children, 388 00:22:35,200 --> 00:22:37,800 the majority of them have independent control of the eye. 389 00:22:38,040 --> 00:22:40,720 SO2 images are going on the background of their eye. 390 00:22:41,000 --> 00:22:43,680 I see double all the time. I can see double of this 391 00:22:43,680 --> 00:22:44,440 audience. OK. 392 00:22:44,840 --> 00:22:50,360 So your images are about 30° separated and doubled for me, 393 00:22:50,880 --> 00:22:54,760 OK, I can block out because I learned how to do it when I was 394 00:22:54,760 --> 00:22:56,400 13. I can block out one of the 395 00:22:56,400 --> 00:22:59,280 images, but if I get tired, suddenly there are two. 396 00:22:59,760 --> 00:23:03,080 But there's also 1/3, which is the overlap image and that 397 00:23:03,080 --> 00:23:04,200 strobes. OK. 398 00:23:05,360 --> 00:23:09,680 Many autistics that come in spell when they're able to spell 399 00:23:09,680 --> 00:23:12,560 and have a conversation about eyesight explain this. 400 00:23:12,920 --> 00:23:17,400 It can be diagnosed, but you don't go to a optician to get 401 00:23:17,400 --> 00:23:21,160 this bit done, OK? If you threw me a tennis ball 402 00:23:21,160 --> 00:23:23,520 from the back, now I won't be able to catch it. 403 00:23:23,840 --> 00:23:27,800 I don't see in three, DI can have a go at trying to catch the 404 00:23:27,800 --> 00:23:31,320 one that I think I'm trying to catch, but I'm not likely to. 405 00:23:31,520 --> 00:23:35,160 Does this sound familiar to anyone with your children? 406 00:23:36,920 --> 00:23:39,360 Yeah, it's kind of like it's it's kind of like one of those 407 00:23:39,360 --> 00:23:44,200 things you you you look and you see it's not happening. 408 00:23:44,720 --> 00:23:50,040 OK, so that's one of the senses. OK, I can throw you more and 409 00:23:50,040 --> 00:23:55,360 more and more out headphones. Everybody knows that neuro 410 00:23:55,360 --> 00:23:58,200 divergent children often wear headphones because sound is a 411 00:23:58,200 --> 00:24:03,160 real problem, OK, the ear hears between or sorry, the the 412 00:24:03,320 --> 00:24:08,400 neurotypical ear hears between 20 Hertz and 20,020 Hertz is 413 00:24:08,400 --> 00:24:11,160 really deep and 20,000 is super high. 414 00:24:11,320 --> 00:24:16,080 OK Autistic children hear way beyond that spectrum, like right 415 00:24:16,080 --> 00:24:22,360 down to the less than ones. OK, So in a room, in any room in 416 00:24:22,360 --> 00:24:26,560 any environment apart from outside, OK, in a open grassy 417 00:24:26,560 --> 00:24:30,600 area, they can hear literally everything. 418 00:24:31,160 --> 00:24:36,920 Now I have a audio issue similar, which is I can hear all 419 00:24:36,920 --> 00:24:41,320 of the noises in this room at the same level, not volume. 420 00:24:41,960 --> 00:24:45,000 So if I'm in a crowded room, I kind of have to lean on my hand 421 00:24:45,400 --> 00:24:48,400 arm like this and cut my ear to be able to hear the person 422 00:24:48,400 --> 00:24:51,360 that's talking. And I thought I had a hearing 423 00:24:51,360 --> 00:24:53,560 problem, went and checked it out no problem whatsoever. 424 00:24:54,840 --> 00:24:59,280 And I realised that it's the I can hear multiple sounds at the 425 00:24:59,280 --> 00:25:02,360 same level. And when I came into this 426 00:25:02,360 --> 00:25:05,040 category, I suddenly realised that's what's going on. 427 00:25:05,800 --> 00:25:07,600 Like you guys can hear the fan above you. 428 00:25:08,240 --> 00:25:10,960 I can hear, I can hear the refrigerators in the back of 429 00:25:10,960 --> 00:25:15,720 this room right at the same level as the noise, but not the 430 00:25:15,720 --> 00:25:18,600 same volume. It's an input that is kind of 431 00:25:18,600 --> 00:25:20,680 creating a mist of noise in my ears. 432 00:25:21,640 --> 00:25:26,440 When you put a noise reduction headphone or a muffled 433 00:25:26,440 --> 00:25:30,560 headphone, children become much better regulated. 434 00:25:30,560 --> 00:25:33,080 Not completely, but much better than they were. 435 00:25:33,320 --> 00:25:36,400 Why? Because they can hear Wi-Fi like 436 00:25:36,400 --> 00:25:38,200 it's a frequency. The Transformers on this 437 00:25:38,200 --> 00:25:41,120 Christmas tree, same thing. Imagine all of that noise going 438 00:25:41,120 --> 00:25:44,680 in at once. That's what overloads their 439 00:25:44,680 --> 00:25:47,040 sensory system. There's an article in the 440 00:25:47,040 --> 00:25:49,960 presumed competent site called the Six Buckets of Regulations. 441 00:25:50,120 --> 00:25:56,760 6 buckets of regulation, which is each sense is like a bucket. 442 00:25:56,760 --> 00:25:59,880 So site is a bucket. Above the bucket is a tap. 443 00:26:00,560 --> 00:26:03,840 The information that goes into the site bucket you can, the tap 444 00:26:03,840 --> 00:26:05,920 turns on, there's more information going in. 445 00:26:06,240 --> 00:26:08,760 So it might be fluorescent lights, it might be lots of 446 00:26:08,760 --> 00:26:12,640 people, lots of colours, lots of things move in that bucket along 447 00:26:12,640 --> 00:26:14,840 with all the others can fill up really quickly. 448 00:26:14,840 --> 00:26:18,240 Every person's buckets a different size and the tap is 449 00:26:18,240 --> 00:26:19,720 different depending on the environment. 450 00:26:20,400 --> 00:26:22,720 So the tap can turn in and overflow the bucket. 451 00:26:23,040 --> 00:26:25,400 You've got five of them underneath the bucket. 452 00:26:25,400 --> 00:26:29,440 That is an emotion bucket. OK, So what happens is the sight 453 00:26:29,520 --> 00:26:31,880 bucket overflows. It fills the emotion bucket 454 00:26:31,880 --> 00:26:33,920 really quickly. And what happens next as a 455 00:26:33,920 --> 00:26:37,480 meltdown? What we don't do because the 456 00:26:37,480 --> 00:26:40,400 sound isn't effectiveness or the sight isn't effectiveness or 457 00:26:40,400 --> 00:26:42,160 whatever sense isn't effectiveness. 458 00:26:43,240 --> 00:26:45,480 We don't see that from the we sorry. 459 00:26:45,600 --> 00:26:50,400 We see that from the outside in, not the inside out. 460 00:26:51,800 --> 00:26:57,320 So if you if you're aware of that sensory input, you can see 461 00:26:57,320 --> 00:27:00,800 the opportunity for a meltdown and avoiding it in advance. 462 00:27:01,720 --> 00:27:04,720 You guys know that you all know to not go to certain places. 463 00:27:04,720 --> 00:27:09,200 There are other places where stimulation is required in order 464 00:27:09,200 --> 00:27:12,520 to regulate. There's a lady that was talking 465 00:27:12,520 --> 00:27:17,000 earlier on to me who was explaining about, no, sorry, 466 00:27:17,000 --> 00:27:19,960 gentleman was explaining going to Disneyland and going on the 467 00:27:19,960 --> 00:27:22,600 rides and roller coasters. And it kind of regulated their 468 00:27:22,600 --> 00:27:28,200 child for like a week afterwards because the stimulation was so 469 00:27:28,200 --> 00:27:31,200 much that they managed to regulate themselves somehow. 470 00:27:31,200 --> 00:27:35,880 And, and I said one of the challenges I've got is said how 471 00:27:35,880 --> 00:27:39,360 about it wasn't just the child regulating. 472 00:27:39,560 --> 00:27:42,560 How about it was you and your family because you weren't 473 00:27:42,560 --> 00:27:46,200 worrying about the bus, the bill, the like all the things 474 00:27:46,200 --> 00:27:49,840 that are negative and pressing down on you during that time, 475 00:27:49,960 --> 00:27:51,560 you're actually having a good time. 476 00:27:51,560 --> 00:27:55,680 And you were playing another one was someone, that's another 477 00:27:55,680 --> 00:28:00,000 person I spoke to you today that was talking about how this their 478 00:28:00,000 --> 00:28:02,120 child loved going to the swimming pool. 479 00:28:02,720 --> 00:28:06,080 You all know that they love going to the swimming pool. 480 00:28:06,280 --> 00:28:08,920 OK. It's common across everybody, 481 00:28:09,080 --> 00:28:11,200 guys. It's because it's a regulation 482 00:28:11,200 --> 00:28:14,040 method. It's in hundreds of books. 483 00:28:14,800 --> 00:28:16,960 They all talk about it. Go to the seaside, go to the 484 00:28:16,960 --> 00:28:19,320 sea, get in the water, get in a swimming pool. 485 00:28:19,440 --> 00:28:23,080 It's like a regulation method, but it's not prescribed. 486 00:28:23,560 --> 00:28:26,200 Like imagine that being prescribed to go swimming to the 487 00:28:26,200 --> 00:28:28,200 swimming pool to help with regulation. 488 00:28:28,200 --> 00:28:30,960 Why? Because it's like a, a firm 489 00:28:30,960 --> 00:28:35,800 pressure on the body all over. Like it's and you know, that's 490 00:28:35,800 --> 00:28:38,360 one of the methods of regulation because you use hugging to do 491 00:28:38,360 --> 00:28:42,960 that. So swimming pool, same thing and 492 00:28:43,640 --> 00:28:45,760 in the bath, Epsom salts and bath. 493 00:28:45,760 --> 00:28:49,480 And that, that's another one that does helps really well. 494 00:28:49,640 --> 00:28:52,520 So there are in all of these books, there are hundreds of 495 00:28:52,520 --> 00:28:55,200 examples. I'm just working my way through 496 00:28:55,600 --> 00:28:58,000 writing the articles, making sure they're correct, getting 497 00:28:58,000 --> 00:29:00,320 them validated with parents, making sure. 498 00:29:00,320 --> 00:29:02,400 What was the name of the gentleman that spoke about 499 00:29:02,400 --> 00:29:05,480 spitting earlier on? Oh. 500 00:29:05,480 --> 00:29:05,960 Oh. Was it Sean? 501 00:29:05,960 --> 00:29:06,720 Sean. OK, Sean. 502 00:29:06,720 --> 00:29:07,400 Sorry. Thank you, Sean. 503 00:29:07,960 --> 00:29:09,560 Yeah. Your, your spitting comment will 504 00:29:09,560 --> 00:29:11,560 be turned into an article like tonight on my way home. 505 00:29:12,120 --> 00:29:13,800 Right. Because I've, because I've, 506 00:29:14,000 --> 00:29:18,200 because I've, because I've read it everywhere and no one knows. 507 00:29:18,600 --> 00:29:22,080 Like, I had a Eureka moment, sat there and just was like, of 508 00:29:22,080 --> 00:29:24,560 course it's age-related. How didn't I see that? 509 00:29:25,200 --> 00:29:28,320 You know, because everyone talks about it when it happens, but no 510 00:29:28,320 --> 00:29:29,600 one ever tells you when it stops. 511 00:29:29,800 --> 00:29:33,120 No one ever says how old the child was when it stopped and 512 00:29:33,120 --> 00:29:34,400 what they found out. Yeah, we say. 513 00:29:34,760 --> 00:29:36,280 When it happens, but we don't put. 514 00:29:36,560 --> 00:29:38,280 An end date on it. Sometimes you don't even know 515 00:29:38,280 --> 00:29:39,880 when the end date is there because unless you're watching 516 00:29:39,880 --> 00:29:44,040 for it, sometimes it might even be a crazy stem that Thomas 517 00:29:44,040 --> 00:29:46,240 does, for example, it's not until you go back and go play 518 00:29:46,240 --> 00:29:48,600 out do you remember that when he did this, you don't actually 519 00:29:48,600 --> 00:29:50,360 remember it stopping. You only remember going through 520 00:29:50,360 --> 00:29:54,080 it at the time, so. I just want to say overall, like 521 00:29:54,080 --> 00:29:56,120 I could talk for hours and hours about this. 522 00:29:56,760 --> 00:30:03,960 My cameras weren't, but it's, it's been, it's been an amazing 523 00:30:03,960 --> 00:30:06,640 experience to listen to the podcast, to hear all the 524 00:30:06,640 --> 00:30:10,520 information that you have to, to be that rawness that is the 525 00:30:10,520 --> 00:30:14,200 truth of everyday life. And also the the little moments 526 00:30:14,200 --> 00:30:18,480 that you have where you where you share something that means a 527 00:30:18,480 --> 00:30:20,600 lot to the people that are listening. 528 00:30:20,800 --> 00:30:25,560 But it means it means as much, if not more from my perspective 529 00:30:26,200 --> 00:30:30,680 because I've heard it and I now know that it's something from 530 00:30:30,680 --> 00:30:38,640 someone local like national in the UK that I can talk to and 531 00:30:38,640 --> 00:30:43,320 ask a few more questions to go, OK, this seems to be a common 532 00:30:43,320 --> 00:30:44,440 thing. Is this something that's 533 00:30:44,440 --> 00:30:47,520 happening? Here's an answer from people 534 00:30:47,520 --> 00:30:50,640 that have said it around the world that could help with this. 535 00:30:51,000 --> 00:30:54,080 Why? Because if your children can use 536 00:30:54,920 --> 00:30:59,920 26 letters on a spelling board and spell any word they want to, 537 00:31:00,240 --> 00:31:03,040 isn't that better than limiting them to the requirements of a 538 00:31:03,040 --> 00:31:06,200 device? Like that's how simple it is. 539 00:31:06,520 --> 00:31:08,840 When they progress from a spelling board, they can go 540 00:31:08,840 --> 00:31:12,320 eventually to a keyboard that's supported by somebody else to 541 00:31:12,320 --> 00:31:16,800 regulate it, and then maybe they can get to a typing capacity 542 00:31:16,800 --> 00:31:19,600 independently. That's a journey that requires a 543 00:31:19,600 --> 00:31:24,120 massive amount of motor modelling through different 544 00:31:24,440 --> 00:31:28,400 methodologies that that enable that motor process to happen. 545 00:31:28,920 --> 00:31:33,240 And it has to always be regulated or Co regulated until 546 00:31:33,240 --> 00:31:37,320 it doesn't need to be. But it's a, it's a, it's not a 547 00:31:37,320 --> 00:31:39,600 complicated way to explain it, but involves a little bit of 548 00:31:39,600 --> 00:31:43,760 brain science. But it's all about myelinated 549 00:31:43,760 --> 00:31:46,040 motor. So it's how the how the motor 550 00:31:46,040 --> 00:31:49,440 pathway is built. If you practise with your 551 00:31:49,440 --> 00:31:55,960 children and build some physical weighted like a wrist weight, 552 00:31:56,400 --> 00:31:59,120 putting a wrist weight on your child so that they can fill 553 00:31:59,120 --> 00:32:03,960 their hand in space. OK, So there are different 554 00:32:03,960 --> 00:32:06,720 senses that apply to different types of things. 555 00:32:06,720 --> 00:32:10,440 So knowing where you are in the world and knowing where your arm 556 00:32:10,480 --> 00:32:16,760 is, that's a that's a sense that's not fully functioning. 557 00:32:17,520 --> 00:32:20,640 Time is another one. So here's one that's out there a 558 00:32:20,640 --> 00:32:24,360 bit and I'm excuse me for yeah, you'll enjoy this one. 559 00:32:24,360 --> 00:32:28,440 OK, OK. How do I explain this to start 560 00:32:28,440 --> 00:32:29,680 with? Wait there. 561 00:32:29,680 --> 00:32:34,160 Wait, wait, wait. Wait 30, 7 minutes. 562 00:32:34,280 --> 00:32:38,120 OK, you can't have 37 minutes. Sorry, I'm going to do this. 563 00:32:38,120 --> 00:32:42,160 This will be the last one, so you know that you'll have to 564 00:32:42,640 --> 00:32:44,440 help me out because I can't remember what they're called. 565 00:32:44,600 --> 00:32:47,160 You know when you write a routine down and you have it on 566 00:32:47,160 --> 00:32:50,520 a board and it helps Reg what? How would you describe it? 567 00:32:50,520 --> 00:32:56,160 It helps what schedule? OK, schedule, Schedule and time 568 00:32:56,160 --> 00:32:57,760 is. Kept certain expectations 569 00:32:57,760 --> 00:33:00,120 essentially right. So imagine this for a moment. 570 00:33:00,400 --> 00:33:04,560 This is going to sound absolutely off the wall, but 571 00:33:04,560 --> 00:33:09,560 stick with me, OK? Imagine that you had no 572 00:33:09,560 --> 00:33:14,320 perception of time. OK, we had no perception of 573 00:33:14,320 --> 00:33:17,920 time. Today, tomorrow, an hour, 574 00:33:18,040 --> 00:33:19,600 anything else. If you have no perception of 575 00:33:19,600 --> 00:33:24,480 time, then the thing on the wall tells you what's next, doesn't 576 00:33:24,480 --> 00:33:26,640 it? OK, so you drive. 577 00:33:26,640 --> 00:33:28,400 You're in the car, you're driving to a roundabout that you 578 00:33:28,400 --> 00:33:30,640 always go round. And instead of going this 579 00:33:30,640 --> 00:33:33,040 direction, suddenly you go that direction. 580 00:33:34,280 --> 00:33:37,240 What would that be like if you had no sense of time? 581 00:33:39,440 --> 00:33:40,880 What do you feel like? You've been kidnapped. 582 00:33:41,920 --> 00:33:45,280 OK, so that's a really, like sharp answer instantly. 583 00:33:45,280 --> 00:33:50,640 OK, so imagine that's what causes the dysregulation. 584 00:33:52,680 --> 00:33:55,440 Now imagine that in every environment where you don't know 585 00:33:55,440 --> 00:33:57,800 what's going to happen to you because you have no perception 586 00:33:57,800 --> 00:34:01,680 of time instead of it being about something else. 587 00:34:02,120 --> 00:34:06,000 OK, So you just throw that out there and consider it OK, 588 00:34:06,520 --> 00:34:09,920 Because if you can consider it, then it's potentially you 589 00:34:09,920 --> 00:34:14,880 looking from the inside out rather than the outside in. 590 00:34:15,639 --> 00:34:18,120 And there are lots of examples like that, but it's a really 591 00:34:18,120 --> 00:34:22,120 hard 1 to get your head round. But if you can kind of see that 592 00:34:22,120 --> 00:34:27,159 that Oh my goodness that that makes sense in what I see when 593 00:34:27,159 --> 00:34:29,280 we don't follow the same routine. 594 00:34:29,280 --> 00:34:37,080 OK, so I've also from spellers, they although we see our hand 595 00:34:37,080 --> 00:34:42,000 going up right in front of us because we have the ability to 596 00:34:42,000 --> 00:34:46,120 sense our hand in space. That's not something they have 597 00:34:46,120 --> 00:34:49,600 until you put a weight on that hand and the muscle has to work. 598 00:34:49,840 --> 00:34:51,719 Then they realise that the muscles doing something 599 00:34:51,719 --> 00:34:54,600 different in the arm, which sends a message to the brain 600 00:34:54,600 --> 00:34:57,760 that tells the brain that might be their arm, but they don't 601 00:34:57,760 --> 00:35:00,840 know it's their arm because they have apraxia. 602 00:35:01,440 --> 00:35:03,640 So they have a brain body disconnect. 603 00:35:04,000 --> 00:35:11,160 It's like there's an article 1 called the two apraxia. 604 00:35:11,160 --> 00:35:15,440 The two body controller. Imagine a puppet in front of me 605 00:35:16,400 --> 00:35:20,920 and it's got 2 sets of strings. OK, the one on the left side 606 00:35:20,920 --> 00:35:27,960 here is the person, the child and their brain control to their 607 00:35:27,960 --> 00:35:29,600 body. OK, So they can move. 608 00:35:29,600 --> 00:35:30,360 Move that. OK. 609 00:35:30,840 --> 00:35:33,120 And then there's what we call the Apraxit controller this 610 00:35:33,120 --> 00:35:37,080 side, which is the system of how the body works on its own 611 00:35:37,080 --> 00:35:39,400 without the brain, the mind working it. 612 00:35:39,920 --> 00:35:43,680 OK, And you say you can say this twice to the same child. 613 00:35:45,440 --> 00:35:49,000 I'll use Thomas as an example. Thomas go and sit on the chair 614 00:35:49,360 --> 00:35:51,720 and one time he'll do it and another time he won't. 615 00:35:52,120 --> 00:35:56,720 But imagine if that's the the strings here, he's managed to do 616 00:35:56,720 --> 00:35:59,920 something which has got into the chair and the next time the 617 00:35:59,920 --> 00:36:02,080 apraxia controller takes over and he doesn't even doesn't do 618 00:36:02,080 --> 00:36:06,080 it. So like 2 cogs coming together, 619 00:36:06,160 --> 00:36:10,520 they do occasionally, but not always, OK, because the, the 620 00:36:10,520 --> 00:36:13,200 connections don't allow them to do that. 621 00:36:13,720 --> 00:36:17,760 So the brain body disconnected vapraxia explains many of the 622 00:36:17,760 --> 00:36:22,160 things that you'll see in because they're irregularly 623 00:36:22,160 --> 00:36:26,200 irregular, not consistently irregular, not consistently 624 00:36:26,240 --> 00:36:29,880 constant. So those things are happening 625 00:36:30,240 --> 00:36:34,240 and it's like the the the mind of the brain, the brain body 626 00:36:34,240 --> 00:36:36,840 disconnect the brain and the mind is going, I want to do 627 00:36:36,840 --> 00:36:39,040 that. It knows they know they are 628 00:36:39,040 --> 00:36:43,680 smart people, they are smart. They are at minimum the same as 629 00:36:43,680 --> 00:36:46,880 everybody else of their age. And if you open your eyes, 630 00:36:46,960 --> 00:36:50,600 they're way beyond them. OK, so that's the presumed 631 00:36:50,600 --> 00:36:53,520 competence, belief and love piece is is where it they're the 632 00:36:53,520 --> 00:36:55,800 golden keys. That's what works. 633 00:36:55,840 --> 00:37:01,200 It's written in everything. And if you can see through that 634 00:37:01,200 --> 00:37:04,960 moment of understanding the opportunity, it's there. 635 00:37:06,840 --> 00:37:12,040 Thank you mate. My head's falling off, sure. 636 00:37:13,520 --> 00:37:14,840 There's a lot to take here, isn't it? 637 00:37:15,720 --> 00:37:16,640 Yeah, it's interesting, aren't it? 638 00:37:16,960 --> 00:37:20,040 It's very interesting. Thank you mate, greatly 639 00:37:20,040 --> 00:37:20,640 appreciated.